𝘛𝘩𝘦 𝘸𝘢𝘪𝘵 𝘪𝘴 𝘧𝘪𝘯𝘢𝘭𝘭𝘺 𝘰𝘷𝘦𝘳... #WorldOrphanUSA 2025 kicks off today with our Pre-Conference Day! 🎊 With a jam packed schedule filled with interactive workshops, presentations, and fireside chats , you won't want to miss this. Take a glimpse into what's in store

Don't miss any highlights from #WorldOrphanUSA 2025! Follow our LinkedIn page below to catch LIVE coverage the next 3 days in Boston 📸 linkedin.com/company/world-… 🗓️ April 22-24 📍 Boston Convention & Exhibition Cetner

📣 Meet the Day 1 Chairs of #WorldOrphanUSA 2025! Tomorrow, these industry leaders are bringing their expertise, energy, and vision to the forefront – guiding the conversations that matter most in rare disease and orphan drug innovation. ✦ 𝐈𝐧𝐧𝐨𝐯𝐚𝐭𝐢𝐨𝐧 &

🥁 𝘋𝘳𝘶𝘮 𝘳𝘰𝘭𝘭 𝘱𝘭𝘦𝘢𝘴𝘦... Day 1 of the World Orphan Drug Congress USA 2025 is finally here! The #raredisease community is taking over Boston this week, and we’re kicking things off with a powerhouse lineup of visionary keynote sessions setting the tone for the days

Rare Disease Advisor is in Boston, MA for #WorldOrphanUSA. Follow along for live updates, expert interviews, and our first-ever Rare Advocacy session! World Orphan Drug Congress USA #RDAatWODC

#WorldOrphanUSA: "Everyone is not their diagnosis…& we clinicians can’t assume that because we see the world & their disease a certain way, that’s the way they want to see it." - Dr. Faisal Riaz, Neuroimmunology & AATD specialist at Takeda Pharmaceutical." World Orphan Drug Congress USA

#OrphanDrugUSA World Orphan Drug Congress USA #RDAatWODC

Good morning from Boston! Day 2 of #WorldOrphanUSA 2025 is underway 🌟 After an incredible first day packed with insight, energy, and collaboration, we’re diving into another full day of advancing the future of #OrphanDrug development and #raredisease care. We’re starting strong

#WorldOrphanUSA: Jennifer McNary, CEO of Canary Advisors, speaking April 23, 2025, at World Orphan Drug Congress USA. Larry Luxner #RDAatWODC

That’s a wrap on the 2025 World Orphan Drug Congress USA! SMPA was honored to contribute alongside researchers, clinicians and advocates dedicated to advancing rare disease research. #WorldOrphanUSA #RareDisease

We're at World Orphan Drug Congress USA this week to support our clients and participate in important conversations for rare diseases. We're proud to be a part of the progress.

We out here repping APS Type 1 Foundation and Rare Disease International at the @orphanconf #worldorphandrugcongress

Day 2 at #WODCUSA is all about the power of partnerships—patient advocacy, storytelling, and building community. It’s inspiring to see how these voices shape progress in rare disease care. What insights have stood out most to you today? World Orphan Drug Congress USA #WorldOrphanUSA #RareDisease

I am exhausted but empowered after the last few days at the World Orphan Drug Congress USA in Boston, especially after today's panel with fellow rare disease advocates Jean C9orf72, Allison Peck, and Heidi Edwards, as well as the woman who brought us all together...

#WorldOrphanUSA: “The delay of MLD screening equals death for these babies. They cannot wait.” - Christina Hartman, senior director of government affairs at Orchard Therapeutics - U.S., whose #GeneTherapy treats metachromatic leukodystrophy (MLD). #RDAatWODC World Orphan Drug Congress USA

Thanks to Terrapin for another successful World Orphan Drug Congress USA! We look forward to our continued partnership with this outstanding team. #WorldOrphanUSA #Terrapin #Checkrare World Orphan Drug Congress USA

Last week, we wrapped up #WorldOrphanUSA 2025 – our largest and most impactful edition to date! 🌟 🌟 Our team wants to give a huge THANK YOU to our sponsors, exhibitors, speakers, and attendees for making this year’s event unforgettable. Your passion, insights, and commitment

Our VP of Sales & Marketing recently hosted a fireside chat with Medical Publisher CheckRare at #WorldOrphanUSA, a forum focused on advancing orphan drug development and enhancing access to life-saving therapies for #raredisease. #WHIMsyndrome #RareResolve World Orphan Drug Congress USA

Our COO, Karen Tubridy, participated in a panel at World Orphan Drug Congress USA on women redefining healthcare, discussing topics including overcoming barriers in the healthcare industry and creating impactful solutions in rare diseases. #WorldOrphanUSA

Ever heard of #HSPB8 #Myopathy (MFM13)? Probably not. Check out our poster from the World Orphan Drug Congress USA and if you're feeling bold, pass it on.