Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile
Pathfinders Neuromuscular Alliance

@pathfindersnma

User-led organisation, campaigning for choice, control & quality of life for adults with #MuscularDystrophy and related conditions. We offer peer support & info

ID: 2256905018

linkhttps://linktr.ee/PathfindersNMA calendar_today21-12-2013 20:29:34

4,4K Tweet

1,1K Takipรงi

424 Takip Edilen

Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

๐‘ซ๐’Š๐’… ๐’š๐’๐’– ๐’Œ๐’๐’๐’˜ โ€ฆ Thereโ€™s an app to book assistance for your train journey? ๐Ÿ“ฒ Itโ€™s called the ๐—ฃ๐—ฎ๐˜€๐˜€๐—ฒ๐—ป๐—ด๐—ฒ๐—ฟ ๐—”๐˜€๐˜€๐—ถ๐˜€๐˜๐—ฎ๐—ป๐—ฐ๐—ฒ ๐—ฎ๐—ฝ๐—ฝ - Passenger Assistance ๐ŸŽž๏ธ Watch our ๐—œ๐—ก๐—™๐—ข๐—ฅ๐—  ๐—ง๐—ฟ๐—ฎ๐—ป๐˜€๐—ฝ๐—ผ๐—ฟ๐˜ ๐Ÿ”— youtu.be/Tq3Q8ltVyrg #AccessibleTransport #UpLift

๐‘ซ๐’Š๐’… ๐’š๐’๐’– ๐’Œ๐’๐’๐’˜ โ€ฆ

Thereโ€™s an app to book assistance for your train journey?

๐Ÿ“ฒ Itโ€™s called the ๐—ฃ๐—ฎ๐˜€๐˜€๐—ฒ๐—ป๐—ด๐—ฒ๐—ฟ ๐—”๐˜€๐˜€๐—ถ๐˜€๐˜๐—ฎ๐—ป๐—ฐ๐—ฒ ๐—ฎ๐—ฝ๐—ฝ - <a href="/PassAssistance/">Passenger Assistance</a>

๐ŸŽž๏ธ Watch our ๐—œ๐—ก๐—™๐—ข๐—ฅ๐—  ๐—ง๐—ฟ๐—ฎ๐—ป๐˜€๐—ฝ๐—ผ๐—ฟ๐˜ 
๐Ÿ”— youtu.be/Tq3Q8ltVyrg

#AccessibleTransport #UpLift
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

UpLift ๐—–๐—ข๐—ก๐—ก๐—˜๐—–๐—ง ๐—–๐—ฎ๐—น๐˜ƒ๐—ฒ๐—ฟ๐˜ ๐——๐—ฒ๐˜ƒ๐—ผ๐—ป ๐Ÿž๏ธ ๐Ÿ“† Fri 29th - Sun 31st August ๐Ÿ“ Calvert Devon ๐Ÿ’ฐ FREE If you are aged 18 - 30 living with a muscle-weakening condition then sign up today! โžก๏ธ ow.ly/GBep50Wp2nf

Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

๐—ช๐—”๐—ง๐—–๐—› ๐—ก๐—ข๐—ช ๐—ข๐—ก ๐—ฌ๐—ข๐—จ๐—ง๐—จ๐—•๐—˜ Upliftโ€™s ๐—œ๐—ก๐—™๐—ข๐—ฅ๐—  ๐—–๐—ฎ๐—บ๐—ฝ๐—ฎ๐—ถ๐—ด๐—ป๐—ถ๐—ป๐—ด ๐Ÿ—ฃ๏ธ๐Ÿ’ฌ is now available to watch at your leisure. Hosted by Jamie Hale, a great introduction to making change. ๐ŸŽž๏ธโžก๏ธ youtu.be/I9ZublplvHY Get your top tips for creating a winning campaign!

๐—ช๐—”๐—ง๐—–๐—› ๐—ก๐—ข๐—ช ๐—ข๐—ก ๐—ฌ๐—ข๐—จ๐—ง๐—จ๐—•๐—˜

Upliftโ€™s ๐—œ๐—ก๐—™๐—ข๐—ฅ๐—  ๐—–๐—ฎ๐—บ๐—ฝ๐—ฎ๐—ถ๐—ด๐—ป๐—ถ๐—ป๐—ด ๐Ÿ—ฃ๏ธ๐Ÿ’ฌ is now available to watch at your leisure. Hosted by Jamie Hale, a great introduction to making change.

