Tomorrow is the rarest day of the year – February 29 & #RareDiseaseDay. Join us and #ShowYourStripes tomorrow by wearing something striped, sharing your story, or #LightUpForRare by decorating your space with the colors of Rare Disease Day. Learn more: bit.ly/RDD2024

RIGHT NOW | Senator @PiaCayetano delivers a Privilege Speech speech on Rare Diseases as part of the recently concluded National Rare Disease Week Philippines and observance of Rare Disease Day #CareForRarePH #RareDiseaseDay Senate of the Philippines

And the day has arrived! It is now officially 100 days until #RareDiseaseDay! A heartfelt thank you to our 70+ national alliances who lead the campaign in their countries. We are so excited to see how you will be making Rare Disease Day 2025 a special and memorable one!

As we kick off the conference #APARDO2024 in a few days We’re thrilled to welcome Dr. Irene Lorinda Indalao of Indonesia’s Ministry of Health as an honored guest, alongside an incredible lineup of leaders driving change in their region. #RareDisease #PatientAdvocacy

Ms. Cynthia Magdaraog, PSOD President, led healthcare workers, representatives of patient support groups, and other stakeholders in reciting the pledge of commitment to support the Integrated #RareDisease Management Program Roadmap Strategic Framework. #CareForRarePH #APARDO2024

Keynote Speaker at the Asia Pacific conference on Rare Diseases 2024

Mabuhay! PSOD, led by Ms. Cynthia Magdaraog and Dr. Carmencita Padilla, welcomes Dr. Durhane Wong-Rieger and the delegates of the Asia Pacific Alliance of Rare Disease Organizations (#APARDO2024) conference. #WeCareForRare #CareForRarePH APARDO

Dr. Teodoro Herbosa Teddy Herbosa MD ❎, Department of Health Philippines Secretary, graced #APARDO2024 and served as the keynote speaker of the conference. His talk centered on advancing #raredisease as a key priority in universal health coverage in the Philippines. #CareForRarePH #WeCareForRare

We care for rare! We can do it! #APARDO2024 ends with a message of hope for the rare disease community. The PHL, thru Sec. Herbosa, made a commitment to support the WHA resolution on rare diseases. Other countries were also encouraged to lobby nat'l commitment. #CareForRarePH

This year, RA 10747 or the Rare Diseases Act of the Philippines turns 9 #CareForRarePH #Raredisease While nine years have passed, the full benefits of the law remain to be materialized for Filipinos living with a rare disease. #WorldBDday

March 03 is World Birth Defects Day #WorldBDday The 2025 WBDD (#WorldBDDay) theme is “Every Journey Matters.” Birth defects affect individuals, family, friends, and communities. That’s why #EveryJourneyMatters PSODCareForRare supports the campaign for #WorldBDday

Osteogenesis imperfecta (OI) is a rare and complex genetic disorder of the collagen that is often characterized by bones that break easily. Learn more at oif.org. #WishboneDay #UnbreakableSpirit #OIawarenessweek

Your participation in current OI studies helps move OI research forward! If you are interested in learning more about current OI studies and publications, join the OI Registry at oif.org/oiregistry. #WishboneDay #UnbreakableSpirit #OIawarenessweek

May 6 is #WishboneDay Together John Ray and Rose Ann, we can raise awareness on #OsteogenesisImperfecta or Brittle Bone Disease. #OIawareness #CareforRarePH Brittle Bone Society OI Foundation