Sickle Cell Society (@sicklecelluk) 's Twitter Profile
Sickle Cell Society

@sicklecelluk

The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.

ID: 249681396

linkhttps://www.sicklecellsociety.org/ calendar_today09-02-2011 15:19:46

15,15K Tweet

10,10K Followers

1,1K Following

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Volunteer with Us โ€“ Sickle Cell Family Retreat 2025! ๐Ÿ•๏ธ We're looking for healthcare pros & non-clinical volunteers to support families through a weekend of learning, adventure & community ๐Ÿ’›Apply by 30 May ๐Ÿ‘‰ bit.ly/VOLUNTEERS2025 #SickleCell #VolunteerOpportunity

Volunteer with Us โ€“ Sickle Cell Family Retreat 2025! ๐Ÿ•๏ธ We're looking for healthcare pros & non-clinical volunteers to support families through a weekend of learning, adventure & community ๐Ÿ’›Apply by 30 May ๐Ÿ‘‰ bit.ly/VOLUNTEERS2025 
#SickleCell #VolunteerOpportunity
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๐Ÿ“ฃ Last chance to register! Join us Sat, May 31 for the Sickle Cell Feedback Session with London Ambulance Service & Sickle Cell Society UK. ๐Ÿ• 1โ€“2:30PM ๐Ÿ“ Living Space, SE1 7BE ๐Ÿงƒ Refreshments provided! Share your views & help shape better care. Scan QR to sign up! #SickleCellAwareness

๐Ÿ“ฃ Last chance to register!
Join us Sat, May 31 for the Sickle Cell Feedback Session with <a href="/Ldn_Ambulance/">London Ambulance Service</a> &amp; Sickle Cell Society UK. 
๐Ÿ• 1โ€“2:30PM
๐Ÿ“ Living Space, SE1 7BE
๐Ÿงƒ Refreshments provided!
Share your views &amp; help shape better care. Scan QR to sign up! #SickleCellAwareness
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๐Ÿšจ We're hiring a Lead Mentor for our Sickle Cell Peer Mentoring Programme in NE London! Support 10โ€“24 y/o with SCD, Lead sessions, run activities, manage mentors. Deadline: 5PM, 20 June 2025. Apply: [email protected]๐Ÿ”— Link in bio Male mentors encouraged to apply!

๐Ÿšจ We're hiring a Lead Mentor for our Sickle Cell Peer Mentoring Programme in NE London! Support 10โ€“24 y/o with SCD, Lead sessions, run activities, manage mentors. 
Deadline: 5PM, 20 June 2025.  Apply: mentors@sicklecellsociety.org๐Ÿ”— Link in bio
Male mentors encouraged to apply!
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WORLD SICKLE CELL DAY 2025: TELL IT LOUD Our 2025 theme is here! ๐Ÿ—ฃ๏ธ Weโ€™re asking you to #TellItLoud for sickle cell: ๐Ÿ“ฑ Post and share content ๐Ÿงฅ Wear red โœ๏ธ Write to your MP (details on our webpage) ๐Ÿ“ข Use the hashtags: #TellItLoud #LoudEnough buff.ly/OHmrqOS

WORLD SICKLE CELL DAY 2025: TELL IT LOUD
Our 2025 theme is here! 
๐Ÿ—ฃ๏ธ Weโ€™re asking you to #TellItLoud for sickle cell:
๐Ÿ“ฑ Post and share content
๐Ÿงฅ Wear red
โœ๏ธ Write to your MP (details on our webpage)
๐Ÿ“ข Use the hashtags: #TellItLoud #LoudEnough
buff.ly/OHmrqOS
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Throwback to #HackneyHalf 2025! ๐ŸŽ‰ Huge congrats to everyone who finished! Biggest thanks to those who ran for the Sickle Cell Society โ€“ your support means everything ๐Ÿ’™ Shoutout to Holly Mann, Freya Edwards, Lydia Okoibhole, Olivia Abiwon, Cartier Fraser & Othniel Agyei.

Throwback to #HackneyHalf 2025! ๐ŸŽ‰ Huge congrats to everyone who finished! Biggest thanks to those who ran for the Sickle Cell Society โ€“ your support means everything ๐Ÿ’™
Shoutout to Holly Mann, Freya Edwards, Lydia Okoibhole, Olivia Abiwon, Cartier Fraser &amp; Othniel Agyei.
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Live with Sickle Cell Disease? Aged 18+ & registered with a haematology team in England? Join the RISE Study! ๐Ÿ’ฌ Help shape better self-management tools through online group sessions. ๐Ÿ”— buff.ly/lRBoomL ๐Ÿ“ง [email protected] #SickleCell #RISEStudy

Live with Sickle Cell Disease? Aged 18+ &amp; registered with a haematology team in England?

Join the RISE Study! ๐Ÿ’ฌ Help shape better self-management tools through online group sessions.

