Introducing Scientific Committee Member, Dr Helen Rare Diseases South Africa and Extraordinary Associate Professor at the Centre for Metabolomics at NWU. To find out more about Helen and her fellow Committee Members visit rare-x.co.za #RareX2024 #RareX #rarediseases #rare

5 DAYS TO GO Share your knowledge and experience with a global audience and inspire discussions in our community. Abstract submissions close 18 October 2023. Submit yours now at rare-x.co.za #RareX2024 #RareX #rarediseases #rare #RareXconference #access

FINAL CALL FOR ABSTRACTS – EXTENSION OF DEADLINE Abstract submission for Rare X 24 has been extended until the 27th of October 23. Don’t miss out on this incredible opportunity. Please contact [email protected] if you have any questions about the submission process.

WHY YOU SHOULD ATTEND RARE-X 2024 There are plenty of reasons to attend the Rare-X Conference 2024. Here are just a few: Build a network Learn Hone your skills Educate others So don’t miss out on our Early Bird specials; attend the event at a reduced rate!

5 days remain for Early Bird Registration! Time is ticking, and we don't want you to miss out on the fantastic opportunities at Rare-X 2024, taking place between 14-17 Feb 2024 in Johannesburg. Register before the 20th Nov at rare-x.co.za

Meet Alexandra Heumber Perry Date: Wednesday 14 Feb Time: 10h40-11h00 Session : Global perspectives on policies relating to access Topic: Universal Health Coverage for Rare Diseases

Meet Alexandra Heumber Perry Date: Wednesday 14 Feb Time: 10h40-11h00 Session : Global perspectives on policies relating to access Topic: Universal Health Coverage for Rare Diseases

Meet Prof. Michèle Ramsay Date : Wednesday 14 February Time: 13h30-13h42 Topic: An overview of data & research issues in rare diseases Session: Breakaway – Data & Research

Meet Alexandra Heumber Perry Date: Wednesday 14 Feb Time: 10h40-11h00 Session : Global perspectives on policies relating to access Topic: Universal Health Coverage for Rare Diseases

Meet Dr Elne Conradie Wednesday 14 February Time: 13h54-14h06 Topic: Recruitment strategies for a non-hospital based academic biobank in South Africa Session: Breakaway – Data & Research

Meet Miracle May Wednesday 14 February Time: 14h06-14h18 Topic: Patient perspective (Interview format) Session: Breakaway – Community Engagement #RDSA #Rare-x #Rarediseases

Meet Dr Mohamedraza Ebrahim Date: Friday 16 February Time: 13h30 – 13h45 Topic: The role of patient organisation’s in gaining access for patients in Africa Session: Breakaway – Policy Head over to rare-x.co.za to see our full programme of speakers.

Meet Dr Niri Bhimsan Date: Thursday 15 February Time: 11h00 - 11h20 Topic: Private sector view Session: Health Technology Assessments Head over to www-rare-x.co.za to view the full programme of speakers and see all things Rare-X. #RDSA #Rare-x #Rarediseases

Meet Dr Laurenne James Date: Thursday 15 February Time: 11h20 - 11h40 Topic: ISPOR & improving HTAs in South Africa – the role of patients Session: Health Technology Assessments Visit Rare-x.co.za for our full programme of speakers and all things Rare-x.

🚨 LAST CALL: REGISTRATION CLOSING SOON FOR RARE X 2024! 🚨 Don’t miss on the incredible opportunity to be part of the highly-anticipated Rare X Conference in Johannesburg between the 14th and 17th of February. Head over to rare-x.co.za to register now!

🚨 LAST CALL: REGISTRATION CLOSING SOON FOR RARE X 2024! 🚨 Don’t miss on the incredible opportunity to be part of the highly-anticipated Rare X Conference in Johannesburg between the 14th and 17th of February. Head over to rare-x.co.za to register now!

Just three weeks to go to the highly anticipate Rare-X conference. Don't hang about, register now to join the conversation rare-x.co.za #Rare-X #RDSA #rarediseases #rarediseaseawareness

PANEL DISCUSSION – CLINICAL TRIALS Join our panel discussion on the 14th of February at the Rare-X conference. The almost two-hour-long discussion goes into depth on the subject of clinical trials Visit rare-x.co.za to join the conversation #Rare-X #rarediseases

CALLING ALL SUPPORT GROUPS Rare-X is an excellent opportunity to bring awareness about your support group to the rare disease community. Please visit rare-x.co.za to register your support group. #Rare-x #rarediseasesSA #rarediseases

THANK YOU TO AMICUS FOR COMING ON BOARD AS A SPONSOR AT THE RARE-X CONFERENCE 2024 Amicus Therapeutics is a global biotechnology company at the forefront of advancing therapies for rare diseases. Join the conversation today - rare-x.co.za #Rare-X #RarediseaseSA