It's #RareDiseaseDay! For 20 years #PatientVoices has helped people share their #raredisease stories. “An invisible illness” cannot defeat the sheer will to live of one young person with #dysautonomia patientvoices.org.uk/flv/1086pv384.… Genetic Alliance UK Rare Disease UK #CareForRare

It's #RareDiseaseDay! For 20 years #PatientVoices has helped people share their #raredisease stories. “Take 2” the determination and resilience of one young person with #sclerosingcholangitis #ulcerativecolitis patientvoices.org.uk/flv/0608pv384.… Genetic Alliance UK Rare Disease UK #CareForRare

It's #RareDiseaseDay! For 20 years #PatientVoices has helped people share their #raredisease stories. #sclerosingcholangitis and #ulcerativecolitis won’t stop Stuart’s love of soccer “One chance” is his story. patientvoices.org.uk/flv/0614pv384.… Genetic Alliance UK Rare Disease UK #CareForRare

It's #RareDiseaseDay! For 20 years #PatientVoices has helped people share their #raredisease stories. A mother reflects on her life with a son with #EosinophilicEsophagitis #EoE in her story “Our normal” patientvoices.org.uk/flv/1062pv384.… Genetic Alliance UK Rare Disease UK #CareForRare #CEGIR

It's #RareDiseaseDay! For 20 years #PatientVoices has helped people share their #raredisease stories. A young person with #EosinophilicEsophagitis #EoE can feel that their life is becoming “Small” patientvoices.org.uk/flv/1068pv384.… Genetic Alliance UK Rare Disease UK #CareForRare #CEGIR

It's #RareDiseaseDay! For 20 years #PatientVoices has helped people share their #raredisease stories. After hepatic pulmonary syndrome and #biliaryatresia a young woman can still “Look beyond the scar” patientvoices.org.uk/flv/0607pv384.… Genetic Alliance UK Rare Disease UK #CareForRare #bodyimage

Help! We've been working with Imperial Health Charity on a resource for #healthcaretransition. If you're a #youngperson #parent #ahp #teacher or #clinician working with #youngpeople please rate/feedback on any part of the pilot 11to25hub.com Please RT to your networks!

Tom Nutt, CEO of Meningitis Now is running the London Marathon to raise funds for the charity. Sponsor him at JustGiving page: justgiving.com/fundraising/to… Please RT!! (1/2)

And, if you want a sense of what training for a marathon is like, then you might enjoy this little video by Tom Nutt, CEO of Meningitis Now :-) youtube.com/watch?v=FZrK02… Please RT! (2/2)

Just frantically packing ready head off to the #11thDST2023 tomorrow. Check out the programme at dst2023.org

HCP or partner supporting Young Peoples health? Working at strategic/policy level on health inequalities? Want to ensure YP voices amplified and heard? Free online training led by YP on YP health inequalities from AYPH charity NHS England Join and share: eventbrite.co.uk/e/working-stra…

The #mealsonwheels service is a lifeline to independent living for the elderly and the blind. What are Hampshire County Council Sir Ranil Jayawardena Rob Humby Helen Whately MP doing to find a replacement when apetito leave contract in 2 weeks? RNIB @RNIBcampaigns Age UK Age UK Campaigns

A great description of a terrible condition #chronicpain #pain #transversemyelitis bbc.co.uk/ideas/videos/w…

Call for Papers: Palgrave Handbook of Disability in Comics and Graphic Narratives graphicmedicine.org/call-for-paper… via @graphicmedicine

Edited by Stephen Dobson, Brit Svoen, Gabriella Agrusti, and Pip Hardy , and with contributions from many others "Learning Inclusion in a Digital Age: Belonging and Finding a Voice with the Disadvantaged" is now available in print and as a free download link.springer.com/book/10.1007/9…

Have #neuroimmune disorder, #transversemyelitis #nmog #ADEM or others? Give 15 minutes to Tara Duffy neurology student with #ADEM at University of New Hampshire, studying mindfulness and quality of life in these disorders. Survey here: unh.az1.qualtrics.com/jfe/form/SV_bx… #AutoimmuneAwarenessMonth Please RT

🗣️Your voice matters! Help @GiveUsAShout and Institute of Global Health Innovation Imperial College London to shape #MentalHealth research which could influence national policy. Complete this short anonymous UK survey by picking the topics that are most important to you, by 30 June: tinyurl.com/MentalHealthTo…

Are you interested in learning more about, or participating in research about, depression? Contact: Dr Anna Bevan (Clinical Psychologist) @ MRC Cognition and Brain Sciences Unit Phone: 01223 767702 Email: [email protected] Website: mrc-cbu.cam.ac.uk/our-research/d…

Very pleased to announce the publication of a paper about the transformative and therapeutic aspects of digital storytelling! #digitalstorytelling #digitalstory #transformation #therapeutic #reflection tandfonline.com/doi/full/10.10…

Remember - your GP is not an NHS employee but has a contract to provide services. A great history of the evolution, sucesses and failures here: nuffieldtrust.org.uk/news-item/a-sh…