Rachel Horne (@rachelhorne19) 's Twitter Profile
Rachel Horne

@rachelhorne19

Journalist with MS, Honorary Research Fellow @QMUL, set up rachelhorneprize.com for Women's Research in MS, Co-Chair @DeNPRU-QM’s patient/ public engagement.

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calendar_today19-07-2020 13:56:21

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Rachel Horne (@rachelhorne19) 's Twitter Profile Photo

A great summing up by S Gnanapavan in the MS-Blog of a review by neuro Patricia Coyle on the impact of sex on MS therapies. MS Blog: multiple-sclerosis-research.org/2025/06/your-g… Review:neurotherapeuticsjournal.org/article/S1878-… Thought this was interesting...

A great summing up by <a href="/neurognanapavan/">S Gnanapavan</a> in the MS-Blog of a review by neuro Patricia Coyle on the impact of sex on MS therapies.
MS Blog: multiple-sclerosis-research.org/2025/06/your-g…
Review:neurotherapeuticsjournal.org/article/S1878-… 
Thought this was interesting...
Rachel Horne (@rachelhorne19) 's Twitter Profile Photo

#ECTRIMS2025! Overcame my procrastination & finally booked a hotel in Barcelona for this year's meeting. I know it's exhausting. I know u barely see the sun for 3 days - but it's a wonderful chance to hear the best minds in the world talk about MS. Anyone else going?

#ECTRIMS2025! 
Overcame my procrastination &amp; finally booked a hotel in Barcelona for this year's meeting.
I know it's exhausting. I know u barely see the sun for 3 days - but it's a wonderful chance to hear the best minds in the world talk about MS.
Anyone else going?
Rachel Horne (@rachelhorne19) 's Twitter Profile Photo

Absolute joy of a show: Design & Disability V&A Museum. A superb exhibition focusing on how disabled ppl have taken the world around them & adapted it for their needs (ie self-tightening shoes). Until 15 Feb Free ticket - disabled visitors/companion vam.ac.uk/exhibitions/de…

Absolute joy of a show: Design &amp; Disability <a href="/V_and_A/">V&A</a> Museum.
A superb exhibition focusing on how disabled ppl have taken the world around them &amp; adapted it for their needs (ie self-tightening shoes). 
Until 15 Feb
Free ticket - disabled visitors/companion
vam.ac.uk/exhibitions/de…
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Ahead of World Brain Day on July 22nd... What is brain health? And for those of us with MS, what can we do to keep it healthy? Listen to Barry Singer MD 🧠's new MS Living Well Podcast with Lisa Doggett & Dr Miravalle Rush University System for Health. bit.ly/3FyR2b0🍎apple.co/4jHbiow

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At 21, Amy Thomson was told she was far too young to young to have MS - despite tell-tale symptoms. Post-diagnosis, she set up MS Together to provide social/mental support for those 18-35 yrs with MS. Insta: @mstogetherofficial Her story... bbc.co.uk/news/articles/…

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My 10th #ocrevus infusion today Hoping in the few yrs, I will be offered a BTK inhibitor like #tolebrutinib - when/if licensed. For Prof Gavin Giovannoni the "drug results offer real hope for people with smouldering MS." An MS Society UK BTK explainer: mssociety.org.uk/research/lates…

My 10th #ocrevus infusion today
Hoping in the few yrs, I will be offered a BTK inhibitor like #tolebrutinib - when/if licensed.
For Prof Gavin Giovannoni the "drug results offer real hope for people with smouldering MS."
An <a href="/mssocietyuk/">MS Society UK</a>  BTK explainer:
mssociety.org.uk/research/lates…
Rachel Horne (@rachelhorne19) 's Twitter Profile Photo

Post Ocrevus infusion... Up at 5am this morning & raided the fridge in hopes of quelling hunger pains. Wish I could tell u I made sensible eating choices... Nah - ice cream, toast slathered with butter and jam & a bag of crisps. Blame steroids.

Post Ocrevus infusion...
Up at 5am this morning &amp; raided the fridge in hopes of quelling hunger pains.
Wish I could tell u I made sensible eating choices...
Nah - ice cream, toast slathered with butter and jam &amp; a bag of crisps.
Blame steroids.
Rachel Horne (@rachelhorne19) 's Twitter Profile Photo

Having a close friend can help make ur MS easier to manage, a US study found. Those with a confidant reported less depression, fatigue, pain, sleep problems & better general health vs those about (19%) who didn't have one, said Lauren Strober Kessler Foundation. healthcentral.com/news/multiple-…

