1/2 I had to teach #history one year and decided to go off script because the #textbook was dead and sterile, and the #curriculum was totally sanitized - kind of like many parents and politicians want today. #Juneteenth #Diversity #TrustTeachers

I took 60 seconds out of my day to help ALS patients access the promising therapies they need. You can be an advocate too! Join me by going to the link below and sending your representative and senators a message. iamals.org/action/promisi…

"Intelligence is the ability to adapt to #change." - Stephen Hawking So according to Stephen Hawking, #pALS and #cALS are geniuses, and he would know! #ALS #LivingWithALS #ALSAwareness

1/3 This week is the anniversary of my rape, and I'm having severe tactile PTSD hallucinations. They are overwhelming me. Days have been manageable with distractions. Nights are filled with terror. #MentalHealth #Trauma #PTSD #MeToo

2/3 The Oxycodone I took for my nerve #pain provided relief, but it slowed me down. I was working at a manic pace to distract myself, joking on FB & w/my nurse, but now I'm right back at bar with my rapist looking at me like he's hungry. #MentalHealth #Trauma #PTSD #MeToo #ALS

3/3 Yesterday morning was the first dose of the antipsychotic that will hopefully stop the hallucinations. A 2nd dose today. 12 days left until I can increase the dose to a therapeutic level. 12 days feels like forever. #MentalHealth #Trauma #PTSD #MeToo #ALS

FAQ that don't matter: I wasn't drinking. I was wearing a t-shirt & jeans. I was w/a group of friends - that included my rapist. A woman can be naked & not "ask for it." She can be drunk. She can be alone. A woman is NEVER to blame for #rape. Make this go viral. #Trauma #MeToo

#DingDingDing

Lyrics that feel like #ALS & #PTSD: "They stab it with their steely knives, but they just can't kill the beast." "You can check out anytime you like but you can never leave." Eagles - Hotel California (Live 1977) (Official Video) [HD] youtu.be/09839DpTctU?si… via YouTube

I often think I have #ALS because I almost killed Evan in a car accident when I was 19. Evan said the car that hit his door on the passenger side sped up to cut me off. I don't know. I just saw headlights before spinning off the road. Blood & glass everywhere. My SUV was totaled.

I like this, but it's hard to imagine the man who raped and attempted to murder me as dead when he never had a day in court and roams free. But I can't defeat a #memory. I have to accept it happened and learn ways to return to the present when #PTSD drags me back to that room.

"Eternity does not start after death." - Charlotte Perkins Gilman, utopian feminist best known for her short story "The Yellow Wallpaper" (1892). #ALS #Death #Feminism #InspirationalQuotes nlm.nih.gov/exhibition/the…

> Scientists Discover a New Hormone that Can Build Strong Bones Wish they find something similar to build strong muscles, or better yet, new motor neurons #FuckALS

ucsf.edu/news/2024/07/4…

Steve Gleason accepts Arthur Ashe Courage Award... "Steve has always been interested in having a deeper conversation, going on a bigger adventure, finding ways to experience the wonders of the world." Steve Gleason - "Live Impossible" #ALS #ALSAwareness #Inspiration neworleanssaints.com/news/steve-gle…

Two words in Steve's bio hit me: "Embracing ALS." I have been fighting #ALS for 9 years. What else could I do? It's trying to kill me! But is there a different way? What does embracing ALS look like? This is not a rhetorical question! Ideas please #LivingWithALS #Inspiration

BrainStorm Gears Up for Phase IIIb NurOwn Trial Amidst ALS Malaise - BioSpace biospace.com/drug-developme…

I just parted with a nurse who has become a dear friend. She gave me a quote from a book on archetypes of wild women. I gave her this song. Linda Ronstadt - Long Long Time (Midnight Special 1973) #ALS #ALSsucks #ThisIsALS #Goodbye youtu.be/f1jkXPrMFvc?si… via YouTube

I would add Opening Door Using Walker gymnastics. I left the sport 8 years ago. However, I vividly remember falling off the balance beam too many times count. Ouch! #ALS #ThisIsALS #EndALS

"If we learned nothing else from this tragedy, it is that life is short and there is no time for hate." - Sandy Dahl, wife of flight 93 pilot Jason Dahl Never forget. success.com/13-thoughtful-…