Loved being able to participate in the Uplifting Athletes #younginvestigator draft last night and celebrate CDCN researcher Melanie Mumau! Great work, Rob Long! upliftingathletes.org/young-investig… #wetacklerare

Rob Long has done an incredible job growing this organization! #castlemanflex #warriorflex

Stuart Siedman, Global Head of Patient Advocacy, Rare Diseases, joined Rob Long, @jrandallallen and Sarah Thomas in a panel discussion to share their personal stories with the student athletes in attendance, putting an important spotlight on the impact of rare diseases.

Today is #RareDiseaseDay! I shared some of my rare journey with the incredible Dr. Moyez Jiwa. I hope you’ll check it out! #WeTackleRare

Our next panel of experts discuss incentivizing #raredisease research and development! #RareDiseaseDay #parare

Punter Nolan Cooney, who battled and overcame cancer when he was in high school, paid a visit to Phoenix Children's Hospital yesterday to provide some smiles 😄 azcardinals.com/news/cancer-vi…

With that home run in the 5th, Michael A. Taylor makes another donation to Uplifting Athletes to help support rare diseases. Learn more and join the pledge! pledgeit.org/michael-a-tayl…

The 10,000 Mile Challenge is back! Uplifting Athletes Executive Director Rob Long (@roblong47) has pledged to run 30 miles between August 10-19 in support of the rare disease community. Sign-up as an individual or team today: bit.ly/3Na0vXf #10kRareMiles

Incredible speech, Jordan Pierre 🙌🏾 Keep going 🫡

Headed to see the Seattle Mariners smoke the Minnesota Twins with our friends from Uplifting Athletes 🙏 Thanks Rob Long team! #RareDisease #CTNNB1

Uplifting Athletes A perfect night for baseball ⚾ Seattle Mariners Minnesota Twins #RareDisease #WeTackleRare

Thank you for all you do to bring about rare disease awareness, rare disease research, and uplifting so many individuals impacted by rare diseases!

Just a kid from Downingtown, PA. Will Howard

Rob Long's story is remarkable. He has survived for 13 years following a diagnosis of a severe type of brain cancer, all thanks repurposed drug. Yet it took over a decade for it to be officially recognized and included in the treatment protocols for his specific cancer. This

Good morning from Miami. Boarding my flight home. Meanwhile, Michael A. Taylor won a World Series in Washington and heads back there for the first time this week. The Pirates’ new center fielder fascinates me. Really interesting guy: post-gazette.com/sports/jason-m…

Day 1 of the 4th annual #ShelicesAngels Business Academy was a success 🙏🏾 Thank you to all the business owners/leaders who dropped by to impart some knowledge on the kids about what it means to persevere and run a business Looking forward to a great day 2 🤍

New feature from World Sleep Society: bit.ly/3LoTkZe "12 years ago, when Rob Long was playing football, people were beginning to understand the importance of sleep for recovery. Rob soon found that sleep is important for recovery in all aspects of health." #RareDisease

Imagine you’re getting ready to be drafted into the NFL, when all of a sudden you get diagnosed with a rare form of brain cancer. Even worse, there are no approved treatments in the 5 year survival rate is under 15%. Your only hope is that your doctor can find a treatment

Go Birds

With support of Uplifting Athletes advocate and Bears OL Ryan Bates, #DaBears hosted the Boychuck family today. Their toddler, has the rare genetic condition MED13L, affecting his motor skills. Uplifting Athletes is proud to help raise awareness for rare diseases alongside the