SOUND (@soundnarcolepsy) 's Twitter Profile
SOUND

@soundnarcolepsy

Support Group for Parents, Children and Young Adults affected by Narcolepsy following the H1N1 Swine Flu vaccine, Pandemrix.

ID: 2336687809

linkhttp://soundireland.ie calendar_today10-02-2014 13:26:04

119 Tweet

179 Followers

73 Following

Susan Mitchell (@susanmitchell_) 's Twitter Profile Photo

Meet Ben who developed narcolepsy after being given the #pandemrix vaccine. Gorgeous video made by his Dad James Blackwell facebook.com/1042933144/pos… (1)

Susan Mitchell (@susanmitchell_) 's Twitter Profile Photo

So poor that the Gov still hasn't got its act together to establish a compensation scheme for the tiny fraction of the population - such as Ben - who were damaged by vaccines Simon Harris TD @campaignforleo [2]

Susan Mitchell (@susanmitchell_) 's Twitter Profile Photo

Ireland is one of very few countries in the EU which has failed to introduce a no-fault compensation scheme for the very small number of people damaged by vaccines. [3]

Susan Mitchell (@susanmitchell_) 's Twitter Profile Photo

Ireland has failed to do this, even though a compensation programme was recommended as far back 2001 when the Joint Commission on Health recommended that a vaccine damage scheme be set up at the earliest possible date.[4]

Susan Mitchell (@susanmitchell_) 's Twitter Profile Photo

In June, Gov announced that it had asked an expert group led by High Court judge Charles Meenan to examine how vaccine damage claims could be handled more sensitively. Concrete action is long, long overdue [5]

Barry Cunningham (@bazcunningham) 's Twitter Profile Photo

This video will give you a sense of the damage done by the faulty #pandemrix vaccine. Those damaged by it just want to live a normal life. They need your help Simon Harris TD - it’s what you’re elected to do: help people.

Susan Mitchell (@susanmitchell_) 's Twitter Profile Photo

Doctors, nurses & others have been brilliant at speaking out about the importance of vaccines (they're life saving), but when it comes to the tiny, tiny fraction who have been adversely affected there appears to be few if any medical advocates [6] #pandemrix

Mary Williams (@marylastewillia) 's Twitter Profile Photo

Replying to @susmitchellSBP thank you for highlighting the scandal that is #pandemrix my daughter like Ben and others now living with #narcolepsy #cataplexy following #pandemrix

James Blackwell (@jamesgblackwell) 's Twitter Profile Photo

@susmitchellSBP Regina Doherty MEP Would you take 1 min to read Susan's thread, 5 mins to read her fantastic article in Fred, 3 mins to watch the video of Ben? Then give Simon Harris TD and @campaignforleo a nudge. Ben's your constituent with #narcolepsy from #pandemrix, but many affected.

James Blackwell (@jamesgblackwell) 's Twitter Profile Photo

Mark Patterson D I E P Look at these amazing topics and researchers Colin Doherty ! When the Centre for Excellence for #Narcolepsy is fully up and running in St James's Hospital , how about launching a symposium for Narcolepsy in #Ireland? SOUND

The BMJ (@bmj_latest) 's Twitter Profile Photo

Pandemrix vaccine: why was the public not told of early warning signs? BMJ investigation raises fundamental questions about the transparency of information bmj.com/content/362/bm…

Pandemrix vaccine: why was the public not told of early warning signs? BMJ investigation raises fundamental questions about the transparency of information bmj.com/content/362/bm…
Barry Cunningham (@bazcunningham) 's Twitter Profile Photo

An UNTESTED vaccine. Adverse reports. Kept hidden from the public. Simon Harris TD - decisions made by Chief Medical Officer and others led to this. They have irreparably damaged the lives of children. What lessons have been learned? bmj.com/content/362/bm… #Pandemrix #Narcolepsy

An UNTESTED vaccine. Adverse reports. Kept hidden from the public. 

<a href="/SimonHarrisTD/">Simon Harris TD</a> - decisions made by <a href="/CMOIreland/">Chief Medical Officer</a> and others led to this. They have irreparably damaged the lives of children. 

What lessons have been learned?

bmj.com/content/362/bm… #Pandemrix #Narcolepsy