If SMA begins to affect muscles involved in breathing, a pulmonologist or respiratory therapist can help. Explore how: bit.ly/3wkM1Op

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

Have you thought about setting specific goals for your appointments? You may find it helps you get the most out of them. bit.ly/3UBfJHl

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

The LTFU-Cares and Check program helps patients, families, and clinicians work together after newborn screening identifies SMA, per a study. bit.ly/3JGeIZk

Feeling uncertain about the future? Unsure how to cope with changing physical abilities? A mental health provider can help. See how: bit.ly/3UoWEYO

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

Mandatory SMA screening was introduced in Italy in late 2021 in Apulia. Explore results from the pilot program here: bit.ly/3QlIfuS

#SpinalMuscularAtrophy #SMAResearch #SMANews Today #SMANews

Findings out of China suggest “plausible biological explanations” for some of the associations. Read about them here: bit.ly/3Uh0hjd

#SpinalMuscularAtrophy #SMAResearch #SMANews Today #SMANews

The world of accessibility has improved by leaps and bounds over the past several decades, but DeAnn Runge wonders if we might be slowing down. See why in our forums: bit.ly/3U33McV

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

Catch up on the #SMANewsToday Column of the Week here: bit.ly/3Qfczre

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

A new Kohl's has come to DeAnn Runge's town, but is it accessible? She takes us along to find out.

Check out our SMA vlogs here: bit.ly/3RKFmWl

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

Listen to one mother explain what she looks for in physicians or other providers caring for her son, who lives with SMA. bit.ly/4b8NQg6

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

Hugo, who lives with SMA type 3, discusses the part he plays in coordinating his care team: bit.ly/4daWVH3

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

Children are curious and want to learn, which is why columnist Alyssa Silva has no problem answering their questions about SMA. bit.ly/3JBoY51

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

The at-home system, resembling a camping tent frame, is commercially available. Read about results from a pilot study testing its use in children with SMA: bit.ly/3vVHy4P

#SpinalMuscularAtrophy #SMAResearch #SMANews Today #SMANews

Here's a recap of the news and columns we featured this week. Head to our website to read them all: bit.ly/3HSpf2D

#SMANews Today #SMANews #SMAResearch #SMAAwareness #SMACommunity

If you’re dealing with muscle weakness, fatigue, or mobility limitations, assistive devices can make everyday life easier. Explore how: bit.ly/4b6JciH

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

A visit to the Georgia Sea Turtle Center offers columnist Halsey Blocher wisdom beyond the rescue of aquatic animals. bit.ly/3UzWwa0

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

Here is this week's most-read article featured on our #SMANews Today website! Are you caught up? bit.ly/4dc2gOj

#SpinalMuscularAtrophy #SMAResearch #SMANews

Is traveling on your summer to-do list? What events have you looking forward to warmer weather?

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

Scoliosis surgery in a girl with SMA led to a severe drop in blood pressure and oxygen levels due to the surgical table position, a report says. bit.ly/4aawSxj

Researchers found certain levels in cerebrospinal fluid helped distinguish responders from non-responders when measured before treatment. bit.ly/49QXoeS

#SpinalMuscularAtrophy #SMAResearch #SMANews Today #SMANews