🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

It's #RareDiseaseDay today! 3.5 million people in the UK have a rare disease. The need to diagnose and treat rare diseases is needed now more than ever. We're raising awareness and showing support for the community. #showyourstripes #rarediseaseday2023 @M4RareDiseases

On this #rarediseaseday we are happy to announce #BEOND - an ambitious survey exploring development and outcomes in rare genetic syndromes which aims to capture the diversity across the range of families we work with. Learn more at cerebranetwork.com/beond youtu.be/VJvgB_D8fXo

A massive thank you to all the syndrome support groups who have been working with us behind the scenes as we roll out the #BEOND project. We are always keen to hear from new groups so please do get in touch cerebranetwork.com/contact

📢Join our free webinar on 13th March when we launch new teacher resource; Supporting the Complex Needs of Children with Genetic Syndromes in Educational Practice. Link & QR code to register below👇#SEND #SEN #RareDiseases Cerebra Network Cerebra Centre for Educational Neuroscience University of Surrey ESRC IAA 1/3

Developed in consultation with parents, carers, teachers, educational psychologists and SENCOs, we hope that this resource will support educational practitioners working with children and young people with rare genetic syndromes in a range of educational settings.

If you're a healthcare professional & would like to learn more about intellectual disability in healthcare practice, check out these videos, developed by Hayley Crawford and Hayley Trower youtube.com/playlist?list=… via NIHR ARC West Midlands Warwick Med School #learningdisability #geneticsyndromes

👉We are recruiting for a Post Graduate Research Coordinator - Join our lovely PGR Team! Check out the details below - deadline 26 March #recruitment #medschool ow.ly/jBuA50NmVQe

Research position working on an important clinical trial - applications close in 1 week. @CEDAR_Warwick Richard Hastings Peter Langdon🏳️‍🌈🇨🇦🇪🇺🇬🇧 @stat_PT A/Prof Matt Buttery

We had a fascinating day of talks today at our Cerebra Network workshop: Anxiety in Rare Genetic Syndromes organised by Hayley Crawford . Thanks to everyone who presented Kayla Smith Jo Moss Dr Jane Waite Jess Mingins #geneticsyndromes #anxiety #fragilex

We are looking forward to listening to all the talks today at #NDAS2023 starting the morning listening to Kayla Smith anxiety in #fragilexsyndrome

Nicky Thomas sharing some important work on using general practice for mental and physical health concerns for parents who care for for children with intellectual disability #NDAS23

Excellent presentation by Nicky on supporting the health and well-being of parents of children with intellectual disabilities Neurodevelopmental_conditions_research@WMS WMS Research Degrees

Great to see our PhD student Kayla Smith presenting her poster today at the #WMSPGR on social anxiety in fragile X today! ☺️

Wonderful talk from our PhD student Nicky on exploring the use of general practice for the health concerns of parents who care for a child with an intellectual disability #WMSPGR

bjgpopen.org/content/early/… Our PhD student Nicky Thomas is exploring the role of general practice for parents of children with intellectual disability. Recently published systematic review findings on this important topic can be viewed here:

Proud of our PhD student, Nicky Thomas, whose systematic review exploring the role of general practice from perspectives of parents of children with intellectual disability is published today doi.org/10.3399/BJGPO.…… Hayley Crawford Neurodevelopmental_conditions_research@WMS Helen Atherton Kayla Smith

My first funding application as a PI was successful for the project Behaviours of Concern at Special Schools: Sharing Experiences. The Collaboration and Co-production Fund exists to build relationships between researchers and the public. Warwick Med School Neurodevelopmental_conditions_research@WMS Cerebra Network

Looking forward to giving a talk about how the Behaviour Checklist can support behaviours that challenge at the Child Growth Foundation conference for families and carers. #learningdisability #growthconditions #sotossyndrome #intellectualdisability #warwickmedschool

If you care for someone with a #learningdisability or #autism, please consider joining a session below to share your views on medication prescribed in primary care. This will help inform #research being led by our colleagues Keele University 🐿️.

Participate in the Checklist Project. A tool for parents to understand behaviours that challenge. For parents of children aged 4-18 with a moderate-profound learning disability. #disabilityresearch #geneticsyndromes Warwick Med School University of Warwick @drhayleytrower Cerebra Network