Extremely useful app for the #pku community Find it in your app shop & try it! Ppl I work with find it VERY Helpful! 🤩🤩🤩

Thanks so much Anita. It was a great experience. The links to the two surveys are below NSPKU #NSPKU app.onlinesurveys.jisc.ac.uk/s/bcu/pku-surv… app.onlinesurveys.jisc.ac.uk/s/bcu/who-qual…

Like all things in life, diets of any kind have their ‘down’ days and ‘up’ days… an overall average is a more positive way to look at your progress… we spend so long trying to achieve, just stop and think… I made it to here 😊💚 #PKU

Morning all, does anyone know if Loprofin have actually stopped making crackers now? Can’t seem to order them anywhere! #PKU 😔

Issues with patient access to low protein foods with PKU the problems observed by the BIMDG dietitians. This work is interesting and much needs to improve #BIMDG24 NHS England NSPKU

So one week on and I’m still nowhere with the status of the Loprofin crackers… apparently they remain‘unavailable’… anyone else got issues with getting hold of them? #PKU

This is open WORLDWIDE for any PKU patient > 16yr or caregiver of a PKU patient < 16yr. You do NOT have to be involved in physical activity or exercise to take part - it’s for EVERYONE! Thank you for the continued support - as a PKU patient I hope to do the community proud 💚

After an evening in the City (London) meeting clients, there’s nothing better on this planet than getting an AMT Coffee for the train home… simply the best coffee on the go ever!! ☕️

Let’s start the week with some gratitude- Promin Metabolics thanks for making such great bread, it’s so nice to have choice & loaves which genuinely offer great flexibility in our diet! #PKU 💚 😊

Made banana bread before work #pku

What has been your favourite go-to summer dish so far this year? #PKU

Hi all, had login issues with my account.. 😞.. back now! Question: what is your go-to as a swap for crisps? 🤔 #PKU

So true. 😂

Morning PKUpeeps! I fancied some Cadbury’s mini eggs yesterday and calculated approx. 7 eggs = 23/24g - 1 exchange! Good to know in the pre-pre-Easter shopping trips! #PKU

Morning all, #HappyValentinesDay! Whatever plans you have today, have a good one! 😊

Some amazing low protein savoury delights by Chef Derek at the #DMIMD25

Promin Low Protein Rice Puddings are creamy, satisfying and made for moments of pure joy! ❤️🍚 Samples can be requested via this link prominpku.com/samples #MadeWithPromin #lowproteindiet #lowprotein #PKU

Mutti Pasta Sauce with Basil: low protein/exchange free

Sainsbury's Free From Chocolate Brioche Rolls: 1 finger = 1.8g protein (2 PKU exchanges)

The BACS Cargo Surveyors committee I sit on, are fundraising for NSPKU this year. Check out their JustGiving page and please share & donate if you can. Thank you! 💚 😊 #JustGiving justgiving.com/page/bacs?utm_… #PKU #NSPKU