๐ŸŽž๏ธโžก๏ธ youtu.be/I9ZublplvHY

Get your top tips for creating a winning campaign!
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

UpLift ๐—–๐—ข๐—ก๐—ก๐—˜๐—–๐—ง ๐—–๐—ฎ๐—น๐˜ƒ๐—ฒ๐—ฟ๐˜ ๐——๐—ฒ๐˜ƒ๐—ผ๐—ป ๐Ÿž๏ธ ๐Ÿ“† Fri 29th - Sun 31st August ๐Ÿ“ Calvert Devon ๐Ÿ’ถ No cost Sign up โžก๏ธ tinyurl.com/CONNECTDevon ๐Ÿ“ Sign up: tinyurl.com/CONNECTDevon For more information please visit: calvertdevon.org.uk

UpLift ๐—–๐—ข๐—ก๐—ก๐—˜๐—–๐—ง ๐—–๐—ฎ๐—น๐˜ƒ๐—ฒ๐—ฟ๐˜ ๐——๐—ฒ๐˜ƒ๐—ผ๐—ป ๐Ÿž๏ธ

๐Ÿ“† Fri 29th - Sun 31st August
๐Ÿ“ Calvert Devon 
๐Ÿ’ถ No cost

Sign up โžก๏ธ tinyurl.com/CONNECTDevon 
๐Ÿ“ Sign up: tinyurl.com/CONNECTDevon 

For more information please visit: calvertdevon.org.uk
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

Liverpool. We are coming. Pathfinders Uplift brings 2025 edition of The Weekender to Liverpool this weekend. 25-27 May. Keep your eyes posted on what we get up to. #weekender #pathfindersnma #uplift

Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

๐‘ด๐‘ฌ๐‘ฌ๐‘ป ๐‘ป๐‘ฏ๐‘ฌ ๐‘ป๐‘ฌ๐‘จ๐‘ด - UpLift ๐—ช๐—˜๐—˜๐—ž๐—˜๐—ก๐——๐—˜๐—ฅ ๐—Ÿ๐—ถ๐˜ƒ๐—ฒ๐—ฟ๐—ฝ๐—ผ๐—ผ๐—น๐Ÿ’ฅ Jacqui, Connor & Cath - Team UpLift!

๐‘ด๐‘ฌ๐‘ฌ๐‘ป ๐‘ป๐‘ฏ๐‘ฌ ๐‘ป๐‘ฌ๐‘จ๐‘ด - UpLift ๐—ช๐—˜๐—˜๐—ž๐—˜๐—ก๐——๐—˜๐—ฅ ๐—Ÿ๐—ถ๐˜ƒ๐—ฒ๐—ฟ๐—ฝ๐—ผ๐—ผ๐—น๐Ÿ’ฅ

Jacqui, Connor &amp; Cath - Team UpLift!
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

UpLift ๐—–๐—ข๐—ก๐—ก๐—˜๐—–๐—ง ๐—–๐—ฎ๐—น๐˜ƒ๐—ฒ๐—ฟ๐˜ ๐——๐—ฒ๐˜ƒ๐—ผ๐—ป ๐Ÿž๏ธ ๐Ÿ“† Fri 29th - Sun 31st August ๐Ÿ“ Calvert Devon ๐Ÿ’ถ No cost Sign up โžก๏ธ tinyurl.com/CONNECTDevon ๐Ÿ“ Sign up: tinyurl.com/CONNECTDevon For more information please visit: calvertdevon.org.uk

UpLift ๐—–๐—ข๐—ก๐—ก๐—˜๐—–๐—ง ๐—–๐—ฎ๐—น๐˜ƒ๐—ฒ๐—ฟ๐˜ ๐——๐—ฒ๐˜ƒ๐—ผ๐—ป ๐Ÿž๏ธ

๐Ÿ“† Fri 29th - Sun 31st August
๐Ÿ“ Calvert Devon 
๐Ÿ’ถ No cost

Sign up โžก๏ธ tinyurl.com/CONNECTDevon 
๐Ÿ“ Sign up: tinyurl.com/CONNECTDevon 

For more information please visit: calvertdevon.org.uk
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

UpLift ๐—ช๐—˜๐—˜๐—ž๐—˜๐—ก๐——๐—˜๐—ฅ ๐—Ÿ๐—ถ๐˜ƒ๐—ฒ๐—ฟ๐—ฝ๐—ผ๐—ผ๐—น๐Ÿ’ฅ Itโ€™s tomorrow! The staff team are making their way to Liverpool today to make sure everything is ready for the UpLift projectโ€™s highlight of the year! Looking forward to welcoming you all at noon tomorrow.

