Saying ME/CFS isn’t deadly is like saying AIDS isn’t. You might not die from the illness directly – but from its complications, from systemic failure, from isolation. It’s time to take this seriously! @NIHDirector @BMBF_Bund Jay Bhattacharya NINDS Tino Sorge

More than 400,000 people in England have myalgic encephalomyelitis (ME), according to a new study highlighting how those with the illness are “ignored” by the NHS thetimes.com/uk/healthcare/…

This could be huge step forward for the UK 🇬🇧 #MECFS #LongCovid #PAIS

Urgent Action Alert! Tell Congress To Preserve the #MECFS Program at CDC solvecfs.org/urgent-action-…

More and more countries are reporting a rise in disability — a quiet wave that keeps growing. At the same time, Long Covid has chronically sickened and disabled hundreds of millions around the world. The science is clear. And yet… barely anyone connects the two! Secretary Kennedy

It’s happening. New clinical guideline for #MECFS in Australia is underway. Right now - you can help us! Scoping survey open until 27th April - if you have POTS or Long Covid this could affect you too, read on 1/🧵 consultations.nhmrc.gov.au/clinical-pract…

Germany’s Research Minister Dorothee Bär in the country’s largest daily today: “ME/CFS patients don’t just need recognition – they need effective help!” We strongly welcome this initiative. Let’s unleash Germany’s innovative strength and bring other European countries on board! 🚀

International people with ME/cfs and Long-COVID. Our group of football supporters affected by this horrible disease is growing. In case you want to connect with us: Here is our new English text on the website emptystands.me/en/

🏆 The double winners Double-Siegerinnen 🥇🏆 (league & cup) join the #LemonChallengeMECFS to raise awareness for ME/CFS and the suffering of those affected. They stand with many other pro clubs in Germany who’ve spoken out in recent weeks and months. Thank you FC Bayern München!

the science around ME is at a tipping point, the government must fund further research⬇️ thetimes.com/uk/healthcare/…