TOFS (@newsfortofs) 's Twitter Profile
TOFS

@newsfortofs

TOFS is a registered UK charity supporting those born with #OesophagealAtresia, #TracheoOesophagealFistula and associated conditions #OA #TOF #TEF #EA #VACTERL

ID: 1296152767

linkhttp://www.tofs.org.uk/ calendar_today24-03-2013 18:11:09

1,1K Tweet

1,1K Followers

996 Following

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This week is Feeding Tube Awareness Week. Do you know that some born with OA/TOF, regardless of age, use a feeding tube to supply the nutrition they need? TOFS supports raising awareness and helping to reduce stigma surrounding feeding tubes. #FeedingTubeAwarenessWeek

This week is Feeding Tube Awareness Week.

Do you know that some born with OA/TOF, regardless of age, use a feeding tube to supply the nutrition they need?

TOFS supports raising awareness and helping to reduce stigma surrounding feeding tubes.

#FeedingTubeAwarenessWeek
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Don't miss this Thursday's Talk with TLCs on "Starting Nursery, Pre-school, and School". Do you have a child born with #OA / #TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents and share experiences. us02web.zoom.us/meeting/regist…

Don't miss this Thursday's Talk with TLCs on "Starting Nursery, Pre-school, and School".
Do you have a child born with #OA / #TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents and share experiences.

us02web.zoom.us/meeting/regist…
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Watch the latest video from the TOFS Seminar 2024. tofs.org.uk/oa-tof-informa… We look at the specific needs of adults living with #OA / #TOF within the Dutch context and areas where UK practice may differ. Particularly when it comes to the transition from child to adult health care.

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Get ready for #OA / #TOF Awareness Week! Did you know a baby is born with Oesophageal Atresia and Tracheo-Oesophageal Fistula in the UK roughly every other day? Around 180 babies a year, facing a condition with lifelong implications. Get involved: tofs.org.uk/oa-tof-awarene…

Get ready for #OA / #TOF Awareness Week!
Did you know a baby is born with Oesophageal Atresia and Tracheo-Oesophageal Fistula in the UK roughly every other day? Around 180 babies a year, facing a condition with lifelong implications. 

Get involved: tofs.org.uk/oa-tof-awarene…
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It’s OA/TOF Awareness Week! Find out how to get involved at: tofs.org.uk/oa-tof-awarene… #OA / #TOF is more common than many people realise, yet awareness of its impact is often lacking. Let’s change that!

It’s OA/TOF Awareness Week!

Find out how to get involved at: tofs.org.uk/oa-tof-awarene…

#OA / #TOF is more common than many people realise, yet awareness of its impact is often lacking.

Let’s change that!
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It’s OA/TOF Awareness Week so let people know how OA/TOF has impacted you & your loved ones. You can share your story on social media or contact your local newspaper. Find a press briefing about #OA / #TOF that you can use when speaking to journalists at: tofs.org.uk/oa-tof-awarene…

It’s OA/TOF Awareness Week so let people know how OA/TOF has impacted you & your loved ones. You can share your story on social media or contact your local newspaper.

Find a press briefing about #OA / #TOF that you can use when speaking to journalists at:
tofs.org.uk/oa-tof-awarene…
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New for Awareness Week! Order a brand-new style wristband to show your support. You will find them in the TOFS store alongside our window stickers and badges. tofs.org.uk/product-catego… Wristbands are free, but please consider adding a donation to cover production & postage fees.

New for Awareness Week! Order a brand-new style wristband to show your support.

You will find them in the TOFS store alongside our window stickers and badges.
tofs.org.uk/product-catego…

Wristbands are free, but please consider adding a donation to cover production & postage fees.
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Thank you Naomi & Rhi for sharing your OA/TOF story with the press. inyourarea.co.uk/news/young-swa… If you would like to do the same, we’ve produced a short press briefing about #OA / #TOF that you can use when speaking to journalists. Find out more at: tofs.org.uk/oa-tof-awarene…

Thank you Naomi & Rhi for sharing your OA/TOF story with the press. 
inyourarea.co.uk/news/young-swa…

If you would like to do the same, we’ve produced a short press briefing about #OA / #TOF that you can use when speaking to journalists.

