The best session till now on #diaeurope2022 conference early #patients #engagement in #drug #development and #decision #making EUPATI EURORDIS-Rare Diseases Europe Global Liver Institute Biljana

Happy #NASHday 2022, raising awareness for healthy life style #StopNASHNow Biljana Global Liver Institute ERN RARE LIVER

Local government (mayor) was included in our celebration of #NASHday with promises to help us with future activities about #NASH #StopNASHNow Biljana Global Liver Institute PBC Foundation ERN RARE LIVER

National media are talking about #NASHday so let our activities contiue till development of National register in #Macedonia for #NASH #StopNASHNow Biljana Global Liver Institute @intNASHday novamakedonija.com.mk/makedonija/mak…

Our final video from walking in wood for #NASHDay #StopNASHNow Big thanks to Global Liver Institute for their support Biljana Liver Patients International (LPI) ERN RARE LIVER youtube.com/watch?v=uRCPjJ…

23-29 April is European Immunization Week! ▶️ Why is vaccination so important? ▶️ What diseases can we effectively prevent with vaccination? ▶️ How are we tracking vaccine-preventable diseases? Follow us through the week. #EveryDoseCounts #VaccinesWork

The countdown continues. You, the patient, have the answers. We have a new survey on our #App. We desperately need your voice to guide us. Click here for more information and have your say: ow.ly/qp3550OjzHb #PBC #YourVoiceMatters #PatientsFirst

The Foundation is entirely patient-driven- for patients, by patients, with patients. The Summit is designed to bring together the entire patient advocacy community. We look forward to welcoming our advocacy friends to share, learn from and support each other’s work. #PBCSummit

With one-in-three adults in the Western World affected by Fatty Liver Disease, many people with PBC may be living with Fatty Liver Disease also. Today we work with our partners at LPI and GLI to spread awareness on IND. #NASHDay

If there are local free screening facilities available, do something good for yourself today - check your HBV and HVC status. #WorldHepаtitisDay

Tomorrow is the big day, PBC Day 2023! To help raise awareness, we’re asking you, the PBC community, to share your stories and give others a chance to ASK YOU about PBC. For more information on PBC, please visit pbcfoundation.org.uk/what-is-pbc/ #PBCDay2023 #PBCDay #AskMeAboutPBC

It’s International PBC Day! Please share, along with your PBC stories, to show your support and help raise awareness. #PBCDay2023 #PBCDay #AskMeAboutPBC #AwarenessDay #PBCCommunity #PBCPeople

I absolutely LOVE these. Here's a great one to start the New Year- just one action, just one day at a time...

🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours

A great video explaining some of the basics...

If you or anyone in your followers has PSC, please share the patient survey below. This is phase 1 of an international collaboration between PSC patient groups and our long term goal is to develop a regulatory standard instrument to measure acute/bacterial cholangitis in PSC 🙏

Good news! The 1st patient for the ASP-PSC study has been recruited 👏 This ground-breaking clinical trial funded by Cancer Research UK aims to see if the risk of cancer for people with primary sclerosing cholangitis (#PSC) can be reduced ➡️ buff.ly/3x8ucTq #LetsBeatPSC #PSCStudy

An interesting day... we have permission to host a PBC Foundation protest in Brussels re the ridiculous decision to recommend OCA license revoke in #PBC Anyone want to join us?? Details to follow if you are interested... historic day for PBC patients.

PBC Foundation and friends in Brussels. Patients rally against EU ban on autoimmune drug. euronews.com/health/2024/07… #PBC #SupportForLife

Happy International PBC Day! We're about to kick off the second day of our patient conference in not-so-sunny Edinburgh. Let us know where you're following from! #PBCDay2024 #ProvidingBetterCare