UpLift ๐—ช๐—˜๐—˜๐—ž๐—˜๐—ก๐——๐—˜๐—ฅ ๐—Ÿ๐—ถ๐˜ƒ๐—ฒ๐—ฟ๐—ฝ๐—ผ๐—ผ๐—น๐Ÿ’ฅ Itโ€™s tomorrow!

The staff team are making their way to Liverpool today to make sure everything is ready for the UpLift projectโ€™s highlight of the year!

Looking forward to welcoming you all at noon tomorrow.
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

Weekender 2025 is here! Follow along with us on all our social channels. #Weekender2025 #PathfindersAlliance #UpliftEvent #Weekender #PathfindersNMA

Weekender 2025 is here!
Follow along with us on all our social channels.
 #Weekender2025 #PathfindersAlliance #UpliftEvent #Weekender #PathfindersNMA
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

๐“๐Ž๐ƒ๐€๐˜โ€™๐’ ๐“๐‡๐„ ๐ƒ๐€๐˜! The start of UpLift's ๐’‡๐™ž๐’๐™–๐’ ๐—ช๐—˜๐—˜๐—ž๐—˜๐—ก๐——๐—˜๐—ฅ๐Ÿ’ฅThis year weโ€™re in Liverpool. See you shortly!

๐“๐Ž๐ƒ๐€๐˜โ€™๐’ ๐“๐‡๐„ ๐ƒ๐€๐˜!

The start of UpLift's ๐’‡๐™ž๐’๐™–๐’ ๐—ช๐—˜๐—˜๐—ž๐—˜๐—ก๐——๐—˜๐—ฅ๐Ÿ’ฅThis year weโ€™re in Liverpool.

See you shortly!
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

UpLift ๐—–๐—ข๐—ก๐—ก๐—˜๐—–๐—ง ๐—–๐—ฎ๐—น๐˜ƒ๐—ฒ๐—ฟ๐˜ ๐——๐—ฒ๐˜ƒ๐—ผ๐—ป ๐Ÿž๏ธ ๐Ÿ“† Fri 29th - Sun 31st August ๐Ÿ“ Calvert Devon ๐Ÿ’ถ No cost Sign up โžก๏ธ tinyurl.com/CONNECTDevon ๐Ÿ“ Sign up: tinyurl.com/CONNECTDevon For more information please visit: calvertdevon.org.uk

UpLift ๐—–๐—ข๐—ก๐—ก๐—˜๐—–๐—ง ๐—–๐—ฎ๐—น๐˜ƒ๐—ฒ๐—ฟ๐˜ ๐——๐—ฒ๐˜ƒ๐—ผ๐—ป ๐Ÿž๏ธ

๐Ÿ“† Fri 29th - Sun 31st August
๐Ÿ“ Calvert Devon 
๐Ÿ’ถ No cost

Sign up โžก๏ธ tinyurl.com/CONNECTDevon 
๐Ÿ“ Sign up: tinyurl.com/CONNECTDevon 

For more information please visit: calvertdevon.org.uk
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

๐‘ซ๐’Š๐’… ๐’š๐’๐’– ๐’Œ๐’๐’๐’˜ โ€ฆ There is a TV drama about the founders of a disability activism group? ๐Ÿ“บ Itโ€™s called ๐—ง๐—ต๐—ฒ๐—ป ๐—•๐—ฎ๐—ฟ๐—ฏ๐—ฎ๐—ฟ๐—ฎ ๐— ๐—ฒ๐˜ ๐—”๐—น๐—ฎ๐—ป ๐ŸŽž๏ธ Watch our ๐—œ๐—ก๐—™๐—ข๐—ฅ๐—  ๐—–๐—ฎ๐—บ๐—ฝ๐—ฎ๐—ถ๐—ด๐—ป๐—ถ๐—ป๐—ด ๐Ÿ—ฃ๏ธ๐Ÿ’ฌvideo to find out how you can make change. ๐Ÿ”— youtu.be/Tq3Q8ltVyrg

๐‘ซ๐’Š๐’… ๐’š๐’๐’– ๐’Œ๐’๐’๐’˜ โ€ฆ

There is a TV drama about the founders of a disability activism group?

