Help create a better future for people with NF1. Join our research project by scanning the QR code and registering on our website. #NF1PROJECT #ENDNF #NFAWARENESS #NFRESEARCH

Robyn L. learned about her neurofibromatosis type 1 (NF1) diagnosis at a young age, but it hasn't stopped her from pursuing a career in sports broadcasting, and "leading a life so determined and focused." ctf.org/news/stories-o… #endnf #nf1 #makenfvisible #nfhero #nfawareness

Good news to see that hundreds have already completed this survey for those living with #Neurofibromatosis Type1. Be great to get to 1000.💚💙 #nf1 #endnf #benignisnotfine #

To be a part of this international study register at nf1project.com. #EndNF # ConquerNF #NF1 # Nf1Project # NFResearch

#Neurofibromatosis can often cause painful symptoms. We’ve worked with our Specialist NF Advisors to create a #PainManagement section on our website, featuring useful pain-relieving advice. Find out more - bit.ly/3scR8bg #WeAreHereForYou #NFSupport

Research: understanding your experience of NF1. OPEN Health are looking for young people with NF1 aged 7-16, and caregivers of children with NF1 aged 4-16, to learn about your reality of living with #NF1. Find out more & take part: bit.ly/3VkoMLh #NFResearch

If you are an adult with NF1 please consider being a participant in this study. The more we can understand NF1 the better chance we have to improve treatment options. Visit nf1project.com. #EndNF #NFResearch #ConquerNF # NF1

This is an international study recruiting adults with NF1 to learn more about why neurofibromas develop and how to treat them. Scan the QR code to register and complete online. #EndNF #ConquerNF #NF1 #NFResearch

#SleepDeprivation is commonly linked to #Neurofibromatosis. #Meditation for sleep is a specific, guided experience to help you get the natural sleep you need, letting go of the day and resting your mind and body. Find out more - bit.ly/3JLoQip

At NF Aware Nigeria, we see a future where neurofibromatosis is understood, accepted, and treated with compassion and respect in Nigeria. Here is how you can be part of that future. The change we need starts with us in our own little way. #neurofibromatosis

If you are an adult with NF1 we need your help to find the answers. Visit the website nf1project.com and participate from home. #EndNF #ConquerNF #NF1 #NF1project

The NF1 Project supports Rare Diseases Day. Many people in our community face daily physical and emotional challenges living with NF1. We hope medical research will play a part in easing this burden. #rarediseasesday #nf1project #endnf #conquernf

"I've been running from my genetic condition my entire life. But TikTok caught up to me – and made me famous for the thing I disliked most about myself," writes Lilly Simon. usatoday.com/story/opinion/…

Thank you to all who have joined this important research study for adults with NF1. We now have over 400 people registered but we are still recruiting. Visit the website to learn more and participate from home. #Endnf #Conquernf #nf1project

See this Instagram post by @janu_nfwarrior instagram.com/p/CqFtpA6LiQW/…

We are still recruiting for this important genetic study. If you are an adult with NF1 you can participate from home by visiting the website nf1project.com. #nf1project #endnf #conquernf

Associate Professor Tracy Dudding-Byth explains why studying the DNA of people with NF1 may lead to better understanding of tumour growth and new treatments in the future. fb.watch/j_VPLejpLs/ via facebookwatch