RareDementiaSupport
@raredementia
We run specialist support group services for individuals living with, or affected by a rare dementia diagnosis including: FAD, FTD, fFTD, PCA, PPA, LBD & YOAD
ID: 3543584717
http://www.raredementiasupport.org 04-09-2015 10:05:41
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We are proud to fund RareDementiaSupport and are raising money to create the #RareDementiaSupportCentre - a world first dedicated to providing guidance, support and education - a model of how best to support those living with a rare dementia. Learn more: nationalbrainappeal.org/what-we-do/cur…
Thank you Emma Heming Willis for your bravery in sharing your story in our panel, and our wonderful panelists Andrea Slachevsky Chonchol & Dr. Ratnavalli. Special thanks to my partner-in-crime Tracey Wardill for co-chairing this inportant panel with me. #endFTD #isftd #Awareness
This #WorldAlzheimersDay, we're excited to share RareDementiaSupport's translated resources, welcomed by MeeraSyal💙, whose late parents had dementia. Info sheets & films now available in 16 languages, making information on these conditions more accessible. raredementiasupport.org/translated-res…