Find out more at: tofs.org.uk/oa-tof-awarene…
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Did you know that we have a dedicated library of resources available for health professionals (inc. FREE digital copies of The TOF Book & The Soft Food Recipe Book)? If your health care team have questions on #OA / #TOF, share the QR or direct them to tofs.org.uk/library

Did you know that we have a dedicated library of resources available for health professionals (inc. FREE digital copies of The TOF Book & The Soft Food Recipe Book)?
If your health care team have questions on #OA / #TOF, share the QR or direct them to tofs.org.uk/library
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Today is international #RareDiseaseDay. Join in the Global Chain of Lights and Share Your Colours tonight at 7pm & decorate your home with the Rare Disease Day colours. Find the video at: tofs.org.uk/event/rare-dis… Please tag us and use #rarediseaseday #tofs #lightupforrare

Today is international #RareDiseaseDay. Join in the Global Chain of Lights and Share Your Colours tonight at 7pm & decorate your home with the Rare Disease Day colours. Find the video at: tofs.org.uk/event/rare-dis…
Please tag us and use #rarediseaseday #tofs #lightupforrare
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A huge thank you to everyone who bought a ticket in our Winter Raffle. Together you have raised an incredible £2100 for TOFS. Are you a winner? Check the website to see. tofs.org.uk/2025/03/tofs-w…

A huge thank you to everyone who bought a ticket in our Winter Raffle. Together you have raised an incredible ÂŁ2100 for TOFS.

Are you a winner? Check the website to see.
tofs.org.uk/2025/03/tofs-w…
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As TOFS Awareness Week 2025 closes, we want to express our deepest thanks. You've shared, you've fundraised, you've told your stories & you've made a difference! This is an incredible #OA / #TOF community. But our work continues. Please keep sharing to help raise awareness.

As TOFS Awareness Week 2025 closes, we want to express our deepest thanks. You've shared, you've fundraised, you've told your stories & you've made a difference! This is an incredible #OA / #TOF community.

But our work continues.

Please keep sharing to help raise awareness.
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Don't miss this week's virtual meet-up for adults born with OA/TOF. 6th March, 2025 , 8:00pm Sign-up: us02web.zoom.us/meeting/regist… This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories/experiences

Don't miss this week's virtual meet-up for adults born with OA/TOF. 
6th March, 2025 , 8:00pm

Sign-up:
us02web.zoom.us/meeting/regist…

This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories/experiences
TOFS (@newsfortofs) 's Twitter Profile Photo

Calling all adults born with #OA/#TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF on 3rd April us02web.zoom.us/meeting/regist… This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share

Calling all adults born with #OA/#TOF.
You’re invited for a virtual cuppa and chat with other adults born with OA/TOF on 3rd April

us02web.zoom.us/meeting/regist…

This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share
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We’re hiring! Role: Communication and project support officer (UK) We are looking for a skilled communicator with experience in health-related content creation. tofs.org.uk/2025/03/vacanc… Please share this message with your contacts.

We’re hiring! 

Role: Communication and project support officer (UK)

We are looking for a skilled communicator with experience in health-related content creation.

tofs.org.uk/2025/03/vacanc…

Please share this message with your contacts.
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TOFS Annual General Meeting Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. on the 24th April, 2025 by Zoom at 7:00 pm. Invited to attend: Council of Management, TOFS office staff, all Members and Associates tofs.org.uk/event/tofs-ann…

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Exciting News! We've been selected for The Big Give’s match funding campaign! Supported by Global Radio, the campaign is taking place during #SmallCharitiesWeek (23rd - 30th June) During the campaign donations will be doubled for free! Find out more at: tofs.org.uk/double/

Exciting News! We've been selected for The Big Give’s match funding campaign!

Supported by Global Radio, the campaign is taking place during #SmallCharitiesWeek (23rd - 30th June)

During the campaign donations will be doubled for free!

Find out more at: tofs.org.uk/double/
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The latest video from our Bristol Seminar is now live! Watch Clare Skerritt, Paediatric Surgeon and Emma Griffiths explore the early years of OA/TOF care, share real-life surgical insights, and give an update on Surgical-PEARL project tofs.org.uk/oa-tof-informa…

The latest video from our Bristol Seminar is now live! Watch Clare Skerritt, Paediatric Surgeon and Emma Griffiths explore the early years of OA/TOF care, share real-life surgical insights, and give an update on Surgical-PEARL project tofs.org.uk/oa-tof-informa…
TOFS (@newsfortofs) 's Twitter Profile Photo

Don't miss next week's virtual meet-up for adults born with OA/TOF on Thursday, 5th June @ 8pm (UK) Register at: us02web.zoom.us/meeting/regist…

Don't miss next week's virtual meet-up for adults born with OA/TOF on Thursday, 5th June @ 8pm (UK)
Register at: us02web.zoom.us/meeting/regist…
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This week is National Volunteers’ Week, where we highlight the amazing work our volunteers do. Join us throughout the week as we celebrate the time and hard work our volunteers give at TOFS to help support our #OA / #TOF community. #VolunteersWeek

This week is National Volunteers’ Week, where we highlight the amazing work our volunteers do. Join us throughout the week as we celebrate the time and hard work our volunteers give at TOFS to help support our #OA / #TOF community.
#VolunteersWeek