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Today, CBS Philadelphia's Stephanie Stahl was on site to film a story about two of our patients with osteogenesis imperfecta. This heartwarming story will air tonight at 6:15pm on CBS3! Don't miss it! Nemours Children's Health #OI #BTS 📽️🎬

International bonds of friendship have formed at Nemours Children's Hospital between two little girls being treated for a rare disease. cbsloc.al/3MMdRIe

New research from the #BrittleBone Disorders Consortium (BBDC): ✅ Exploring #BoneAge Maturation During Adolescent Growth in Patients with #OsteogenesisImperfecta Listen and read more: rarediseasesnetwork.org/news/research-…

The October issue of the OIF E-Newsletter is here! Read about Updates from the OIF, OI Research, Upcoming Events, and more at mailchi.mp/oif/october2024

The November issue of the OIF E-Newsletter is here! Read about updates from the OIF, OI research, upcoming events, and more at mailchi.mp/oif/november20….

NEW! OIF Winter Spirit Wear! Support the OI Foundation by ordering your Unbreakable Spirit® long sleeve, crew neck sweatshirt, or hoodie today! Great for gifts and keeping warm this holiday season! Order yours today at bonfire.com/oif-winter-spi…

#GivingTuesday is on December 3! There are so many different ways you can support the OI Foundation's mission to improve the quality of life for those living with OI through research, education, awareness and mutual support on Giving Tuesday! Learn more at oif.org/givingtuesday2…

Happy Thanksgiving from the OI Foundation!

The OIF's Double Good Popcorn Shop is OPEN! Not only will delicious popcorn be delivered to your doorstep, but 50% of the proceeds will be donated to the OI Foundation. Don't forget to order a few extra for friends and family!  Place your order at popup.doublegood.com/s/vm875ky8

**SHARE THIS POST!** Help raise awareness and support for the OI community by sharing this graphic on your page today and celebrate #GivingTuesday with the OI Foundation!

The December issue of the OIF E-Newsletter is here! Read a letter from OIF CEO Tracy Hart, updates from the OI Foundation, OI research news, and more at mailchi.mp/oif/dec2024.

The OI Foundation wishes you and your family a happy holiday season!

Happy New Year!

🌟 Supporting Better Patient Care for Rare Bone Diseases 🌟 We’re excited to highlight the Rare Bone Disease TeleECHO Clinic Series, a collaborative effort by the Rare Bone Disease Alliance (Rare Bone Disease Alliance) with program support from the Osteogenesis Imperfecta Foundation

The January issue of the OIF E-Newsletter is here! Read updates from the OI Foundation, information about Impact Grants and the Edward D Cranston College Scholarship, upcoming OIF events, OI research news, and more at mailchi.mp/oif/jan2025.

The February issue of the OIF E-Newsletter is here! Read updates from the OI Foundation, information about Impact Grants and the Edward D Cranston College Scholarship, upcoming OIF events, OI registry news, and more at mailchi.mp/oif/feb2025.

Incredibly proud that my poem has been included in Genetic Alliance UK Anthology of Rare Disease experiences 🙌🏻🤗🫶🏻 “More than you can imagine” OI Foundation Brittle Bone Society NCL_RareDisease Kasia Pirog Michael Briggs 🔬🏏🎸🐝🦔🍺🌱 #RareDiseaseDay2025 #RareDiseaseDay

Along with many other rare disease community members, organizations, and advocates, the OI Foundation honors the 300 million people worldwide who are living with a rare disease today. #RareDiseaseDay

#RareDiseaseDay is the perfect time to help move OI research forward! Learn more about current OI studies and join the OI Registry at oif.org/currentstudies

A rare disease is one that affects fewer than 200,000 individuals in the United States. There are currently over 6,000 identified rare diseases, including osteogenesis imperfecta (OI). Learn more about OI and the OI Foundation at oif.org. #rarediseaseday