PPMD and Duchenne UK are excited to announce that pediatric neuromuscular neurologist Professor Peter Kang MD from UMN Medical School has been awarded a $500,000 grant for his research project titled “Phase 1 clinical trial of myogenic progenitors for DMD.” parentprojectmd.org/duchenne-uk-an…

Ohio will be the first state to screen all babies for #Duchenne ! More than 129,000 babies are born in Ohio every year, and the state expects to identify 35 babies with Duchenne annually. Learn more: parentprojectmd.org/ohio-to-begin-…

Your generous support ensures that PPMD has the resources it needs to keep making a difference for families in the years ahead, building on 30 years of impactful work. Give today: donate.parentprojectmd.org/give/394620/#!…

We are proud to share some truly special news: City of Cincinnati Mayor Aftab Pureval has declared today, April 19th, 2024, as “Patricia Furlong Day,” in honor of PPMD's Founding President and CEO! Learn more: parentprojectmd.org/ppmd-celebrate…

PPMD’s state Advocacy Day in IL is here! PPMD advocates are in Springfield, IL today championing legislation for #newbornscreening , mandatory protocols and best practices for providing medical guidance for Duchenne, and #Duchenne Muscular Dystrophy Awareness Day.

Yesterday Edgewise Therapeutics announced positive two-year topline results from the ARCH open label study of sevasemten (EDG-5506) in adults with Becker. Learn more: parentprojectmd.org/edgewise-thera…

The Capitals announced today Tom Wilson as the recipient of the organization’s inaugural Caps Care Community Award in honor of his efforts in the community during the 2023-24 season.

Wilson will be recognized ahead of #CapsBruins during a pre-game ceremony.

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PPMD is proud to announce the launch of our first state-specific Duchenne Advocacy Day in Illinois! Learn more: parentprojectmd.org/ppmd-launches-…

Reminder that these #CARLY1K player-worn, autographed Washington Capitals jerseys could be YOURS! Bid, Buy Now or Donate now at WashCaps.com/CARLY1K

Proceeds benefit Parent Project Muscular Dystrophy (PPMD) - a cause important to the Caps players and hand selected by John Carlson

Reflecting on 30 years of progress, our PPMD Together: Cincinnati meeting is an earnest commitment to the dynamic needs of our community, bringing together families, industry partners, care providers, and advocates in a collaborative effort. Join us: donate.parentprojectmd.org/event/ppmd-tog…

Over 60 leading experts in genetics, pediatrics, neurology, and public health advocates have authored a consensus statement in support of implementing #Duchenne newborn screening. parentprojectmd.org/60-experts-uni…

Our Washington Capitals #CARLY1K Auction is open for bidding at WashCaps.com/CARLY1K

Bid now on player-worn autographed tribute jerseys in honor of Carlson’s 1,000th game. Proceeds benefit Parent Project Muscular Dystrophy (PPMD) whose mission is to fight to end Duchenne.