Sjögren’s can also affect gynaecological health too From vaginal dryness to painful intimacy, these symptoms are often under-discussed but deeply impactful. It’s time we shine a light on all aspects of this, because awareness leads to better care. #sjogrens #sjogrensuk #sjögrens

Hypokalemic paralysis: Neuro or Nephro?

Can we have the benefits of steroids without their notorious side effects? Vamorolone, a novel dissociated steroid, shows promise in TNF-α-driven arthritis mice: — Equal anti-inflammatory power as prednisolone — Resistant to 11β-HSD1 metabolism — No adrenal atrophy, muscle

Hot off the press 💫 Full article link below : trebuchet.public.springernature.app/get_content/2e…

🧠 Which neurological features should make you suspect Sjögren’s? ⚠️ Think beyond & before dryness ➡️ Sensory Neuronopathy/Ganglionopathy ➡️ Small Fiber Neuropathy ➡️ Autonomic Dysfunction ➡️ Optic Neuritis ➡️ Myelitis ➡️ Cranial neuropathy- esp trigeminal #SjögrensAwareness

👏👏👏👏👏 TY Dr. Pulukool! (Please RT if you'd like more to be aware about Sjogrens.)

🌐 Sjögren’s: The Autoimmune Chameleon of Neurology! 📷SS has the widest neurological manifestations described for any autoimmune disease. CNS < PNS. As pointed out by Neuro Sjogrens, motor neuropathies, CIDP, brain fog, seizures, psychiatric etc, are to be added to the list

Fascinating! Gut microbiota in patients may be a possible trigger of small fiber neuropathy in the skin. Conversely, gut microbiota of healthy people might reduce small fiber neuropathy in patients. There is a lot to be learned, but one thing is clear: your #fibromyalgia,

🌍 Sjögren’s Awareness Month ends — but our voice stays strong 💙 Thank you for sharing, supporting & raising awareness 🌟 You’ve shown one powerful truth: you are not alone. We keep going. Together. 💙 #SjögrenEurope #SjögrenAwareness #YouAreNotAlone #Sjögrendisease

Continuing #Sjogrens awareness posts. 🔬 Labs Suspicious for #Sjögrens

Sandhya Pulukool It’s also good to remember that all of these tests can be negative and you can still have Sjogren’s. This is true for me and many other people with Dysautonomia and small fiber neuropathy. I have multiple systemic manifestations, but 34 years from symptom onset to diagnosis.

Studies show ⬆️mortality in Sjogren’s, SMR ranging from 1.5 -4. Respiratory infections are a top cause. I expect this will increase both directly from Covid and from the immune system damage caused by Covid. Air cleaners, N95 masks, and vaccines are all important.

You’d never know it from the outside, but someone with a chronic illness can hold a conversation, smile, even laugh…all while simultaneously fighting a battle inside their body. Brain fog, tachycardia, fatigue, dizziness and more. We get real good at pretending we’re okay.

“The future belongs to people who ask questions.” #Science Prof McInnes #CCRE25

May is #LupusAwareness month! @rheumnow is running a #Lupus campaign: Keys to Unlocking Lupus. First blog by Dr Sammaritano rheumnow.com/news/contracep… Laurent ARNAUD Lupus Foundation of America Eric Morand Ed Vital Alfred Kim (moving to Bluesky as alhkim) Dr. Alvin Wells Janet Pope

Why do we think Sjogrens is only dryness? Is it time to contact our med schools and academies to ask them to address the incomplete (& inaccurate) education they provide so we can provide better care thru better understanding? #MedTwitter #RheumTwitter #NeuroTwitter

I am happy to see great interest in our new new paper on what not to say to people with complex #chronicillness in a #rheumatology newspaper. #MedTwitter #NeuroTwitter #LongCovid #MECFS #Dysautonomia Read full article here: 👇 medscape.com/viewarticle/wh…