A case of a 17-year-old female who is 10 weeks pregnant and presenting with #hypothyroidism and #hypoparathyroidism, the latter due to a total thyroidectomy, has sparked a discussion of how treatment is approached differently during pregnancy: bit.ly/3yEflAr

Grateful for the opportunity to present Endocrine Society pre-meeting and learn from such a distinguished group of experts in #Parathyroid disorders!! Thank you CSEM / SCEM and HypoPARA Association #ENDO2024

We’re highlighting #kidneys on #HypoparaDay2024. With #hypoparathyroidism we're at greater risk of chronic kidney disease #CKD. Current treatment wasn't designed for us & hypopara is the only endocrine condition without replacement hormone therapy #PTH

Christie talks about #Hypoparathyroidism - the challenges of a post surgical diagnosis, finding information pre and post surgery and her hopes and concerns for the future, especially looking after her kidneys.youtu.be/Npchqbiz5tA?si… via YouTube #HypoparaDay2024

🌍 Today is World Hypoparathyroidism Day! At BAETS, we're committed to reducing surgical-induced hypoparathyroidism. Let's spread awareness for better outcomes and quality of life. #WorldHypoparaDay #Hypoparathyroidism #Awareness #Healthcare #PatientSupport

Lucy tell us about the shock of her diagnosis, visiting A&E, kidney stones and how her life has changed dramatically since her operation youtu.be/yyCZK7LTVNU

Today June 1st is World HypoPARA awareness day. Approximately 262,000 people worldwide have this disorder. The awareness day began in 2006 started by Liz Glenister from @Parathyroid UK. #raredisease #hypopara #worldhypopara hypopara.org HypoPARA Association Parathyroid UK

Susanna talks about the mental, emotional and physical impact of her total thyroidectomy in 1997 and later admissions for sepsis and kidney stones. #HypoparaDay2024 youtu.be/DsYZY4pJ3QM

Thank you to everyone who supported #HypoparaDay2024, our best yet! Patient engagement was high, 20+ countries, 210 took part in Kidney Poll, 230 in patient survey so far, record viewings of patient videos & funds raised. Thank you @BAETS @ESE @AmolytPharma AscendisPharma

Society for Endo MIMS Learning 💙 @alexTLCsupport AMEND Parathyroid UK Brittle Bone Society BTF Thyroid Can't make MIMS Learning 💙 #MIMSLearningLive but would like to learn more about our Patient Support Groups & rare endocrine conditions? Check out our poster with links to our resources⤵️ AMEND BTF Thyroid Addison's Disease Self-Help Group (ADSHG) @alexTLCsupport Parathyroid UK Brittle Bone Society Society for Endo

Big thanks to Karen Harrison from Alex, The Leukodystrophy Charity (Alex TLC) who represented us and other endocrine patient groups at the @MIMS GP event in London today. This is a new initiative by patient groups to jointly raise #GP awareness about our conditions.

Such sad news of a lovely man who encouraged so many to understand and address their health and improve their well being. Our deepest condolences to his family.

Parathyroidectomy improves bone density in women with primary hyperparathyroidism and preoperative osteopenia – featured study in #JCEM Endocrine Society #bone #parathyroid #surgery doi.org/10.1210/clinem…

#Hypoparathyroidism affects approximately 77,000 Americans. Improve #patient outcomes with thorough strategies for diagnosis and management from Ruban Dhaliwal, MD, MPH UT Southwestern News and Steven Ing, MD, MSCE The Ohio State University Wexner Medical Center here: buff.ly/3Rp2QPI #Thyroid #HypoPTH #EndoDocs

Congratulations to our very own Prof Raj Thakker on his OBE! Read more here parathyroiduk.org/news/our-profe… #RajThakker #OBE

Good to see the vital role of peer support in helping patients manage long-term conditions discussed in this BMJ article. Feeling that others get it & sharing experiences can reduce isolation & improve outcomes. Thank you Partha S Kar 🇮🇳🇬🇧🏏🎥 Aimee Robson (she/her) bmj.com/content/386/bm…

Prof John Wass urges “ all colleagues to log in and see what their data is telling them, to help us shape the best possible service for our patients.”

Deadline to contribute to National Rare Disease Strategy extended to Tuesday, August 6th. MAKE YOUR VOICE HEARD #StrongerTogether

Join us for ESE Clinical Update on Calcium and Bone (Online) on 12-14 November 2024, at 16:00-18:00 CET each day. 📅 Early Bird deadline - 15 October 2024 Register today to save on your registration fee! #endocrinology ow.ly/WJfp50TmpUI