๐Ÿ“บ Itโ€™s called ๐—ง๐—ต๐—ฒ๐—ป ๐—•๐—ฎ๐—ฟ๐—ฏ๐—ฎ๐—ฟ๐—ฎ ๐— ๐—ฒ๐˜ ๐—”๐—น๐—ฎ๐—ป

๐ŸŽž๏ธ Watch our ๐—œ๐—ก๐—™๐—ข๐—ฅ๐—  ๐—–๐—ฎ๐—บ๐—ฝ๐—ฎ๐—ถ๐—ด๐—ป๐—ถ๐—ป๐—ด ๐Ÿ—ฃ๏ธ๐Ÿ’ฌvideo to find out how you can make change. ๐Ÿ”— youtu.be/Tq3Q8ltVyrg
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

Are you 18โ€“30 & have played #PowerchairFootball? ๐Ÿ† Join an online focus group (60โ€“90 mins) for Ellie's dissertation on social care & disabled athletes' experiences. ๐Ÿ“‹ Sign up: bit.ly/3VZ0omM or scan QR Code ๐Ÿ“ง [email protected]

Are you 18โ€“30 &amp; have played #PowerchairFootball? ๐Ÿ†

Join an online focus group (60โ€“90 mins) for Ellie's dissertation on social care &amp; disabled athletes' experiences.

๐Ÿ“‹ Sign up: bit.ly/3VZ0omM or scan QR Code
๐Ÿ“ง 21011037@hope.ac.uk
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

Are you 18โ€“30 & have played #PowerchairFootball? ๐Ÿ† Ellie is conducting an online questionnaire for her dissertation on social care & disabled athletes' experiences. ๐Ÿ“‹ Sign up: bit.ly/3VZ0omM or scan QR Code ๐Ÿ“ง [email protected]

Are you 18โ€“30 &amp; have played #PowerchairFootball? ๐Ÿ†

Ellie is conducting an online questionnaire for her dissertation on social care &amp; disabled athletes' experiences.

๐Ÿ“‹ Sign up: bit.ly/3VZ0omM or scan QR Code
๐Ÿ“ง 21011037@hope.ac.uk
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

Rachel Chambers from King's College London is hosting two workshops for young people (aged 18-25) as part of a research study, to find out what symptoms and concerns are most important to them. Want to know more? email [email protected] or contact @Rachelloucripps

Rachel Chambers from King's College London is hosting two workshops for young people (aged 18-25) as part of a research study, to find out what symptoms and concerns are most important to them.

Want to know more? email rachel.chambers@kcl.ac.uk or contact @Rachelloucripps
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

Do you use #ventilation (bipap/trach/NIV)? Are you interested in theatre? Are you within reach of London? Would you like to work on, or star in, a new adaption of Romeo & Juliet while adding to research on what it means to be ventilated? Find out more at cripticarts.org/R&J

Do you use #ventilation (bipap/trach/NIV)? Are you interested in theatre? Are you within reach of London? Would you like to work on, or star in, a new adaption of Romeo &amp; Juliet while adding to research on what it means to be ventilated? 

Find out more at cripticarts.org/R&J
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

Pathfinders is excited to announce we have received funding from Skills for Care to deliver a free online peer led learning programme focusing on neuromuscular conditions for PA employees and PAs. Check our bio or website for more info.

Pathfinders is excited to announce we have received funding from Skills for Care to deliver a free online peer led learning programme focusing on neuromuscular conditions for PA employees and PAs. 
Check our bio or website for more info.
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

Pathfinders is proud to announce that we have received funding from Skills for Care to deliver a four-part project series supporting PA Employers and PAs themselves. Sign up your interest on forms.gle/WcWyyHHF4hM6vDโ€ฆ or check out our website for more details

Pathfinders is proud to announce that we have received funding from Skills for Care to deliver a four-part project series supporting PA Employers and PAs themselves.
Sign up your interest on forms.gle/WcWyyHHF4hM6vDโ€ฆ or check out our website for more details
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

Do you use #ventilation (bipap/trach/NIV)? Are you interested in theatre? Are you within reach of London? Would you like to work on, or star in, a new adaption of Romeo & Juliet while adding to research on what it means to be ventilated? Find out more at cripticarts.org/R&J

Do you use #ventilation (bipap/trach/NIV)? Are you interested in theatre? Are you within reach of London? Would you like to work on, or star in, a new adaption of Romeo &amp; Juliet while adding to research on what it means to be ventilated? 

Find out more at cripticarts.org/R&J