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Today the government announced changes to the welfare system and health related benefits. If you have concerns, there are a number of organisations that can offer advice. Follow this thread for useful links 👇: 1/4

Our awareness day, #UndiagnosedChildrensDay is just 4 weeks away! You can get involved by sharing your experiences and fundraising for our charity. Learn more about how to support the awareness day here: ow.ly/99cg50VpNrz

A huge THANK YOU to Florence for raising a whopping £100 at a birthday fundraiser for SWAN UK. 🥳 'We invited all Florence's friends and family round for a big birthday party... Florence had the best time shaking the collection boxes and getting everyone to donate.'

It's only 3 weeks until #UndiagnosedChildrensDay! It is our annual awareness day, where we spread the word about what it means to be affected by a syndrome without a name. Learn how to get involved and support our community! ow.ly/QXsE50VtXwB

We are so grateful for the support and friendship of SWAN UK (syndromes without a name) Genetic Alliance UK over the past 12yrs #thankyou 💕 Undiagnosed Children's Day Fri 25 April 💕 #swanuk #undiagnosedchildrensday #ucd2025 #undiagnosed #community #support #syndromeswithoutaname instagram.com/p/DIMHFIVS7KS/…

👋 Nellie Nellie is 14. She loves life and doesn’t let anything stop her from living her best life. Nellie is #undiagnosed. If you have a child living with an #UndiagnosedCondition, you can join our #supportive SWAN UK community. ow.ly/4j4E50VxbL4

Meet the Parkes family! Last #UndiagnosedChildrensDay they shared their fight since Charlie was born, struggling to get support when you don't fit into the boxes that healthcare professionals look for. You can still read their blog on our website now ow.ly/P1Zv50Vy22U

2 weeks to go until #UndiagnosedChildrensDay 2025! Two weeks to tell the world about our incredible community and the work of SWAN UK. Please help us make Undiagnosed Children's Day the best yet by sharing our posts. ow.ly/C55950Vy1Ne

There is only 1 week to go until #UndiagnosedChildrensDay! Who is ready? 👉 ow.ly/cw4X50Vy3k5

For years, until the DDD Study gave him a chromosomal abnormality diagnosis, Tom was a SWAN. It's a tricky place to be - without a diagnosis, you have no prognosis.

'SWAN UK have supported our whole family for over 12 years. We’ve made some lovely friends and some gorgeous memories. You are never alone in the SWAN UK community'. Every family deserves support. Help us reach more families this #UndiagnosedChildrensDay.

'Having a child with an undiagnosed genetic condition can feel very isolating and scary. However, Florence has brought us so much joy and more resilience than anyone I know. She has taught us so much in 3 years, and we couldn't be prouder' Get involved 👉 ow.ly/oSnL50VFiy0

This is a SWAN UK community member enjoying a lovely day out at Thames Valley Adventure playground! To find out more about the support we offer or join the SWAN UK community find out more on our website 👉 ow.ly/Ejib50VFiXk

It's #UndiagnosedChildrensDay! 🥳 🤩 Having a child with an #undiagnosed #genetic condition is lonely and isolating, with families having more questions than answers about what the future holds. Please share this post to help more families find SWAN UK! ow.ly/kuGJ50VHzPz

Today a chase the chicken fundraiser is taking place around Bristol! 'What is that?' I hear you say? Learn more and support the fundraiser now - and those nearby, don't forget to look out for the run taking place! 🐥👉 ow.ly/RU0M50VFx9i

Take a sneak peak at this clip from one of our new animations ... launching soon! #UCD2025 #UndiagnosedChildrensDay #SyndromeWithoutAName

Happy #undiagnosedchildrensday We really enjoyed being in the lagoon Great Ormond Street Hospital Charity with Roald Dahl Charity (Mel), SWAN UK (syndromes without a name) (Marie) & Spread a Smile ( Collette & Kerry) helping raise awareness of SWAN patients and their families. It was a fun filled Friday Taz Ashraf

We are delighted to share that Genetic Alliance UK, the charity that runs SWAN UK, has appointed Nick Meade as its new CEO 👇

It was a brilliant day Great Ormond Street Hospital for Children celebrating Undiagnosed Children's Day on Friday! Thank you so much for helping to spread the word! Great Ormond Street Hospital Charity Roald Dahl Charity Anna Jewitt #UndiagnosedChildrensDay #UCD2025

'A rapid exome, metabolic array, skin biopsy, and a whole genome study have all failed to find the cause of Rosie's condition.' geneticalliance.org.uk/news/rosieundi…