August 20th is the very last day to register to attend the Lisbon Patient Support Meeting! Click here or through the link in the bio for more information: pachyonychia.org/2024-patient-s… #Pachyonychia #RareDisease #PatientSupportMeeting

We know that PC can take a toll on the body and mind. At PC Project we are doing everything we can to provide relief & hope to all who are affected by this painful disease. Help us make a difference to find a cure. We are stronger together! #Pachyonychia #RareDisease #StopPCPain

Going back to school can be stressful, especially if you have a painful, rare skin condition like PC. But it doesn’t have to be! Find tips for PC kids - and their parents - on how to make going back to school a smoother process. pachyonychia.org/tips-for-going… Share yours with us, too!

Attention researchers! Grant applications for PC-specific proposals are due August 31st. Read the grant guidelines and how to apply: pachyonychia.org/apply-for-a-gr… #StopPCPain #Pachyonchia #RareDisease

Nancy was not only a PC patient, but a dear person to PC since 2007. She passed from cancer and left a gift in her will for PC Project to help future generations of PCers. Learn about Nancy and our Legacy Society: pachyonychia.org/legacy/ #Pachyonychia #RareDisease #StopPCPain

Escuche por qué Manena apoya PC Project! youtube.com/shorts/zqVWGsJ… #Pachyonychia #RareDisease #StopPCProject

We are excited to announce the 4th annual Quinoa Harvest and Andean Festival on September 21st in Panguitch, UT (near Bryce Canyon National Park), organized by Dr. Roger Kaspar. This is a fun and unique fundraiser for PC! Learn more: pachyonychia.org/quinoa-2024/

At PC Project, we are fighting for a cure, connecting and helping patients, and empowering research. And, we are successful because of the participation from the patient community. Thank you for joining with us as we move forward to success in these areas!

Staff Highlight!! Hi, I’m Jack Padovano, PC Patient, Advocate, Board member since 2015 and Board Chairman since 2019. I am committed, driven, obsessed even, with finding a cure for PC! #Pachyonychia #RareDisease #StopPCPain

PC looks different for everyone. It’s okay if your PC looks different than another’s! Everyone is unique and so is their PC. Pictures of symptoms help others recognize that they might have PC. Let us know how you identified your PC! #Pachyonychia #RareDisease #StopPCPain

Besides individual donations (for which we are so grateful), do you know there are many ways you can give to sustain the work and mission of PC Project? See our website for more details about each of these: pachyonychia.org/donate-help/

First night at the PC Patient Support Meeting in Lisbon. So fun to see friends, old and new! #StopPCPain

Our private dinners and lunches at the PC Patient Support Meeting were all held in this lovely room with a view. We love the noisy sound of our community talking, sharing experiences, and getting to know one another! #StopPCPain

Thanks to our fabulous PC community for another PC Patient Support Meeting where experts teach and learn, patients teach and learn, and all are edified together. We may be #rare, but we are not alone and we are definitely #StrongerTogether #StopPCPain #Pachyonychia

Our friends & scientific leaders spent 4 hours guiding us as we planned the best paths forward. L to R: Pierre Coulombe, Holly Evans, Irwin McLean, Robyn Hickerson, Jan Schwartz, Joyce Teng, Alain Hovnanian, Edel O'Toole, David Hansen, Angela Hernandez-Martin, David Kelsell.

Thanks @ESDR for giving us a platform to showcase our valuable collaboration between patients & researchers at #ESDR2024. These efforts are especially important for rare & painful skin diseases like ours. Representing PC were David Schwartz, Tom & Tim Baker, & Prof Edel O'Toole.

Thanks to Alexis Campbell who joined the @‌ESDR (European Society for Dermatological Research) Morning Fun Run last week. Alexis ran for PC patients who cannot run for themselves, but hope to one day!

When PC calluses get too thick and painful, a razor can be used to trim off the extra skin. Please note that there are many different tools and methods for trimming PC skin. See the website for other ideas: pachyonychia.org/hand-tools/ How do you care for your PC calluses?

The festival will be on September 21st in Panguitch, UT (near Bryce Canyon National Park). All proceeds will go to fund PC research. Thanks Dr. Roger Kaspar! Learn more here: pachyonychia.org/quinoa-2024/ Register here: panguitchgem.com/quinoa #Pachyonychia #RareDisease #StopPCPain

We love to hear your PC stories and how the PC community has helped you! What is your PC story? Send your story and a photo to [email protected] to get featured or through the link below! pachyonychia.org/share-your-sto… #Pachyonychia #RareDisease #StopPCPain