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After 2 and 1/2 years establishing the ONE in 5000 Foundation globally, we’ve decided to enter a new exciting phase by creating a new “logo” below, as we continue to strive to spread awareness and understanding of those affected by #anorectalmalformation #imperforateanus #vacterl

This “research study” attached which was published in 2010, shows that the incidence rate for a family member to also be born with #anorectalmalformation #imperforateanus is 1:200, compared to 1:5000 which is the accepted incidence rate of the general population. 🧡💙

Pediatric Surgeon to population ratio: US 1: 284.521 Austria 1: 108.640 Honduras 1: 1.000.000 #worldhealth #some4surgery #pediatricsurgery

This is an outstanding article by Laurita Tellado ✨ which conveys the realities of what those of us suffering from bowel #incontinence have to deal with, from people who use “toilet humour” as a coping mechanism for the uncomfortable topic ONEin5000Foundation medium.com/p/why-your-jok…

We are pleased to welcome new RVA Partner, ONE in 5000 Foundation, which supports those affected by the congenital condition, Anorectal Malformation or Imperforate Anus. The organisation's aim is to promote awareness, understanding & education. More: bit.ly/2TA6vN5

Come and join our Paediatric Surgical team at The Royal Children's Hospital, Melbourne in 2021. Applications close on 8th May. RCH Paed Surgery Marc Levitt Richard Wood ANZAPS

If you are an adult (18 yo and older) who was treated for ARM or HD by Drs. A Peña, Dr. A Bischoff, or Dr. L De La Torre and are interested in participating in research, please complete this brief form. We will email you further details is.gd/Colorectal_Res…

The ONEin5000Foundation global family are proud to be made up of all races, creeds, colors from countries from all across the world, as because IA/ARM doesn’t discriminate, we would NEVER either. We’re all in this together no matter color, ethnicity or socia-economic situation🧡💙🖤

To celebrate “World Continence Week” WFIPP we encourage all our followers to share this post, which has a link to our website so we can spread awareness, education and understanding of #imperforateanus #anorectalmalformation #WCW2020 Greg Ryan OAM onein5000foundation.org/aims

ARM + HD is rare and, for the benefit of the patient, only after the diagnosis is 100% confirmed (good full-thickness biopsies at appropriate level, not the original fistula site, reviewed by an experienced pathologist) should an operation be offered. pubmed.ncbi.nlm.nih.gov/32507634/

Very important medical article for #anorectalmalformation patients

This is a much needed discussion to be had in the #pediatric community. In 2019 we did an online survey with over 500 responses on how families identify there child’s condition. Results were 79% #imperforateanus 16% #anorectalmalformation 5% #vacterl DoctorsPenaBischoff Greg Ryan OAM

Proud to announce the release of our new book “Rare and Resilient: ONE in 5000 Anthology”. A collection of 133 stories from patients and families from 26 countries from our global #imperforateanus #anorectalmalformation community Greg Ryan OAM amazon.com/dp/0646831526/… via Amazon

Syed Husain @OSUSurgery Peds Colorectal, Nationwide Children's Hospital We think it should be @OSUSurgery and Peds Colorectal, Nationwide Children's Hospital! Pediatric colorectal congenital patients require complex multidisciplinary care into adulthood. We have an elective Peds colorectal rotation @OSUSurgery incorporated into our adult CRS fellowship ONEin5000Foundation

Symposium of Western Australian Neuroscience Stamp Hao Lab UniMelb MDHS What a power “couple”! It’s my pleasure and privilege to collaborate with Stamp Hao Lab to find a cure for Hirschsprung disease. The Royal Children's Hospital, Melbourne Murdoch Children's Research Institute (MCRI) UniMelb MDHS RCH Foundation @help4HD_ ONEin5000Foundation

This is such a wonderful initiative to assist adults who were born with complex colorectal conditions get the much needed care after they leave the Pediatric system. Congratulations to all who collaborated in this groundbreaking study 🧡💙

Eugene, it was such a honour to be with you all at Department of Surgery at Cedars-Sinai Your new hospital is beautiful, and your team was so welcoming. Always great to talk about colorectal conditions in children, and particularly GI motility The Royal Children's Hospital, Melbourne Murdoch Children's Research Institute (MCRI) ONEin5000Foundation Dr Eric Levi

Our latest publication “Gastrointestinal quality of life and bowel function in adults born with ARM and HD” showed that patients with successful bowel management had a better quality of life. You can read the full article in this link: rdcu.be/dhaT7

Join us at the PCPLC Peds Colorectal | PCPLC meeting - Nov 15-17 in Arizona. pcplcmeeting.com abstract submission open! #pcplc2023 #pedscolorectal

The 14th Annual European Pediatric Colorectal and Pelvic Reconstruction Meeting will be held in Milan on 25-27 October 2023, and is focused on Anorectal Malformation and Hirschsprung Disease. 💡 For more information please visit: epcm2023.it #epcm2023