Rare Autoinflammatory Conditions Community - UK®️ (@racc_uk) 's Twitter Profile
Rare Autoinflammatory Conditions Community - UK®️

@racc_uk

A Registered Charity (1184846) for Patients and families affected by Autoinflammatory Conditions, in the UK. Members of @EURORDIS @_ERNRITA @NationalVoices

ID: 837674417878609922

linkhttp://www.raccuk.com calendar_today03-03-2017 14:41:59

7,7K Tweet

1,1K Followers

3,3K Following

Clinical and Experimental Rheumatology (@clinexprheum) 's Twitter Profile Photo

New issue online Behçet's disease and other autoinflammatory conditions clinexprheumatol.org/a.asp?IDArchiv… Free to view #Behçet's syndrome: one year in review 2023 doi.org/10.55563/cline…

New issue online Behçet's disease and other autoinflammatory conditions clinexprheumatol.org/a.asp?IDArchiv… 

Free to view #Behçet's syndrome: one year in review 2023 doi.org/10.55563/cline…
Dr.Mukesh , MD , DM (@dr_immuno29) 's Twitter Profile Photo

•🌟 Noninflammasome-Mediated Autoinflammatory Diseases (AIDs): •🩺 Key Types: ◦TNF receptor-associated AIDs (e.g., TRAPS): Linked to TNF signaling issues. ◦IFN-associated AIDs (e.g., CANDLE, SAVI): Driven by interferon dysregulation. ◦IL receptor signaling defects (e.g.,

•🌟 Noninflammasome-Mediated Autoinflammatory Diseases (AIDs): 
•🩺 Key Types:
◦TNF receptor-associated AIDs (e.g., TRAPS): Linked to TNF signaling issues.
◦IFN-associated AIDs (e.g., CANDLE, SAVI): Driven by interferon dysregulation.
◦IL receptor signaling defects (e.g.,
Dr.Mukesh , MD , DM (@dr_immuno29) 's Twitter Profile Photo

🚨 VEXAS Syndrome Unveiled: Joint Bone Spine 2024 Update! 🚨 •🌟 What’s VEXAS? A rare autoinflammatory beast (Vacuoles, E1 Enzyme, X-linked, Somatic) hitting mostly men over 50, tied to UBA1 gene mutations! •⚠️ Cause: Somatic UBA1 glitches mess up ubiquitination, sparking

🚨 VEXAS Syndrome Unveiled: Joint Bone Spine 2024 Update! 🚨

•🌟 What’s VEXAS? A rare autoinflammatory beast (Vacuoles, E1 Enzyme, X-linked, Somatic) hitting mostly men over 50, tied to UBA1 gene mutations!
•⚠️ Cause: Somatic UBA1 glitches mess up ubiquitination, sparking
Abstream (@abstreamme) 's Twitter Profile Photo

Genetic Regulation of Cell Death: Insights from Autoinflammatory Diseases #science #publication #research #publications scientific.today/entries/137153…

News from Science (@newsfromscience) 's Twitter Profile Photo

Daniel Kastner's work defined a new category of illnesses—known as autoinflammatory diseases—and has opened the door for life-changing and even lifesaving treatments for the conditions. Learn more on #DayOfImmunology: scim.ag/3EISwPk

Daniel Kastner's work defined a new category of illnesses—known as autoinflammatory diseases—and has opened the door for life-changing and even lifesaving treatments for the conditions. 

Learn more on #DayOfImmunology: scim.ag/3EISwPk
American Journal of Dermatopathology (@ajdp_journal) 's Twitter Profile Photo

#WhatsNewInDermpath "Conceptual contextualization of neutrophilic dermatoses" by Ángel Fernández Flores journals.lww.com/amjdermatopath… This article discusses neutrophilic dermatoses & describes the connection b/w neutrophilic dermatoses, autoinflammatory diseases, & autoimmune diseases.

#WhatsNewInDermpath

"Conceptual contextualization of neutrophilic dermatoses" by <a href="/ngelFernndezFl1/">Ángel Fernández Flores</a>
journals.lww.com/amjdermatopath…
This article discusses neutrophilic dermatoses &amp; describes the connection b/w neutrophilic dermatoses, autoinflammatory diseases, &amp; autoimmune diseases.
vasculitides (@vasculitides) 's Twitter Profile Photo

The Role of Notch Signaling and Gut Microbiota in Autoinflammatory Diseases: Mechanisms and Future Views pubmed.ncbi.nlm.nih.gov/40299348

The Role of Notch Signaling and Gut Microbiota in Autoinflammatory Diseases: Mechanisms and Future Views
pubmed.ncbi.nlm.nih.gov/40299348
Milan Medicals (@milanmedicals) 's Twitter Profile Photo

💉 Kineret 100 mg Injection (Anakinra) Effective treatment for Rheumatoid Arthritis and autoinflammatory diseases — now available at #milanmedicals.com with global shipping! 🌐 Order Here 👉 milanmedicals.com/kineret-100-mg… #Kineret #Anakinra #RheumatoidArthritis #ArthritisTreatment

💉 Kineret 100 mg Injection (Anakinra)
Effective treatment for Rheumatoid Arthritis and autoinflammatory diseases — 
now available at #milanmedicals.com with global shipping!

