BhamRareSoc
@rarebham
A student society dedicated to raising rare disease awareness and improving the lives of rare disease patients.
ID: 939471528965607425
09-12-2017 12:27:21
47 Tweet
104 Followers
143 Following
Spontaneous Coronary Artery Dissection: "not your typical heart attack" - Dr Adlam. Usually affects young women without usual RFs. Find out more Beat SCAD UK are holding a conference on 9th June @qehbham #chestpain #SCAD #MedEd #Doctors #MedicalStudent beatscad.org.uk/conference-2018
Join us as we celebrate the 1st ever International #ANEawarenessday. Find out how you can help to raise awareness of #AcuteNecrotizingEncephalopathy aneinternational.org/ane/awareness-… Dr Simon Stones BhamRareSoc Cambridge Rare Disease Network (CamRARE) Rare Diseases India RARE Northeastern
Take That Gary Barlow Howard Donald Jason Orange Mark Owen @Robbiewilliams My mum & whole world Eileen has been the biggest Take That fan for the past 30 years & has been every one of your tours (some more than once!) Sadly... #comeoneileen #comeontakethat #itonlytakesaminute
Utter devastation of the role the UK was playing in #ERNs. From leading 6/24 to not participating at all. There is so much more to #Brexit than meets the eye- here a direct hit on health of people with #RareDisease. Sarah Wollaston @NHSvBrexit
Congratulations Michael Farquhar who is the RCPCH_and_Us Voice Champion of the year 2019, chosen by young people for his work on the NHS Rainbow Badge and working with CB Youth Voice on the Rainbow Youth Supporters pack- rcpch.ac.uk/rainbow-youth-… Congrats Mike! #RCPCH19 #Paedsrocks
In the event of a “no deal” Brexit some of the UK’s most vulnerable, especially children with rare diseases, may lose access to the best medicine available, say @StuartElborn Mark L Flear and @DrDamianDowney blogs.bmj.com/bmj/2019/07/19…
With less than 2 weeks to go to the event, we hope you will join us some incredible talks! A massive thank you to all those who have already signed up! @S4RareDiseases Midland Faculty RCGP RCPCH Larissa Kerecuk Bham Children's Hosp 💙 Rare Disease UK
With less than 5 days until our 01/03/2018 conference, last minute sign-ups are still welcome! Celebrate rare disease week by a great day of stellar talks from speakers from the UK and beyond! #RareDx2018 @S4RareDiseases Bham Children's Hosp 💙 Midland Faculty RCGP Rare Disease UK
Celebrate #RareDiseaseDay by signing up to a day of rare awareness tomorrow at Bham Children's Hosp 💙! Last minute sign-ups still open! #RareDx2018 #RareAware
Do you know someone with a disease so rare that it remains #undiagnosed? 6000 children are born every year with a Syndrome Without a Name, more info here - undiagnosed.org.uk #RareDiseaseDay2018 This Morning Victoria Derbyshire *GG
.David Cameron today is #RareDiseaseDay - join us in raising awareness that collectively rare diseases are not that rare. #1in17 people will be affected by one at some point in their lives.
The Star Appeal video about the new rare diseases centre for children always inspires me. Watch it now and #DareToThinkRare Bham Children's Hosp 💙 BhamRareSoc youtu.be/99EpYxYc-7w
Mariam al-Attar, winner of the Findacure has become Beacon, follow us @RareBeacon student voice essay competition, raising awareness of the difficulty of procuring rare disease treatment #rareaware #TRAPS #RareDx2018