🧵 Today we have published Our vision for improving patient experience of diagnosis, supported by 58 members📢 The Vision sets forth nine key recommendations, which could significantly improve people’s experiences of diagnosis, and wider healthcare. 👉 nationalvoices.org.uk/project/our-vi…

Internship opportunity with Nystagmus Network Thomas Pocklington Trust and RNIB are collaborating with charities in the sight loss sector to create opportunities for #Blind/#PartiallySighted people to find employment through the Get Set Progress Internship programme. buff.ly/4bD0m7y

Well done, George! You can find out more about our current #GetSetProgress internship opportunity here: nystagmusnetwork.org/internship-opp…

Actor, musician and children's author, Gerard McDermott and Sue from Nystagmus Network raised the #Nystagmus banner at Broadcasting House recently. They were there to record the charity's BBC Radio 4 charity appeal to be broadcast on Sunday 11 August. buff.ly/3ystFfq

Nystagmus on the radio - mailchi.mp/nystagmusnetwo…

Friday fundraiser - Richard will be running the Royal Parks Half Marathon as part of Team Nystagmus Network this October. He’s running for his daughter who has esotropia and nystagmus. Thank you Richard for your tremendous support! #Nystagmus #fundraising buff.ly/4bCizCp

Hear actor Gerard McDermott talk about his school days with #Nystagmus this Sunday 11 August on BBC Radio 4 at 07.54 and again at 21.25. #R4Appeal buff.ly/3ystFfq

We had so much fun recording our BBC Radio 4 charity appeal. Our presenter, Gerard and Sue from the staff team flew the Nystagmus Network banner outside broadcasting House. Find details of our appeal on our website here: buff.ly/3ystFfq

Jackie now lives with #AcquiredNystagmus. Hear Gerard share her story this Sunday 11 August on BBC Radio 4 at 07.54 and again at 21.25. buff.ly/3ystFfq #R4Appeal

Listen to Nystagmus Network charity broadcast appeal on BBC Radio 4 this Sunday 11th August. I was born with Nystagmus and the charity does incredible work to support people living with the condition. The acclaimed author and musician Gerard McDermott will share his story of being

Gerard was born with #Nystagmus. He hid his poor eyesight at school day and even once he became an actor. He's no longer so shy and happy to serve as a nystagmus ambassador. Hear him read a BBC Radio 4 charity appeal for Nystagmus Network this Sunday 11 August. buff.ly/3ystFfq

Your donation to the Nystagmus Network charity appeal will help us continue to support people living with #Nystagmus, to help them live well and thrive. Please listen in this Sunday 11 August on BBC Radio 4 at 07.54 and again at 21.25. Thank you. buff.ly/3ystFfq #R4Appeal

Nystagmus Network Actor, singer, musician and children's author, Gerard McDermott will present BBC Radio 4 charity appeal for Nystagmus Network on 11 August at 07.54 AM and at 9.25 PM and again on 15 August at 3.27 PM. Read more: visionary.org.uk/latest/a-bbc-r…

Our BBC Radio 4 charity appeal - listen today! Hear Gerard talk about his life with #Nystagmus at 07.54 and again at 21.25. See more about our appeal on our website here: buff.ly/3ystFfq or listen any time here buff.ly/3Wu101I #R4Appeal

Thank you for your support Laura Laura Eccott

Did you miss our BBC Radio 4 charity appeal broadcast yesterday? Don't despair! You can listen on demand at any time on BBC Sounds here: buff.ly/3Wu101I #R4Appeal

Help us raise awareness of #Nystagmus #ECLOs, high street #Opticians and low vision clinics can order a FREE supply of Nystagmus Network leaflets. You can order yours from our website here: buff.ly/3ZQcFrE Thank you!

There's another chance to hear our BBC Radio 4 charity appeal, presented by Gerard McDermott today at 15.27. Or you can listen on demand at any time on BBC Sounds here: buff.ly/3Wu101I #R4Appeal

Your August edition of Focus - mailchi.mp/nystagmusnetwo…

Client Event: 2 weeks today, our friends from the Nystagmus Network will be holding The big nystagmus meet up – Sheffield at our Centre (Sat 14th Sept 11am to 4pm ). Please follow this link to more information & links to book your place: srsb.org.uk/Feeds.aspx?Key…