ALBERT HAS DONE IT! 700!!!!!

Waino on Albert: "The greatest hitter anyone on this team has ever seen, and probably anybody playing the game today has ever seen, and there's no close second." And on Yadi: "I'm gonna miss you the most. ... Absolutely the smartest player that anyone's ever seen." #STLCards

Albert Pujols: "To all you in Cardinal Nation, the best fans in baseball — thank you so much for all your support, all the joy, all the tears that we have shared together. I love you all, you guys are always gonna have a special place in my heart. God bless you all." #STLCards

Terrific #WUPhysicianScientist! Get in on the ground floor of this lab!!!

Congratulations to Jorge Di Paola, MD (Jorge DiPaola), who was installed as the Elizabeth Finney McDonnell Endowed Chair in Pediatric Hematology Oncology on Sept. 22!

Join the webinar Clinical Research Design for Rare Disease: Strategy and Pitfalls Developing Experimental Therapeutics for #VascularAnomalies on Tuesday Nov 8 @ 3pm CT with Taizo Nakano@NucleatedRBC #SallyCohen-Cutler #BryanSisk #AlexandraBorst. #PHODocs ow.ly/x9GL50LoAfA

Sisk et al. (2020) found that effective communication in pediatric oncology: 1) builds relationships, 2) exchanges information, 3) facilitates family self-management, 4) supports decision-making, 5) manages uncertainty, 6) responds to emotions, 7) validates, and 8) provides hope.

American Society of Pediatric Hematology/Oncology Support #RareDisease, join us for this American Society of Pediatric Hematology/Oncology webinar. #RareAsOne, #PROS, PTEN Foundation US LGDAlliance K-T Support Group Project FAVA CLOVES Syndrome Community, guest speaker Bryan Sisk

Huge thanks to CLOVES Syndrome Community and K-T Support Group for supporting this research! Their support allowed us to publish #OpenAccess so we can share patients' and parents' advice with clinicians & families. Bryan Sisk #VascularBirthmarks #RareDisease sciencedirect.com/science/articl…

Is "Grateful Patient Fundraising" ethical? “I was distressed that the sacred space of trust I so carefully cultivated with each patient was being breached by the institution...” Read Heidi & A. Friedrich on #ethics #effectivealtruism NIB thehastingscenter.org/grateful-patie…

We are pleased to announce the appointment of Abby Rosenberg, MD, MS, MA as the Chief of Pediatric Palliative Care at Dana-Farber Cancer Institute and Director of Palliative Care at Boston Children’s Hospital. danafarberbostonchildrens.org/news/abby-r-ro…

Kaposiform lymphangiomatosis: Diagnosis, pathogenesis, and treatment onlinelibrary.wiley.com/doi/10.1002/pb… ISSVA and American Society of Pediatric Hematology/Oncology please help disseminate this review paper to your global members so they have guidance on how to care for kids like my son Michael a #KLAwarrior. #CareAboutRare

That moment when your dream becomes a reality.

“I’m weary. There’s only so many times you can walk in the room and tell someone they’re not coming home tomorrow…I would simply ask you to do something. Because doing nothing, which is what we have been doing, is not working.” – Louisville, Kentucky Dr. Jason Smith

New Paper: Adolescent portal access policies vary widely across and within states. Informatics administrators identified multiple challenges to developing and implementing these policies. Can we reach consensus within states? American Academy of Pediatrics AAP Journals doi.org/10.1542/peds.2…

American Society of Pediatric Hematology/Oncology Cook Children's A packed #VascularAnomalies schedule American Society of Pediatric Hematology/Oncology #ASPHO2023 Opportunity for education, networking, and even BBQ Riscky's Speakers from Children's Hospital Colorado Children's Hospital Arkansas Children's and more #PHO #PHOdocs #PedsHemeOnc Hem-Onc Fellows Network

Happy to report on this important first fétus treated in 2015-2016. Already with an important follow up period ! New approach fir managing large in utero #vascular anomalies. #vascern #vascapa #revamp #vacure #hevas #cmtc #deduveinstitute #UCLouvain

Making a Difference grantee Bryan Sisk studied policies on health information portals for adolescents, finding wide variation across and within states and multiple challenges to policy development and implementation. publications.aap.org/pediatrics/art…

June newsletter alert 📢 The Greenwall News ft. work from community members Amy McGuire, Holly Fernandez Lynch, I. Glenn Cohen, Bryan Sisk, Govind Persad (also @govindpersad.bsky.social), Michelle Mello, @jasonkarlawish & more is here ➡️ mailchi.mp/greenwall/gree…

#FSP Alum Michelle Mello on AI models like ChatGPT: "physicians should use [them] only to supplement more traditional forms of [info] seeking.... [T]hough [they] may one day constitute a safe option for physicians’ queries, that time has not yet come." jamanetwork.com/journals/jama-…