🌐 Order Here 👉 milanmedicals.com/kineret-100-mg…

#Kineret #Anakinra #RheumatoidArthritis   #ArthritisTreatment
Harriet Carroll: Long Covid Scientific Consultancy (@angryhacademic) 's Twitter Profile Photo

Genetic link between endometriosis & immune conditions: Women with endometriosis are at a higher risk for developing autoimmune, autoinflammatory, & mixed-pattern diseases ox.ac.uk/news/2025-04-2… Links include: osteoarthritis, rheumatoid arthritis, MS, coeliacs, psoriasis

University of Oxford (@uniofoxford) 's Twitter Profile Photo

NEW: A study has found that women with endometriosis are at a significantly higher risk for developing a range of autoimmune, autoinflammatory, and mixed-pattern diseases. Find out more ⬇️

NEW: A study has found that women with endometriosis are at a significantly higher risk for developing a range of autoimmune, autoinflammatory, and mixed-pattern diseases.

Find out more ⬇️
CRMO (@fight_crmo) 's Twitter Profile Photo

Long-term effectiveness of the combination of iguratimod and alendronate in SAPHO syndrome: a prospective cohort study academic.oup.com/rheumatology/a…

RMD Open (@bmj_rmdopen) 's Twitter Profile Photo

🧪 Utility of IL-18 in Systemic Autoinflammatory Diseases ✅ Total IL-18 discriminates #StillsDisease from other SAIDs (AUC 0.91) — outperforms ferritin, CRP, free IL-18 & IFN-γ 📉 Free IL-18 drops in responders ➡️ IL-18 as both diagnostic and treatment-monitoring biomarker.

🧪 Utility of IL-18 in Systemic Autoinflammatory Diseases

✅ Total IL-18 discriminates #StillsDisease from other SAIDs (AUC 0.91) 
— outperforms ferritin, CRP, free IL-18 &amp; IFN-γ
📉 Free IL-18 drops in responders
➡️ IL-18 as both diagnostic and treatment-monitoring biomarker.
Dr.Mukesh , MD , DM (@dr_immuno29) 's Twitter Profile Photo

•🔥 Monogenic vasculitis: DADA2, HA20, SAVI, COPA, LAVLI, VEXAS—rare but real! Affects all vessel sizes, early onset (except VEXAS in elderly). •⚡ DADA2: Livedo racemosa, strokes, skin necrosis—hit by anti-TNF & HSCT. •🌟 HA20: Behçet-like—ulcers, uveitis, venous thrombosis

•🔥 Monogenic vasculitis: DADA2, HA20, SAVI, COPA, LAVLI, VEXAS—rare but real! Affects all vessel sizes, early onset (except VEXAS in elderly).
•⚡ DADA2: Livedo racemosa, strokes, skin necrosis—hit by anti-TNF &amp; HSCT.
•🌟 HA20: Behçet-like—ulcers, uveitis, venous thrombosis
Journal of Allergy and Clinical Immunology (@jacionline) 's Twitter Profile Photo

Hyperinflammation has been associated with rare autoinflammatory disorders, but advances in omics technologies have revealed it to be more common, occurring in sepsis and severe coronavirus disease 2019. Learn about the key role of omics in this shift. bit.ly/4jPeUpD

touchIMMUNOLOGY (@touchimmunology) 's Twitter Profile Photo

🔍 Periodic inflammation with no clear cause? This article explores a clinical approach to diagnosing systemic autoinflammatory diseases in adults. 📖 touchimmunology.com/rheumatology/j… #AutoinflammatoryDiseases #Rheumatology #touchIMMUNOLOGY

🔍 Periodic inflammation with no clear cause? This article explores a clinical approach to diagnosing systemic autoinflammatory diseases in adults.

📖 touchimmunology.com/rheumatology/j…

#AutoinflammatoryDiseases #Rheumatology #touchIMMUNOLOGY
Rare Autoinflammatory Conditions Community - UK®️ (@racc_uk) 's Twitter Profile Photo

Hi, Mark here! Today is World Autoimmune and Autoinflammatory Arthritis Day, 2025! Today, we are taking a look back to 2023 when Rachel and Mark presented on the live stream on the topic of symptom monitoring. Below is our presentation for you to look through.

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

Canadian rheumatologist Dr. Sam Aseer discusses his passion for treating rare autoinflammatory conditions, and why building long-term relationships with patients is the most rewarding part of his work. #EULAR2025 #Rheumatology #RareDiseases #PatientCare

Dr. John Cush (@rheumnow) 's Twitter Profile Photo

"H Syndrome" review of 23 French pts. Autoinflammatory dz due to variants of SLC29A3 gene. Multisystem histiocytic lymphoproliferative disorder of young adults- skin 2/3, sensorineural hearing loss, fever w/ endo & autoimmune dz. Best responses w IL6 inhib. #EULAR2025 Abst

"H Syndrome" review of 23 French pts. Autoinflammatory dz due to variants of SLC29A3 gene. Multisystem histiocytic lymphoproliferative  disorder of young adults- skin 2/3, sensorineural hearing loss, fever w/ endo &amp; autoimmune dz. Best responses w IL6 inhib.  #EULAR2025  Abst