Why is it hospital waiting rooms have no place to lie down? Absurd. Severe pots means i must be horizontal as much as possible, especially when I'm not doing well. Tried to curl up on a chair, ended up on the waiting room floor... Luckily we brought a sheet and towel.

ME Research UK and the ME Association have awarded funding to Dr Fatima Labeed and Dr Jackie Cliff to develop a diagnostic test for ME/CFS, expanding on their initial study showing electrical differences in blood cells from people with ME/CFS. Read more: bit.ly/4pu2qXM

On Monday night I got to sleep flat for the first night in 13weeks. My M.E has been crashing, and we turned my feed off for the night to give my body complete rest (both from digestion and from being reclined/propped up). It was so so needed, bliss.

annie Farmers. They're the only ones on the list that aren't actively trying to fuck people over.

🔥♥️ Please help share the campaign. A specialist NHS service for everyone living with ME, including family carers, regardless of the severity or duration of the illness. Help nudge the total a tiny bit. Every little helps 🙏 ➡️ Justice4ME.uk ⬅️ #pwME #Justice4ME

Can you please paste below articles on very severe me/cfs? Both scientific and patient stories/articles. Thank you 🤍 #pwme #severeme #longcovid

Dr LG (is a longhauler) Sarah Barker BendyBrain: Dr Jessica Eccles Case report: Autosomal recessive type 3 Stickler syndrome caused by compound heterozygous mutations in COL11A2 pmc.ncbi.nlm.nih.gov/articles/PMC10… Pathogenic variants in PLOD3 result in a Stickler syndrome-like connective tissue disorder with vascular complications pubmed.ncbi.nlm.nih.gov/31129566/

I am alive because I got told to stop working and go on disability benefits. This is not uncommon.

Swallows heading to Africa from the corrugated barn on a Scottish hillside . Geese flying over the little corrugated barn from Svalbard hillside heading towards the Scottish seaside .

2010 Irlen screened .2011 officially diagnosed . 2014 my rapid response published in BMJ defending Irlen syndrome because the diagnosis is positively life changing . Patients will not be able to read , comprehend, remember digital info because of light sensitivity (back lights)

I’m light & sound sensitive & have rushes of thicker blood when exposed to these . I know thousands of severe ME patients hypersensitive too ! I know that 5 HELP Apheresis is releasing muscle combinations after decades so that means NHS tests blood viscosity require improvement !

Sabrina Poirier (On Hiatus) 🇨🇦 Here’s Figure 1, which is a graphical summary of results. It doesn’t take many reports of unusual signs and symptoms after a known exertion to distinguish PEM from deconditioning. The farther out for the exertion you get, you only need one unusual symptom. journals.sagepub.com/doi/10.3233/WO…

Trump officials are expected to link the use of pain reliever Tylenol in pregnant women to autism, according to US media  Tylenol is known as paracetamol elsewhere  Some studies have shown a link between pregnant women taking Tylenol & autism - these findings are inconsistent

The machinery for digital ID was set up during Covid. Remember test and trace & vaccine passport apps? Also the previous Tory government set up consultations & Bank of England jobs on CBDCs. So the Labour government manoeuvres towards digital ID are pretty much a fait accompli.

Off overnight to Germany to see Dr Jaegar. I bang on about b12 and abilify because those where the things that got me out of bed . But I believe treating the amyloid fibrin microclots is essential. I’ll be able to get my blood looked at tomorrow morning and see if it’s any better

ME/CFS is an incredibly disabling illnesses—scoring lower in quality of life than cancer, stroke, & MS in one study. This illness is real, and those affected deserve care. 💙Support medical education to improve care: batemanhornecenter.org/donate/  #MECFS #LongCOVID

Small Tortoiseshell seen at Aldingham Beach, Ulverston on 23 Sep 2025.

After having ME 36yrs I was told HELP Apheresis would not work because I’d been ill too long ! This is not the case & muscle combinations are releasing all over very steadily , even now three yrs after the treatment . And I can stand up far straighter , even skull bones released