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A student has created a new comic to highlight MS's hidden's symptoms. University of Aberdeen PhD student Claire Robertson hopes it can make the info more accessible/engaging. Her father has MS. Interview/comic on MSTrust: mstrust.org.uk/news/stories/m… BBC story bbc.co.uk/news/articles/…

A student has created a new comic to highlight MS's hidden's symptoms.
<a href="/aberdeenuni/">University of Aberdeen</a> PhD student Claire Robertson hopes it can make the info more accessible/engaging.
Her father has MS.
Interview/comic on <a href="/MSTrust/">MSTrust</a>: 
mstrust.org.uk/news/stories/m…
<a href="/BBC/">BBC</a> story
bbc.co.uk/news/articles/…
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A shoplifter with MS on many medications had 'no memory' of taking groceries, a court heard. The woman had money in her purse & couldn't explain her actions, which was out of character. Judge asked for medical report. Can see how this might happen... sundayworld.com/crime/courts/s…

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11th hour repreive... A British couple who feared being deported from Australia after one of them was diagnosed with MS have been granted permanent residency. “We are proud to announce we are Australia’s newest permanent residents!” they posted. Congratulations!

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At a recent MS meeting with delegates from Central and South America, Prof Gavin Giovannoni was asked what would be game-changers in how MS will be managed globally in the next 10-20 years. His list:

At a recent MS meeting with delegates from Central and South America, Prof Gavin Giovannoni was asked what 
would be game-changers in how MS will be managed globally in the next 10-20 years.
His list:
Rachel Horne (@rachelhorne19) 's Twitter Profile Photo

Over half of ppl with MS are 50+, yet trials, treatment guidelines & diagnostic tools have not kept pace, say top neuros in "Call to Action" in Nat Rev Neurology. Result: diagnosis blind spots, under-treatment & missed opportunities. Lead author:AnnekeVdWalt bit.ly/3IIZRQM

Over half of ppl with MS are 50+, yet trials, treatment guidelines &amp; diagnostic tools have not kept pace, say top neuros in "Call to Action" in <a href="/NatRevNeurol/">Nat Rev Neurology</a>.
Result: diagnosis blind spots, under-treatment &amp; missed opportunities.
Lead author:<a href="/anneke_vdw/">AnnekeVdWalt</a>
 bit.ly/3IIZRQM
Rachel Horne (@rachelhorne19) 's Twitter Profile Photo

MSexism Women with MS are much less likely to receive a disease modifying therapy vs men, acc to a study in Neurology Journal. Even when DMTs were shown to be safe during pregnancy, said study author Prof Sandra Vukusic. "This loss of chance is not acceptable anymore," she said.

Rachel Horne (@rachelhorne19) 's Twitter Profile Photo

Curious.. Do you feel more vulnerable/at a greater risk of crime because of ur MS - (may avoid strangers/or night activities)? If so, is this because u use an assistive device - wheelchair/stick which indicates disability? Saw this 2024 study... pmc.ncbi.nlm.nih.gov/articles/PMC11…

Curious..
Do you feel more vulnerable/at a greater risk of crime because of ur MS - (may avoid strangers/or night activities)?
If so, is this because u use an assistive device - wheelchair/stick which indicates disability?
Saw this 2024 study...
pmc.ncbi.nlm.nih.gov/articles/PMC11…
Rachel Horne (@rachelhorne19) 's Twitter Profile Photo

A fab explainer of 'therapeutic lag' by Aaron Boster MD OR why u shld take the most effective MS drug u can tolerate NOW to 'keep u in shape 20 yrs down the line'. "The goal is to stave off future brain damage, attacks & neurological disability," he says. youtube.com/watch?v=jBKscs…

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Love this How burlesque dancing helped one woman with MS move from despair to joy. "I was diagnosed in my early 20s & I went through quite a period of darkness & hatred towards the world," says Katie. "Burlesque has made me forget I have MS." ms-society.ie/ms-and-me/find… MS Ireland

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Researchers in Sweden identify 18 new potential MS drug targets. Study could aid development of new drugs, repurposing of existing ones, says Yuan Jiang, from Karolinska Institute. Multiple Sclerosis News Today: multiplesclerosisnewstoday.com/news-posts/202… And Dr. Brandon Beaber gt explainer vid:

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Women with MS are at higher risk of postpartum depression raising the importance of regular screening says a study in NeurologyLive®. Study lead Dr Riley Bove called for screening from late pregnancy - 12 months postpartum to aid detection/intervention. neurologylive.com/view/higher-le…

Women with MS are at higher risk of postpartum depression raising the importance of regular screening  says a study in <a href="/neurology_live/">NeurologyLive®</a>. 
Study lead Dr Riley Bove called for screening from late pregnancy - 12 months postpartum to aid detection/intervention.
neurologylive.com/view/higher-le…