Well done Oonagh Cousins and the #There4ME team👏🏽👏🏽 Thanks to Sky News for this feature and showing the ONS #LongCovid statistics during the intro to the piece to highlight the scale of the problem.

1/8 🚨 New paper alert! Our latest study entitled “Fibroblast-derived extracellular vesicles contain SFRP1 and mediate pulmonary fibrosis” published in the @JCI_Insight is now available online insight.jci.org/articles/view/…

🫁Today is #WorldLungDay It’s estimated that between 15-20,000 people a year are diagnosed with PF. Despite PF being as deadly as some cancers, it takes too long for people to get diagnosed, treated & supported. Only 1 in 3 people in the UK have heard of PF. This must change.

Thank you to the many thousands of people across the whole of the NHS & social care who helped deliver the care during the pandemic. Has been a strange and difficult day. But felt it was important to give witness to some small part of the enormity of the challenge we all faced.

#CovidInquiryUK

A huge thank you to Sarah Green MP for tabling some Parliamentary Questions on PF & to the Minister for highlighting our work on a national consensus pathway looking to transform ILD and PF care Action for Pulmonary Fibrosis

Pulmonary Hypertension (PH) can be caused by Pulmonary Fibrosis (PF) & can be dangerous as it can cause heart failure. The symptoms of PH can be similar to those of PF. Living with both makes life a lot more difficult. Need more information? Take a look at Action for Pulmonary Fibrosis 💜

Our mission: We work member-driven to raise awareness of #PF with a focus on differences & similarities from country to country in diagnostics & treatment. Our aim is to put a spotlight on PF, diagnosis, existing treatment as well as research. #PFMonth #BreathingLife #CurePF

Incredibly grateful to BBC Breakfast for covering this and in awe of sarah courage and resilience to speak out after everything she has been through. Lovely to see Maeve’s beautiful smiling face throughout the piece. She was so much more than her ME. #There4ME

There will be a 150% increase in Parkinson after COVID like we saw in 1918 flu says expert researcher Richard Smeyne #mdscongress today. If he is right, we better prepare for this growth and redouble efforts in prevention, research and care! #parkinson

Los invito a echar un vistazo al fantástico programa científico del XXXVIII Congreso Regional de Asociación Canaria de Neumología y Cirugía Torácica #Neumocan24 a realizarse el 8 y 9 Noviembre en Tenerife 🇪🇸 Nos vemos en la sesión de #EPID Neumocan 🫁 congresosneumocan.com

Charpentier y Doudna podrían retirar dos de sus patentes #CRISPR en Europa (gestionadas por Caribou Biosciences y ERS Genomics) y adelantarse a la EuropeanPatentOffice que quiere retirarlas por insuficientes detalles descriptivos, según explica Antonio Regalado en MIT Technology Review technologyreview.com/2024/09/25/110…

Implications of the 2022 lung function update and GLI global reference equations among patients with interstitial lung disease thorax.bmj.com/content/early/…

The ACGS position statement: Rare disease genomic testing in the UK and Ireland: promoting timely and equitable access, is online jmg.bmj.com/content/early/… Collaborative best practice guidance involving Unique NHS Genomic Medicine Service Wales Gene Park Genetic Alliance GenQA (Genomics Quality Assessment) & others🧵

22nd International Colloquium on Lung and Airway Fibrosis #ICLAF2024 in Athens 🇬🇷 12-16 October 🗓️ I look forward to seeing my #ILD colleagues and friends again 🫁🧬 Thanks for the kind invitation to participate as one of the chairs of the #PH_ILD session iclaf.org/programme/

We welcome today's announcement from Health and Social Care Secretary, Wes Streeting on improving access to primary care data for research. This will help to advance healthcare and research innovation. Hear from our CEO Rich Scott👇 Richard Scott Wes Streeting MP

New from American Thoracic Society (ATS)– ATS Sarcoidosis Primer amaedhub.org/3Y9lUFb

Intersectionality matters Data showing that Underrepresented minority faculty face a double standard in promotion and tenure decisions WoC more harshly judged = sustained under-representation nature.com/articles/s4156…

Reminder of the importance of publishing "Negative" findings - Loss of chromosome Y in peripheral blood cells is NOT more common among males with idiopathic pulmonary fibrosis. Kudos Drs Espinoas, Selman & team for reporting & ERJ for publishing erj.ersjournals.com/content/early/…

Important and devastating thread. Hospitals were reluctant to go against IPC guidance. Many of us tried hard to raise concerns, to protect ourselves and others, but ultimately could not effect change because ‘national guidance’.