🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

🚨Agenda Announcement! 🌟1st EpiGenRare Conference 🗓️26th March 2025 🏨Hyatt Regency, Manchester 🎟️FREE Tickets: buytickets.at/rdrukepigenrar… 📃Call for Abstracts - Follow registration link for more details Deadline: Abstract Submission - 17 Feb 2025 Rare Disease Research UK Siddharth Banka Albert Basson 🏳️‍🌈

⭐️Ring20UK supports families, individuals and professionals who are affected by or who come into contact with Ring chromosome 20 syndrome - r(20). 🚀Join our upcoming webinar and hear from Allison! 🔗Don't miss out—register today if you haven't already tinyurl.com/yy2af665

Rare Disease Research UK is making a significant impact by advancing research for rare conditions, helping to transform lives. The upcoming conferences in March will provide valuable insights &updates on their work. It’s a great opportunity to learn more and get involved! #RareDiseaseDay2025

🔬 The rare disease research ecosystem is evolving rapidly! What are the biggest challenges? Where do the greatest opportunities lie? How can we ensure meaningful progress for the community? 📢 Be part of the conversation! Register now!🔗tinyurl.com/RDRUKConf

💥Rare Disease Research Network (RDRN) is a new, inclusive, online hub facilitating patient-initiated #raredisease research, co-created by the Cambridge Rare Disease Network (CamRARE) & PLRH 🖥️Join our upcoming webinar and hear from Laura Cowley, Research Lead, Patient Led Research Hub! 🔗tinyurl.com/yy2af665

🚝How can researchers best access and use existing data to drive breakthroughs? As we build future-proof registries, what data is crucial for research, approval, and patient impact? 📢 Be part of the conversation! Register now! 🔗tinyurl.com/RDRUKConf

🔔 Last Few Spots Left! Don't Miss Out! 🔔 💥Meet our exhibitors for the day Cure DHDDS Genomics England Unique The PSP Association 🚀Don't miss your chance to engage directly with them, learn more and network! Register now! 🔗tinyurl.com/RDRUKConf

🤝How can we best partner with industry to enhance the UK’s competitiveness as a hub for #rarediseaseresearch? Challenges to address to make the UK more attractive for R&D in #raredisease? 📢 Be part of the conversation! 👉Register now! tinyurl.com/RDRUKConf

The REOLUT node is delighted to attend the Rare Disease Research UK 2nd Annual Conference at the Hyatt Regency, Manchester. Our Node Lead, Bill Newman, opened the event with a speech introducing the Manchester nodes and welcoming attendees. Looking forward to an insightful conference! #RDRUK

Today is the annual Rare Disease Research UK conference! Our #Newcastle Centre 4 #raredisease hosts the coordination hub, and we're delighted to welcome everyone to Manchester. Great talks and Panel discussions so far

Director of Research, Dr Amy Hunter, is at the #RareDiseaseResearch UK annual conference in #Manchester. She has been taking part in a panel on the opportunities and priorities for #RareDisease research in 2025 and beyond.

What a great start to the Rare Disease Research UK conference!Thank you Prof Bill Newman for introducing the MRCC & RDRUK research centres, known as “nodes”, that aim to transform Rare Disease research & improve the lives of people who are directly or indirectly affected by Rare Diseases.

Today, the OHC is at the Rare Disease Research UK 2nd Annual Conference in Manchester. Looking forward to an insightful conference, including a panel on industry partnerships and regulatory frameworks that accelerate innovation for rare disease research and treatments. #RDRUKConf #RDRUK

Excited to be at the 1st Conference on the Epigenetics of Rare Disorders EpiGenRare - Rare Disease Research UK Node Rare Disease Research UK Session 1 chaired by Prof Siddharth Banka Manchester Rare Conditions Centre We’re in for a fantastic line up! 📄 Prof Jones NCL_RareDisease Prof Albert Basson 🏳️‍🌈 University of Exeter Prof Hans van Bokhoven Radboudumc

🏠How to effectively involve patient communities in creating meaningful resources? 👉Join our webinar tomorrow and find out more! 🖥️Register now if you haven't already! tinyurl.com/yy2af665

🎉Thrilled to celebrate the winners of the inaugural ECR Award in #PPIE! 🏆 Huge congratulations to Dr Polly Livermore, Nate Bourns & Kaya Bourns from the IMPACT study Great Ormond Street Hospital for Children tinyurl.com/27c57938 ⭐️Big thanks to Jillian Hastings Ward, Amy Hunter & the judging panel!

🎉A huge thank you to everyone who joined our #RDRUK Annual Conference last week! 🌟A special thanks to our speakers and exhibitors & to our host nodes EpiGenRare - Rare Disease Research UK REOLUT - Rare Disease Research UK ELSI - Rare Disease Research UK 🤝We look forward to continued collaboration in advancing rare disease research!

Hear from Victoria Hedley, Rare Disease Policy Manager at Newcastle University, on the importance of industry involvement and overcoming barriers in PPPs. April 17th, 9:30 am BST. Register: bit.ly/Havas-PPP-Webi… #RareDiseasePolicy Havas London Havas Health & You

🚀The #ECR award in #PPIE was launched to celebrate and showcase how emerging researchers are embedding meaningful #PPIE in their work. 🌟Read their stories and see how they are leading the way in building partnerships that matter tinyurl.com/rppie

📢 We're now on Bluesky! Follow us to stay connected and be the first to hear our latest updates, insights, and news. tinyurl.com/rdrukhub