๐Ÿ”— buff.ly/lRBoomL
๐Ÿ“ง rmclough@citystgeorges.ac.uk
#SickleCell #RISEStudy
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#WorldSickleCellDay on 19 June! #TalkItLoud to raise awareness for sickle cell, an inherited condition that causes chronic pain. Learn what we're doing in South London and see how you can make an impact with Sickle Cell Society ! #SickleCellAwareness #NHS #HealthEquity

#WorldSickleCellDay on 19 June! #TalkItLoud to raise awareness for sickle cell, an inherited condition that causes chronic pain. Learn what we're doing in South London and see how you can make an impact with <a href="/SickleCellUK/">Sickle Cell Society</a> ! #SickleCellAwareness #NHS #HealthEquity
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It is #nationalbloodweek ! Yaaayyy ๐Ÿ™Œ๐Ÿ™Œ! Calling on 1 million giving types ๐Ÿ…ฐ๏ธ๐Ÿ…ฑ๏ธ๐Ÿ†Ž๐Ÿ…พ๏ธ๐Ÿฉธ to donate this year, #blooddonors & #firsttimedonor . Save a life by donating blood ๐Ÿฉธ! #nationalblooddonorweek #nationalbloodweek #blooddonor ! Repost from @givebloodnhs @sicklecelluk

It is #nationalbloodweek ! Yaaayyy ๐Ÿ™Œ๐Ÿ™Œ! Calling on 1 million giving types ๐Ÿ…ฐ๏ธ๐Ÿ…ฑ๏ธ๐Ÿ†Ž๐Ÿ…พ๏ธ๐Ÿฉธ to donate this year, #blooddonors &amp; #firsttimedonor . Save a life by donating blood ๐Ÿฉธ! #nationalblooddonorweek #nationalbloodweek #blooddonor ! Repost from @givebloodnhs @sicklecelluk
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๐Ÿ“ข In the lead-up to #WorldSickleCellDay, weโ€™re calling for change. People with sickle cell deserve stronger workplace rights & better employer education. โœŠ๐Ÿพ Write to your MP today: buff.ly/3gq50iR #TellItLoud #YourVoiceMatters

๐Ÿ“ข In the lead-up to #WorldSickleCellDay, weโ€™re calling for change.

People with sickle cell deserve stronger workplace rights &amp; better employer education.

โœŠ๐Ÿพ Write to your MP today: buff.ly/3gq50iR

#TellItLoud #YourVoiceMatters
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๐Ÿฉธ Join Whittington Health & NCL ICS for World Sickle Cell Day on Thurs 19 June! Meet the NCL Red Cell Team & raise awareness across local centres incl. Wood Green, UCLH, North Mid & more. ๐Ÿ“ง [email protected] #SickleCell #TogetherForChange

๐Ÿฉธ Join Whittington Health &amp; NCL ICS for World Sickle Cell Day on Thurs 19 June!
Meet the NCL Red Cell Team &amp; raise awareness across local centres incl. Wood Green, UCLH, North Mid &amp; more.

๐Ÿ“ง ncl.redcellteam@nhs.net
#SickleCell #TogetherForChange
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๐Ÿ’™ Happy Fatherโ€™s Day to all the amazing sickle cell dads. Whether you live with it or care for someone who does, your strength, patience & love inspire us every day. Wishing you rest, recovery & recognition โ€” From all at Sickle Cell Society ๐Ÿฉธ

๐Ÿ’™ Happy Fatherโ€™s Day to all the amazing sickle cell dads.

Whether you live with it or care for someone who does, your strength, patience &amp; love inspire us every day.

Wishing you rest, recovery &amp; recognition

โ€” From all at <a href="/SickleCellUK/">Sickle Cell Society</a> ๐Ÿฉธ
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Weโ€™re proud to share that our CEO John James will be speaking at #PPW2025 hosted by Patients Association ! ๐Ÿ—ฃ๏ธโœจJoin on Friday 4th July, 9โ€“10am as he champions patient voices in healthcare campaigns.๐Ÿ‘‰ Register now at: buff.ly/x3qJ3uv #SickleCell #PatientVoice

Weโ€™re proud to share that our CEO John James will be speaking at #PPW2025 hosted by <a href="/PatientsAssoc/">Patients Association</a> ! ๐Ÿ—ฃ๏ธโœจJoin on Friday 4th July, 9โ€“10am as he champions patient voices in healthcare campaigns.๐Ÿ‘‰ Register now at: buff.ly/x3qJ3uv #SickleCell #PatientVoice
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๐Ÿง  Leading up to #WorldSickleCellDay, letโ€™s get the mind working! ๐Ÿ” Whatโ€™s the first word you see? Download our word search + 2 fun activity pages for all ages: ๐Ÿ‘‰ buff.ly/WDpczGm Tag us when you complete them! #WSCD2025 #TellItLoud

๐Ÿง  Leading up to #WorldSickleCellDay, letโ€™s get the mind working!

