The importance of patient advocacy was a recurring theme at the 2025 #MJAAwards. Our chair Shaun Lintern spoke of his family's experience of the strengths and weaknesses of the NHS following his mother's diagnosis with motor neurone disease youtu.be/yXWfhUospXs

Such brilliant news for families affected by Huntington’s disease and for researchers. This is a moment of real hope. bbc.com/news/articles/…

6 winners (current and former) of the Sheila Jones award. What a line up! #ESPKUConference2025

The Metabolic team RMCHosp are thrilled that Georgie Wood presented her audit on Low Protein Prescription Foods for children with #PKU at the #ESPKUconference2025 in Hamburg, well done Georgie!! 👩‍🔬📈🍞 MFT_CSS ESPKU British Dietetic Association BDA Paediatric Group

Another interesting poster: within 4 months of re-engaging in dietary treatment, lost to follow up adult PKU patients demonstrated improvements in global cognition and aspects of executive function, with trends in attention and memory #ESPKUConference2025

Great to be back at the ESPKU Conference to share our audit results. There is more work to be done to improve access to low protein prescription foods #ESPKUConference2025 #pku #whatdietitiansdo

If you ever spent time with someone deteriorating because of MND or saw the impact on their family, you would not hesitate to make sure treatment was given once available. There can be no good reason for this Wes Streeting NHS England MND Association MND Campaigns #MND

- Man with Down’s admitted with a broken hip, easily fixed with surgery. - Mistakenly marked down as 'nil by mouth' for NINE DAYS. - Due to disability can’t explain he’s hungry. - Literally starves to death on the ward. Nobody notices him slowly dying. itv.com/news/2025-10-0…

For this Rainforest Friday we're in Dizzard in Cornwall. Dizzard is a Cornish word meaning 'very steep'. The rainforest is at least 6,000 years old and has potentially been here since the last Ice Age.

Imagine how annoying it is if the “bottomless” refills all contain phenylalanine sweetener so you can’t drink them because you have pku and you can’t eat most of the food on the menu because you have pku. @nspku

Representing the ESPKU - there was lots to say yesterday on defining unmet medical needs at the European Health Forum

If you read one piece today make it this extraordinary article from Lord Glasman on how he emerged from 12 hours of fasting during Yom Kippur to turn on his phone and be met by a cacophony of grief Every word is carefully weighed, it is a beautiful piece of writing. Well worth

How can we end the cycle of tragedy that sees 2000 babies lose their lives every year in NHS maternity units? My The Guardian piece published today theguardian.com/commentisfree/…

Only man to appeal against conviction for raping Gisèle Pelicot has sentence increased to 10 years bbc.in/4hbGU6o

Other work of the Ladybird artists. October (Shell Guide, 1957) Artist: SR Badmin

I was Lindsays form tutor and was very fond of her. I still think of her regularly. I am so pleased the police have never given up looking for her killer, and I hope these recent developments will finally provide answers for her family and justice for Lindsay.

Not 100% but think I spotted the sumo wrestlers from The Royal Albert Hall out & about in London today

The mastery of artist Harry Wingfield. ‘Cake’ (Yes, it is a painting - from Third Picture Book, 1971)

Kate Learoyd PKUhub NSPKU People with PKU are being discriminante against. This is so unfair and adding yet another level of unnecessary difficulty to their life. No one should be penalised for a medical condition they did not choose.