If India can count caste, why not count disability? The Government’s decision to conduct a Caste Census acknowledges the importance of data in shaping equitable policies. But where is the Disability Census? Census India 2021 Without accurate, disaggregated data on persons with

🩸Outdated therapies like cryoprecipitate pose safety risks for people with #BleedingDisorders. The WFH has submitted proposals to update 2025 WHO EML requesting to align the EML to international clinical guidelines for hemophilia and VWD. 📖Read more: bit.ly/4jxzJ8R

Great learning experience at the Indian Society for Blood & Marrow Transplantation (ISBMT 25)! Engaging discussions, expert insights, and good networking #ISBMT25 #BloodMarrowTransplantation

Arrived in Geneva to attend the World Health Organization (WHO) Essential Medicines List meeting on behalf of WFH Current plans for the list risk a dangerous return to the past for haemophilia and VWD with non-pathogen reduced treatments being recommended as the standard of care. #Haemophilia

Today, the WFH joined in the #WHO 25th Expert Committee Meeting on Selection and Use of Essential Medicines. Radoslaw Kaczmarek & Clive Smith delivered a statement outlining critical updates needed to align the EML with international clinical guidelines. ➡️ bit.ly/3RN97V9

𝗦𝘁𝗮𝘁𝗲 𝗦𝗰𝗲𝗻𝗮𝗿𝗶𝗼 𝗦𝗽𝗲𝗮𝗸𝗲𝗿𝘀: 𝗗𝗿. 𝗩𝗶𝗷𝗮𝘆 𝗦𝗵𝗮𝗵 (𝗚𝘂𝗷𝗮𝗿𝗮𝘁) 𝗗𝗿. 𝗟𝗮𝗸𝗵𝗮𝗻 𝗣𝗼𝘀𝘄𝗮𝗹 (𝗥𝗮𝗷𝗮𝘀𝘁𝗵𝗮𝗻) 𝗗𝗿. 𝗥𝗮𝗵𝘂𝗹 𝗨𝗥 (𝗞𝗲𝗿𝗮𝗹𝗮) 𝗗𝗿 𝗔𝗻𝘂𝗽𝗮𝗺 𝗗𝘂𝘁𝘁𝗮, (𝗥𝗼𝗰𝗵𝗲) #IHCIX #WHD2025 #statuestories #HemophiliaCare

𝗣𝗮𝗻𝗲𝗹 𝗗𝗶𝘀𝗰𝘂𝘀𝘀𝗶𝗼𝗻 State Panel Discussion on 'Streamlining Health Program Implementation: From PIP Planning to Procurement & Distribution Process' with health officials from Haryana, Punjab, Telangana, Andhra Pradesh, Gujarat, Bihar & Tamil Nadu #IHCIX #whd2025

"A little while ago, the Indian Armed Forces launched 'OPERATION SINDOOR', hitting terrorist infrastructure in Pakistan and Pakistan-occupied Jammu and Kashmir from where terrorist attacks against India have been planned and directed. Altogether, nine (9) sites have been

𝗜𝗻𝗱𝘂𝘀𝘁𝗿𝘆 𝗣𝗲𝗿𝘀𝗽𝗲𝗰𝘁𝗶𝘃𝗲 Panel: Industry Representatives Moderated by Santosh Manivannan The Industry joins the mission! 🔬 Session 3 brought forward innovative solutions, access challenges, and the crucial role of pharma in sustainable hemophilia care. #IHCIX

Initiative on Hemophilia Care – IX Session: Diagnosis Speakers: Dr. Bipin Kulkarni | Dr. Jyoti Kotwal | Dr. Latika Nepram Diagnosis is the first step to care! Experts shared updates on genetic testing, POC kits & lab strategies for timely, accurate results. #IHCIX #WHD2025

IHC-IX Session Highlight: Recent Advances & Treatment Guidance 🗣️ Speaker: Dr. Alok Srivastava Special Highlight: 🚀 Launch of the National Treatment Guidance for Hemophilia in India. Gene therapy, innovations, and a milestone launch! #IHCIX #GeneTherapy #hemophiliaindia

Due to Thalassemia many children die before turning 20. Awareness is very much needed in the society. Goa Medical College & Hospital - GMC Hemophilia Society Mumbai Chapter Goa.Hemophilia Premroop Alva Goa State Commission for Persons with Disabilities

#WorldThalassemiaDay | Every year, thousands of children in India are born with Thalassemia Major. It’s time to raise awareness and take proactive steps. Get tested today, know your status, and contribute towards preventing Thalassemia for future generations.

🩸 Initiative on Hemophilia Care – IX 🎤 Industry Symposium Speakers: Dr. Tulika Seth, Dr. Hitesh Muley, Dr. Komal Kaur, Dr. Steven K. Austin Exploring unmet needs, innovative therapies & targeted treatments for rare bleeding disorders. #IHCIX #PharmaInnovation #AccessForAll

On World Thalassemia Day! We acknowledge the strength & resilience of the blood disorders community. Let's unite for better care, awareness & support. Wishing you & your loved ones a day filled with hope & positivity.

suresh meghwanshi PP Ambashta Prakash W. Kamat rajeshaggarwal Dr. Virendra Kumar Dr.Ramdas Athawale B.L Verma PMO India Narendra Modi narendramodi_in President of India Vice-President of India The Hindu The Times Of India Today, I requested rajeshaggarwal sir to take urgent action to resolve complaints registered on the Sugamya Bharat App. Till now, not a single complaint has been resolved, making the app ineffective in the core purpose. IAS Association Shashi Tharoor गृहमंत्री कार्यालय, HMO India The Indian Express

Thank you Anupriya Patel & Ministry of Health , Government of India for the meaningful discussion on uniform Hemophilia care guidelines. A vital step toward equitable access & dignity for people with bleeding disorders. — Hemophilia Federation (India) Ministry of Health #HemophiliaCare

The Hemophilia Federation (India) Hemophilia Federation (India) expresses sincere gratitude to the Government of India, Health Minister Anupriya Patel , and the Ministry of Health & Family Welfare (Ministry of Health and Family Welfare, Government of India) Ministry of Health for the productive meeting

*Representation on Disability and Intersectional Social Justice Concerns for Inclusion in the Upcoming Caste Census 2025–26* Submitted by: Jitendra Kumar Soni, Convenor, Divyang Forum – 2023 02.05.2025 To गृहमंत्री कार्यालय, HMO India, Office of the Registrar General and Census Commissioner of