We have some 230 people coming to the Alliance Meeting and 440 to the Allied Professionals Forum including the largest contingent of people living with ALS/MND attending in history. You can still join us at pheedloop.com/EVEOHKCATAZOQ/… #ALSMNDWithoutBorders #ALS #MND

Come and work with our team at Sheffield aiming to end MND. An exciting tenured Grade 9 senior research fellow linked with NIHR. jobs.shef.ac.uk/sap/bc/webdynp…

Symposium Blogathon: Focus on... Plenary Speakers (Part 1) mndresearch.blog/2022/11/03/sym…

Congratulations to Kyrah Thumbadoo, a PhD student studying UBQLN2 neuropathology and X-inactivation in #MND at the University of Auckland 👏

Register now to attend this free satellite meeting on 6 Dec. Highlights include recent developments in ALS clinical trials, with specific focus in relation to precision therapy, new trial, diagnostic and functional approaches, as well as trial updates.

Check out this ALS TDI article: How to Find, Read, and Understand a Research Paper – Even if You’re not a Scientist als.net/news/how-to-re…

This clinical trial builds on a Drug Development Grant by FightMND confirming ambroxol is effective across multiple lab models of MND. Grateful to the support of FightMND and its amazing donors in getting this homegrown drug into MND patients for trial florey.edu.au/about/news-med…

Registered for #alsmndsymp? Going to be on the go next week? Make sure you download the FREE Symposium app! 📱 You can watch live sessions, browse the agenda and more all on your iPhone/Android! App Store 👉itunes.apple.com/us/app/the-eve… Google Play 👉 play.google.com/store/apps/det…

The New Zealand MND Research Network Summer 2022 Newsletter is available now. Click on the link to read the latest news stories from New Zealand. #mnd #als bit.ly/3UztWCz

Open-label extension data of Tofersen #alsmndsymp Most data already available in NEJM paper. Surprising large differences between clinical endpoints (e.g. ALSAQ-5 & EQ5D vs ALSFRS-R), confirming the limitations of using scales like the ALSFRS-R in multidimensional disease?

The #clinicaltrial session happened at #alsmndsymp yesterday. 💊 We know the #MND #ALS community are eager to hear updates from trials, so we have put together an overview of the 4 trials discussed at the session yesterday on our blog. Read here ⬇ mndresearch.blog/2022/12/07/4-m…

✨ It’s the final day of the 33rd International Symposium on #ALS #MND! ✨ We hope you have had a productive Symposium so far and enjoy the final day. Don’t forget if you missed a session you can watch on-demand until 8 March 2022! #alsmndsymp🌐

It's so great to see more researchers utilising King’s #ALS Clinical Staging system in clinical trials. Get in touch if you want to use the system in your research. Also we developed an online staging course part of @TRICALS_cureALS here is the link elearning.elevatehealth.eu/login/index.php

🚨 New blog! 🚨 Today's blog delves deeper into whether signs of #MND #ALS can be detected before symptoms appear. Observing changes within the body before symptoms occur could help lead to earlier diagnoses and treatment of the disease. Read more ⬇ mndresearch.blog/2023/01/06/can…

This new technique could provide valuable insights into the MND disease process that we can't obtain currently; Mature ‘lab grown’ neurons hold promise for ALS and other neurodegenerative diseases lesturnerals.org/mature-lab-gro…

Pain in #ALS is often not recognized enough. A few years ago, we King's MND Centre Ammar Al-Chalabi created leaflets about #pain for people with ALS & for health care professionals used in specialist clinics & MND Association. Both leaflets received the endorsement of the Royal College of GP

Meet our renowned experts in ALS at PACTALS 2023. Join us in Kuala Lumpur, Malaysia on 14-16 September 2023. Ammar Al-Chalabi Merit cudkowicz AngelaGenge Professor Matthew C. Kiernan AM Nerve Centrals Seung Hyun Kim Gen Kanai ｜ Sobue

The U.S. FDA will hold a public meeting in March for advice regarding approval of the investigational therapy tofersen for the treatment of ALS caused by SOD1 gene mutations. buff.ly/3kRyckw #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity

Brooke Eby Hello SLTs/SLPs and all interested! We are running a free webinar on Apple free voice banking with a focus on what you should know for your clients, who it is better for and what issues may be. Ask any questions, discuss. All welcome & free fegister here mnd.eventsair.com/aac-training-s…

In this webinar Dr Alan Stanley will outline the principles behind providing the best possible care for people with MND (pwMND), and future treatment avenues. Targeted at MDT members caring for pwMND, but everyone welcome to attend. Register & more info@ bit.ly/3Ple9Yu