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Join our community as members of Retina Australia or renew your membership, to support people affected by #inheritedretinaldisease. Two new benefits to members with our Membership Partners Optometrist Warehouse and Chemist Warehouse and Good Citizens Eyewear tr.ee/TTv33oe8bE

Retina Australia was delighted to engage with government, industry, health bodies, academia & advocacy groups at #PharmAus24 focusing on "Accelerating patient access to new medicines". Thanks to supporters of our awareness activities. #InheritedRetinalDisease

The Geographic Atrophy: We Can't Wait and See report was launched last week, and highlights the urgent need to address the impact of geographic atrophy (GA), one of the leading causes of loss of vision and blindness. Read more here: tr.ee/c6uawQNowE

Thank you Vision 2020 Australia for inviting Retina Australia to its eye screening event at the Parliament of NSW. World Retina Day is this Sunday, 29th September. @richiewilliamson and Geoff Provest tried our DITD puzzle challenge. More info: tr.ee/dECtHAvSCB #worldretinaday

We are thrilled to share the Top 10 Research Priorities for Inherited Retinal Disease, from the perspective of individuals with lived experience, families, carers, and health professionals. Full report here: tr.ee/FXNiCxItbl #inheritedretinaldisease #retinaaustralia

Great to be a part of Vision 2020 Australia's Parliamentary Friends Group for Eye Health and Vision Care Cocktail Function and Exhibition in Canberra - another terrific opportunity to raise awareness of IRDs. #inheritedretinaldisease #worldsightday #loveyoureyes #retinaaustralia

Spreading the word about inherited retinal disease at the randy alvar 2024 Congress in Adelaide. Great to connect & hear about research into IRDs and the increasing understanding and importance of genetics in diagnosis & treatment #ranzco2024 #inheritedretinaldisease #retinaaustralia

Representing the Steering Committee of The Inherited Retinal Disease Priority Setting Partnership, Retina Australia CEO Julia Hall and A/Prof Lauren Ayton from the University of Melbourne & CERA, at the randy alvar Congress 2024. #inheritedretinaldisease #ranzco2024 #retinaaustralia

We are delighted to announce the first of two 2025 Research Grant recipients, Professor Robyn Jamieson. Robyn's project aims to develop gene replacement therapies for autosomal recessive (AR) IRDs where no treatments currently exist. More info here: tr.ee/QziF-0ICmu

Retina Australia is delighted to announce the 2nd recipient of a $60,000 Research Grant for 2025 is Dr Jiang-Hui (Sloan) Wang from Centre for Eye Research Australia, with his study advancing Usher Syndrome type 1B gene therapy. tr.ee/QziF-0ICmu #retinaaustralia #inheritedretinaldisease

Support life-changing research for people living with inherited retinal diseases by making a donation to our 2024 Christmas Appeal. Together, we CAN make a difference! Donate today at: tr.ee/Fwv6ibXrjz #retinaaustralia #inheritedretinaldisease #genetherapy #ChristmasAppeal

The Summer 2024/25 edition of our bi-annual newsletter Retina Reporter is OUT NOW! Download it here: tr.ee/_a3nIIvEJf or SUBSCRIBE here: tr.ee/k6OeQqQORI #inheritedretinaldisease #retinaaustralia #retinitispigmentosa #geographicatrophy #generesearch #eyeresearch

Today is World Geographic Atrophy (GA) Day. Join the movement to raise awareness for this progressive form of age-related macular degeneration (AMD). Find out more at: tr.ee/SumJe8IJic #retinaaustralia #geographicatrophy #ga #worldgaday

February is #RetinitisPigmentosa (RP) Awareness Month! Help raise awareness & funds for RP research: 1. Register for a Do It in The Dark event 2. Share your story & raise awareness 3. Donate to research More info: retinaaustralia.com.au/help-us/retini… #DoItInTheDark #RetinaAustralia

#RetinitisPigmentosa (#RP) is a genetic eye condition that causes progressive #visionloss. It starts with night blindness, followed by tunnel vision, and eventually can affect central vision leading to blindness. Let’s raise awareness! retinaaustralia.com.au/help-us/retini… #RPawareness

It’s not too late to raise awareness for #RetinitisPigmentosa this February! Host a Do It in The Dark (DITD) event with #RetinaAustralia. Wear glasses simulating tunnel vision & raise funds for medical research. More info: lnkd.in/e3mEwWxb#Retin…

28th February is Rare Disease Day. Retina International is hosting a webinar on 21st Feb to discuss the impact on mental health. Register at [email protected]. #rarediseaseday2025 #rarediseaseday #irds #inheritedretinaldiseases #retinaaustralia

BIONIC EYE TRIAL RESULTS SHOW SUBSTANTIAL VISION IMPROVEMENTS OVER TWO AND A HALF YEARS Blind participants with retinitis pigmentosa able to locate doorways, avoid obstacles SEGMENT Filmed in Melbourne and Sydney | February 2025 Released on Retinitis Pigmentosa Awareness Month

Meet Peter Vance, singer-songwriter living with #RetinitisPigmentosa. For #RPAwarenessMonth, he's been raising awareness through #RetinaAustralia’s Do It in The Dark campaign, spreading hope for a brighter future.! #RPawareness #RP #VisionLoss🎶✨youtube.com/watch?v=qB8tFO…

Today is the last day of #RetinitisPigmentosaAwarenessMonth and also #RareDiseaseDay. Many people live with undiagnosed, misdiagnosed or misunderstood conditions. Today we recognise these experiences & advocate for improved healthcare, support & policies for the community.