If you are in North Wales tomorrow make sure to attend SRUK | Scleroderma & Raynaud's UK first support group meeting in the region!

While 80% of rare diseases are genetic and mostly affect children, RAIRDs lack a clear genetic cause and typically begin in adulthood #RAIRDaware

Reminder: Applications for our Autumn 2024 research funding round must be received by LUPUS UK before 5pm on Friday 30th August. Please email [email protected] for more information, including application forms and conditions for grants. #Lupus #LupusResearch #SLE

🩺 “An excellent day. Very thought-provoking and interactive course.” Join us in Cambridge for a hands-on Rheumatology Nurses course based on the RCN competency framework. Topics from Vasculitis to Nurse job planning. Limited spots—book now! 📚 rheumatology.org.uk/events-learnin…

Delays to diagnosis and inadequate care can significantly reduce life expectancy and quality of life for RAIRD patients. There is a need for timely and effective treatment. #RAIRDs #RAIRDaware #TimelyCare

Researchers from School of Medicine & the ADAPT Centre School of Computer Science and Statistics, TCD Trinity College Dublin have made a significant breakthrough in #Vasculitis research, in collaboration with researchers Lund University. Learn about their findings> adaptcentre.ie/news-and-event…

We are excited to announce we will be piloting our listening space in a group format, specifically for men living with #lupus, together with our charity partner, LUPUSUK 💙. Find out more & apply here: wrenproject.org/news/the-wren-… #autoimmune #lupus #lupussupport

Help LUPUSUK 💙 continue their extraordinary work by nominating them today 👇#MovementForGoodAwards

People with RAIRDs are often overlooked in health policy and investment. It is key that NHS services don’t lose sight of people living with rare conditions. #RAIRDs #RAIRDaware #HealthcarePolicy

UKIVas has opened registration for their educational course aimed at trainees, consultants and allied health professionals interested in #vasculitis 👇

Help SRUK | Scleroderma & Raynaud's UK to find out how their #HealthInformation helps people manage their health 👇

This morning RAIRDA Co-Chair Sue Farrington met with Jim Shannon MP to discuss how we can drive improvements in care and treatment for people living with rare autoimmune rheumatic diseases. Thank you Jim for your support for this vital cause. #RAIRDAware

The next Your Rheum meeting will be online: Thursday 19th September. If you are aged 11-24 years, living with a rheumatic condition and interested in shaping research then come and join us! Email: [email protected] #arthritis #research #youngpeople #versusarthritis

Please, support Vasculitis UK, a charity with a big heart! movementforgood.com/index.php?cn=1…

Early diagnosis is vital for good patient outcomes. Nearly half of respondents to our 2022 survey reported waiting over 3 years from symptom onset to diagnosis. Read more here👉shorturl.at/zLczs #RAIRDaware