๐Ÿ” Whatโ€™s the first word you see?
Download our word search + 2 fun activity pages for all ages:
๐Ÿ‘‰ buff.ly/WDpczGm

Tag us when you complete them! #WSCD2025 #TellItLoud
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๐Ÿฉธ SHOUT: Tell It Loud This #WorldSickleCellDay weโ€™re amplifying voices too often ignored. The pain is real. The silence is loud. Letโ€™s listen. Letโ€™s care. Letโ€™s act. #SickleCellAwareness #ShoutTellItLoud #InvisibleNoMore #WSCD2025 #ArtWithPurpose

๐Ÿฉธ SHOUT: Tell It Loud
This #WorldSickleCellDay weโ€™re amplifying voices too often ignored.
The pain is real. The silence is loud.
Letโ€™s listen. Letโ€™s care. Letโ€™s act.

#SickleCellAwareness #ShoutTellItLoud #InvisibleNoMore #WSCD2025 #ArtWithPurpose
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Konnor Ewudzi joined us on the iconic Supacell estate to share how sickle cell has impacted his family โ€” with 8 relatives affected. โ€œTesting is so key โ€” and blood donation even more so.โ€ Thank you, Konnor, for helping raise awareness. #WorldSickleCellDay #SickleCellAwareness

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๐Ÿฉธ This #WorldSickleCellDay weโ€™re highlighting the importance of screening. The NHS offers antenatal & newborn screening for sickle cell via a simple blood test. Early testing = informed choices & better care. Give Blood, Spread Love #SickleCellAwareness #KnowYourStatus

๐Ÿฉธ This #WorldSickleCellDay weโ€™re highlighting the importance of screening.
The NHS offers antenatal &amp; newborn screening for sickle cell via a simple blood test. Early testing = informed choices &amp; better care. <a href="/givebloodlove/">Give Blood, Spread Love</a> #SickleCellAwareness #KnowYourStatus
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On June 20, our CEO John James joined emancipated run crew at the Jamaican High Commission to receive ยฃ5,910.37 for the Sickle Cell Society. Massive thanks for your years of support โ€” your impact is real! ๐Ÿ™Œ๐Ÿพ๐Ÿฉธ#SickleCell #RunForACause #ERC #BlackRunners #HealthEquity #ThankYou

On June 20, our CEO John James joined emancipated run crew at the Jamaican High Commission to receive ยฃ5,910.37 for the Sickle Cell Society. Massive thanks for your years of support โ€” your impact is real! ๐Ÿ™Œ๐Ÿพ๐Ÿฉธ#SickleCell #RunForACause #ERC #BlackRunners #HealthEquity #ThankYou
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On #WindrushDay, we honour the legacy of the Windrush Generation ๐Ÿ‡ฏ๐Ÿ‡ฒ๐Ÿ‡ฌ๐Ÿ‡ง For many with sickle cell, the day holds deep meaning โ€” a reminder of both heritage and the ongoing fight against stigma, inequality & poor care. ๐Ÿฉธ Letโ€™s keep amplifying these voices. #SickleCell

On #WindrushDay, we honour the legacy of the Windrush Generation ๐Ÿ‡ฏ๐Ÿ‡ฒ๐Ÿ‡ฌ๐Ÿ‡ง

For many with sickle cell, the day holds deep meaning โ€” a reminder of both heritage and the ongoing fight against stigma, inequality &amp; poor care.

๐Ÿฉธ Letโ€™s keep amplifying these voices. #SickleCell
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World Sickle Cell Day may be over, but the work continues. Our North West & South Yorkshire mentoring teams are busting myths and sharing the facts ๐Ÿ’ญ Myth or Truth? Letโ€™s fact check! #SickleCellAwareness #MythVsFact #TellItLoud #SickleCellSociety #BloodMatters

World Sickle Cell Day may be over, but the work continues.

Our North West &amp; South Yorkshire mentoring teams are busting myths and sharing the facts ๐Ÿ’ญ

Myth or Truth? Letโ€™s fact check!

#SickleCellAwareness #MythVsFact #TellItLoud #SickleCellSociety #BloodMatters
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๐Ÿ—ฃ๏ธ Your voice matters in hospital care. Our NW & South Yorkshire mentors are empowering young people with sickle cell to speak up, stay safe & push for better treatment ๐Ÿฅ๐Ÿฉธ Letโ€™s advocate for change where itโ€™s needed most. #SickleCell #SpeakUpStaySafe #NHSVoices #YouthVoice

๐Ÿ—ฃ๏ธ Your voice matters in hospital care.

Our NW &amp; South Yorkshire mentors are empowering young people with sickle cell to speak up, stay safe &amp; push for better treatment ๐Ÿฅ๐Ÿฉธ

Letโ€™s advocate for change where itโ€™s needed most.

#SickleCell #SpeakUpStaySafe #NHSVoices #YouthVoice