#ACM nightmare cases presented by Brittney Murray, Ian Law, Sami Chaouki, Frank Zimmerman, Dominic Abrams at sads.org/get-involved/a…. Lurie Children's PACES Pediatric and Congenital EP Society Northwestern Feinberg School of Medicine #EPeeps #CardioEd. #ARVC #ARVD

Martin – also known as Fast Heart Mart – was diagnosed with Long QT Syndrome (LQTS) at the age of 17 after six years of searching for answers. Read his story at sads.org/blog-cat/marti….

Early Bird Discount Ends in One Week! Don’t miss our comprehensive, state-of-the-art conference on the management of patients with #cardiomyopathies and #channelopathies. Register at sads.org/get-involved/a…. Heart Rhythm Society @PACES_ep #CardioEd #EPeeps

Share to spread awareness! We estimate that at least 1 in 2,000 people in the United States have congenital Long QT Syndrome (#LQTS). Nearly half of those with LQTS NEVER have a symptom! For more information about LQTS, visit sads.org/sads-condition….

Share to spread awareness! #HCM (hypertrophic cardiomyopathy) is estimated to affect 1 in 500 people. HCM has many treatment options that may be considered, including surgeries, medications, and devices. More: HCMA - Hypertrophic Cardiomyopathy Association.

Katherine could tell that something was wrong with her heart – but doctors kept telling her that she was a perfectly healthy eighth grader. Read more about her story at sads.org/blog-cat/kathe….

Research alert for our #ARVC families! Lexeo recently began enrolling participants for a gene therapy trial for PKP2 arrhythmogenic cardiomyopathy. They are currently enrolling for additional participants. Learn more at sads.org/research/get-i….

Share to spread awareness! It’s estimated that 1 to 3 in 1,000 people may have Wolff-Parkinson White Syndrome (WPW). For more information about WPW, visit sads.org/sads-condition….

Share to spread awareness! #ARVC (also known as ACM or ARVD) is caused by a defect in the tiny proteins that hold your heart muscle cells together. For more information: sads.org/sads-condition…. We are grateful to Tenaya Therapeutics for their sponsorship of ARVC Awareness Week.

What's better than Friday the 13th? A SADS Live scheduled with Dr. Ackerman! Click the link below or head to our Facebook page to watch it. youtube.com/live/TxyIMGh-v… 🏷️ #SADS #SCA #SuddenCardiacArrestAwareness

Don't forget to #CallPushShock, #EPeeps! Our friends Brynn Dechert, Aarti Dalal, Nick Von Bergen & PACES Pediatric and Congenital EP Society participating in a community #CPR class at at #HRX2024. Heart Rhythm Society

Complex #SingleGene situations presented by Prince Kannankeril, Cindy James, Elijah Behr, Alfred George Jr., Andrew Krahn, Cheyenne Beach at sads.org/get-involved/a…. Lurie Children's PACES Pediatric and Congenital EP Society Northwestern Feinberg School of Medicine #EPeeps #CardioEd

For more information about #ARVC, visit sads.org/sads-condition…. What’s your experience living with ARVC? Let us know! ⬇️ We are grateful to Tenaya Therapeutics for their sponsorship of ARVC Awareness Week.

Have you ever wanted to host a community event for SADS? This small town here in Utah did just that! The idea of having a SADS awareness event might seem daunting, but SADS is more than willing to help you and so is your community. 🏷️ #SADSAwareness #SADSEvents

In this webinar, physicians and healthcare providers can hear from an internationally-recognized Dr. Dan M Roden MD. Learn more and register at sads.org/resources/heal…. #ePeeps #CardioEd

Welcome to SADS peer-to-peer movement, The Heart of it All. It’s a peer-to-peer campaign meaning you can appeal to your community by creating an online fundraiser generating awareness about their heart condition. classy.org/campaign/heart… PLEASE JOIN US!

"Although ARVC is a difficult diagnosis, it made me take stock: what is really important to me? What gives my life quality? The answers continue to pleasantly surprise me." Read more about Erin's story at sads.org/blog-cat/erins….

One hour until our SADS Live Q & A Session and Dr Ackerman! Click the link below or head to our Facebook page to watch it. youtube.com/live/TxyIMGh-v… 🏷️ #SADS #SCA #SuddenCardiacArrestAwareness

Early bird rates END on September 13, so make sure to register before Friday for a discount! View the full kids & teens agenda, and register to attend, at sads.org/get-involved/a….

Have you ever wondered if it is safe to take GLP1's or Semaglutide for weight loss if you have a SADS Condition? If this is a question that catches your interest make sure to watch the recording on our Youtube Channel! youtube.com/live/TxyIMGh-v… 🏷️ #SADSlive