Join us today for SADS live! youtube.com/watch?v=LauKDY…

Join SADS & HeartUniversity.org for State of Genetic Testing for SCD-Predisposing Channelopathies and Cardiomyopathies with Michael J. Ackerman MD,PhD, Mayo Clinic & Peter Aziz, MD, Cleveland Clinic. Register: sads.org/resources/heal….

Join us this Friday with Michael J. Ackerman MD,PhD and special guest Laura Otto, MS, CGC as we dive into the important topic of pregnancy with a SADS Condition and the benefits of pre-implantation genetic testing!

This is a great foundation that works tirelessly for patients with heat conditions of SADS (Sudden Arrythmia Death Syndromes).

This organization is very dear to me as both my sons have Long QT1 syndrome that they take medicine for and exertion/exercise can trigger their…

Help us help YOU- by donating so we can host our meeting to inform the FDA. This is a unique opportunity to participate remotely June 11th as we show why we need targeted treatments for Long QT and CPVT.

Click HERE: sads.org/donate/support… to make a donation of any amount.

We're a proud sponsor of SADS Foundation Gene Therapy in PKP2-ACM Clinical Trials webinar, a patient event shedding light on genetic disorders. #ARVC

Register here: bit.ly/3JhXgu2

YOUR story can help advance new treatments for #LongQTSyndrome and #CPVT .

Even if you can only attend part of the day, YOU are the key to this meeting’s success. Register and share your story at sads.org/research/get-i….

Nicole was diagnosed with #LQTS at birth. Today, she’s in her last semester of medical school – and hopes to help others with rare diseases and disabilities access the support and expert medical care she received as a child with a SADS condition.

More: sads.org/blog-cat/nicol….

Join Will Heise MD of CredibleMeds who will address your questions about specific supplements and interactions, if any, while living with #LQTS .

Register at sads.org/what-now/livin….

CONGRATS 🎊🍾🎉🎈to ⁦Saranda Nimani⁩ on WINNING 🥇 the #EHRA2024 Young Investigator Award for her work using our ⁦Mayo Clinic⁩ ⁦Mayo ClinicCV⁩ KCNH2 #gene #therapy to treat Prof Odening’s ⁦Odening Lab⁩ rabbits w/ Short QT Syndrome 1. STRONG WORK 🤗👍💪

📆 Apr 25, 4:30 PM PT: Join Dr. Will Heise's webinar 'Drugs to Avoid with LQTS' on supplements, herbs, & more for LQTS patients. Q&A included. Info & registration 👉 sads.org/what-now/livin…

#LongQT #SADSFoundation #LQTS

This makes perfect sense! This will be so helpful for healthcare professionals! Thanks Lady Glaucomflecken (she/her)! SADS Foundation

During our upcoming webinar, you'll have an opportunity to ask about PKP2- #ACM (or #ARVC ) clinical trials. PKP2 is a particular genetic variant of ACM, for which three companies are currently enrolling for clinical trials.

Register & learn more at sads.org/what-now/livin….

Taking simple actions towards co-survivors can foster deep human connections and compassionate care that reduces moral injury and burnout.

- Make eye contact.
- Ask us how we are doing.
- Give us written information.

Children's Heartbeat - Session 40 youtu.be/LimuIAXURcc?si… via YouTube

#DidYouKnow that you can test your baby right after birth for SADS conditions? Common methods include cord blood genetic testing, a saliva sample, or a blood draw.

Learn more about SADS and pregnancy at sads.org/resources/preg….

#DidYouKnow that it's safe to nurse while taking beta blockers? Few adverse effects have been reported in nursing infants!

Learn more about pregnancy & SADS conditions at sads.org/resources/preg….

Learn the latest guidelines on #CPVT and pregnancy from Dr. Danna Spears, University of Toronto.

Register to watch this entire presentation on genetic arrhythmia conditions and pregnancy at sads.org/what-now/livin….

SADS is giving you a once in a lifetime opportunity to directly tell the FDA the need for advancing treatments for CPVT, LQTS, & pave the way for other SADS treatments.

Learn more & support this meeting: sads.org/donate/support….

Learn the latest guidelines on #Brugada Syndrome and pregnancy from Dr. Danna Spears, University of Toronto.

Register to watch this entire presentation on genetic arrhythmia conditions and pregnancy at sads.org/what-now/livin….