Surgery for scoliosis, a sideways curvature of the spine, slowed lung function decline in untreated SMA types 2 and 3, per. a study. bit.ly/4db4gFz

For Alyssa Silva, the beach is a holy place where she can live in “ignorant bliss” of SMA and all its battles. She reflects on its healing powers after a temporary escape: bit.ly/4d8dUc6 #SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

It'd been more than 10 years since columnist Sherry Toh had a power wheelchair, and she's thrilled about the independence her new one offers. bit.ly/4e458wQ

The one-time gene therapy, in particular, helped children with at least 4 SMN2 copies achieve or maintain motor milestones. Explore the real-world data here: bit.ly/4dbVyGS #SpinalMuscularAtrophy #SMAResearch #SMANewsToday #SMANews #SMATreatment

Knowing the “why” behind your treatment selections is crucial — because you’re more likely to stick to your plan if you understand its goals. See more: bit.ly/47ssLwt #SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

The therapies work by boosting SMN protein production, and while they are approved for the main types of SMA, certain indications exist. Explore them: bit.ly/3ZoaBKp #SMATreatment #DiseaseModifyingTherapy #SMACommunity #SMALife #LivingWithSMA

Columnist Alyssa Silva found herself in unfamiliar territory when her BiPAP machine quit before bedtime, threatening her ability to breathe. bit.ly/3TFjgED

Here is this week's most-read article featured on our #SMANewsToday website! Are you caught up? bit.ly/4goeCEK #SpinalMuscularAtrophy #SMAResearch #SMANews

Here's a recap of the news and columns we featured this week. Head to our website to read them all: bit.ly/3HSpf2D #SMANewsToday #SMANews #SMAResearch #SMAAwareness #SMACommunity

There are numerous activities and exercises SMA patients can take part in safely and consistently. Check them out here and see if they may be right for your routine: bit.ly/4d4EUct #SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

Differences in SMA newborn screening practices in the U.S. could impact referral patterns or the timing of therapeutic interventions. bit.ly/47y2Q6S

Approved DMTs for SMA aim to increase SMN protein levels, but they each work differently. See how here: bit.ly/4dc9gK7 #SMACommunity #LivingWithSMA #SMATreatment #DiseaseModifyingTherapy

“Healthy” looks a little different for every person and every rare disease patient. Here are a few tips for defining wellness on your terms: bit.ly/4d4fyeI #SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

For DeAnn Runge, the taste of independent living that college offered was all she needed to be convinced it was the lifestyle for her. There's been just one problem: finding reliable caregivers. Watch our vlogs: bit.ly/3PWapMn. #SpinalMuscularAtrophy #SMACommunity #SMA

Catch up on the #SMANewsToday Column of the Week here: bit.ly/3BdFs2n #SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

In a few months, Alyssa Silva will lose her main health insurance coverage. She’s asking the forums community for tips on navigating this worrisome territory. Offers yours: bit.ly/4goZW8B #SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

Research on secondary outcomes related to scoliosis surgery is limited. Explore one study focusing on just these outcomes — and see what findings mean for SMA patients: bit.ly/3MSYWfg #SpinalMuscularAtrophy #SMAResearch #SMANewsToday #SMANews

Children with SMA type 1 treated in infancy with Zolgensma alone showed motor and lung/bulbar muscle gains over two years of follow-up. bit.ly/3zBKe9i

See how ultrasound may help in the administration of Spinraza, especially in patients with severe spinal deformities: bit.ly/4gK5sTt #SpinalMuscularAtrophy #SMAResearch #SMANewsToday #SMANews #Spinraza

Learn more about the “widespread metabolic disruption” researchers observed and how findings could lead to possible treatment targets: bit.ly/4dfFzb9 #SpinalMuscularAtrophy #SMAResearch #SMANewsToday #SMANews #SMATreatment