Happy 2023! We are excited to kick off the new year with a new grant round. Applications are officially open starting today. And yes, this is for both DC + Philadelphia! 🕊️

Dr. Malika Fair from AAMC highlights that Black patients are 2.5 times more likely to have something negative written about them in their medical records, which can negatively impact their future care. #hjbcon2023

Mrs. Lacks’ story highlights the importance of ethics in the medical, research, and public health fields. Today, we honor Mrs. Lacks’ legacy and significant impact on medical science, public health, and patients’ rights and privacy. (4/4) #BHM #BlackHistoryMonth #HenriettaLacks

So much more than a story. #newborn #publichealth

We want to pose this question to people in our #RareDisease community. For those who don't really know much about rare diseases, what would you want them to know? #RareDiseasesChat

REMINDER: birdSEED grant applications close on March 31st! Questions? Email [email protected]. Link to our eligibility survey, application, and donation page are in our bio. 🕊️

Equity for people living with a #RareDisease is equitable access to diagnosis, treatments, health, social care and opportunity. Find out more at: rarediseaseday.org 🧡💚💙 #NCBRS #NCBRSRare #RareDiseaseDay2023 #RareDiseaseDay #RDD2023 #RDD #Care4Rare #SeeRare

Join Expecting Health with Amy Gaviglio next Wednesday to talk about communicating key info on storage and use of #newbornscreening bloodspots.

This happened 3 times last week, so a brief PSA: It is not okay that I, the SOLE WOMAN and SENIOR AUTHOR on this piece, keep being omitted in reference to this piece. It is also not okay that other men get attributed (who did not co-author) to this work nature.com/articles/s4225…

Wow! This one question so clearly and heartbreakingly shows the current state of #medicine and research. So much emphasis on a diverse, data set, and so little attention to good, quality, ongoing care. Without the latter, we will never get to the former. #equity #dei

This is such a terrible tragedy and it unfortunately supports some very damning data. Black women are 3x more likely to die in childbirth than their white peers, and while economic disparities are an issue, it is public health crisis largely created by the fact Black women are

Today is International Neonatal Screening Day! Newborn screening has come a very long way, and there are so many incredible organizations, advocates, and families working hard to ensure that the #newbornscreening system continues to evolve for the better.

Join us for a discussion about identifying #implicitbias, how it can impact care, and ways to create open conversations between providers, patients, and their families to reduce these biases. Sign up here: bit.ly/3XPyoQz #healthequity

As we are gearing up for Newborn Screening Awareness Month, remember to use these hashtags to join us in raising awareness for every baby's first test! #NBS60Years #2023NBS #NBS #genetics

Some of my favorite people! Always excited to see this group! 😍

Michelle John, an Expecting Health Navigate #NewbornScreening Ambassador, highlights the importance of engaging and empowering families navigating the newborn screening system. APHL #APHLNBS #2023NBS #NBS60Years #familyengagement

"People get to be angry. Our job is to be as thoughtful as possible and normalize that this process can be terrifying." - Jessica Dallman (Natural Wisdom Counseling) speaking about how #healthcare providers can support patients and families when delivering #raredisease diagnoses.

Real conversation with my (black female) Uber driver just now: Me: did you get your updated flu and Covid vaccines? Her: hell no – I’m not putting that poison in my body. Me: I hear that a lot. What makes you say that? Her: you can’t trust the government. And I don’t smoke or

Empower your health journey this holiday season by learning the importance of knowing your family's health history and how to initiate these conversations. Use the link in our bio to access these resources. Global Genes RareDiseaseDiversityCoaltion #familyhealth

"In order to achieve health equity, your ethnicity and location should not be one of the determining factors of your health outcomes." - Pastor George Nicholas. National Academies #communitysafety #publicsafety