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Great spending time today with my good buddy Evan Rothholz from Harleysville—an 8th grader in the Souderton School District, Nationals super fan, and one of the most thoughtful, joyful, and wise people I know. Evan’s in town for the 2025 National Down Syndrome Society Advocacy Conference, doing what he

Yesterday was an INCREDIBLE day of advocacy for the Down syndrome community as 400 advocates from across the country were on Capitol Hill telling their stories and making their voices heard. 💛Thank you to everyone who made the 2025 Down Syndrome Advocacy Conference our best yet!

This is my daughter, Rachel Handlin. She earned her full Bachelor of Fine Arts degree in Photography & Media from the prestigious California Institute of the Arts. Rachel has Down Syndrome I am officially the proudest father on the planet. Credit : Penn Novena

Entrepreneurship knows no limits – ask Blake Pyron. He opened Blake's Snow Shack and became the first business owner with Down syndrome in Texas. Now, he is looking to invest in the next dreamer. Are you that person or do you know someone who is? Apply at ndss.org/scholarships

Don't miss out! 🚨 Applications for the NDSS Times Square Video Presentation close June 4, 2025 at 11:59 PM ET. 📸 Submit your photo today at ndss.org/nyc-buddy-walk…

🩺 This #NationalNursesWeek, we extend our deepest gratitude to the incredible nurses who provide compassionate, dedicated care and support to our loved ones with Down syndrome and their families and caregivers. 💛💙 We see your impact and we’re thankful!

This National Women’s Health Awareness Month, check out 𝑃𝑟𝑖𝑚𝑎𝑟𝑦 𝐶𝑎𝑟𝑒 𝑃𝑟𝑜𝑣𝑖𝑑𝑒𝑟’𝑠 𝐺𝑢𝑖𝑑𝑒 𝑡𝑜 𝑊𝑜𝑚𝑒𝑛’𝑠 𝐻𝑒𝑎𝑙𝑡ℎ 𝑎𝑛𝑑 𝐷𝑜𝑤𝑛 𝑆𝑦𝑛𝑑𝑟𝑜𝑚𝑒. Download it and share it with your PCP at ndss.org/resources/prim…

Mother's Day is this Sunday, May 11! 💐 Honor mom or a mother figure in your life by donating to NDSS in their honor and sending them a Mother's Day e-card! Send one to the moms in your life at ndss.org/donate.

🎉 The Janissa Believe & Achieve Scholarship is officially OPEN! This one-of-a-kind scholarship supports individuals with Down syndrome in achieving their biggest dreams, no matter what they are! ✨ Apply now or share with a friend who has big dreams at ndss.org/janissa-believ…

We were honored to join our friends CoorDown and Madison Tevlin at the @clioawards to celebrate winning a Grand Clio for “Assume That I Can”. Congratulations to Indiana Production and SMALL on this award and thank you for your unwavering dedication to celebrating Down syndrome.

#GlobalAccessibilityAwarenessDay aims to raise awareness about digital accessibility and promote inclusivity for people with disabilities. 🤝 Whether it's improving website accessibility, enhancing app usability, or increasing awareness, we all have a role to play! #GAAD

Email Lauren at [email protected] to secure your exhibitor spot! 🌟 Self-advocate businesses exhibiting at the 2025 New York City Buddy Walk for the first time will secure a spot in the Times Square Video Presentation.

Last week, the Charlotte Woodward Organ Transplant Discrimination Prevention was introduced by Senator Ashley Moody and @senatorhassan in the Senate! 🥳 Take action on Charlotte’s Bill at ndss.quorum.us/campaign/11121…

Join us in welcoming Lauren Kelley to the NDSS team! 💙 Lauren is the Manager of Special Events, where she plans and oversees events that bring people together, celebrate the Down syndrome community, and support NDSS’ mission in meaningful ways. Welcome, Lauren! 🎉

Did you know that up to 16% of individuals with Down syndrome are believed to have Celiac disease? 🤯 The treatment is a gluten-free diet that eliminates all barley, rye, and wheat from a person’s diet. Learn more about Celiac disease and Down syndrome at ndss.org/resources/gast…

🚨 Don't miss out! 𝗧𝗶𝗺𝗲𝘀 𝗦𝗾𝘂𝗮𝗿𝗲 𝗩𝗶𝗱𝗲𝗼 𝗣𝗿𝗲𝘀𝗲𝗻𝘁𝗮𝘁𝗶𝗼𝗻 𝗮𝗽𝗽𝗹𝗶𝗰𝗮𝘁𝗶𝗼𝗻𝘀 𝗮𝗿𝗲 𝗱𝘂𝗲 𝗪𝗲𝗱𝗻𝗲𝘀𝗱𝗮𝘆, 𝗝𝘂𝗻𝗲 𝟰 𝗯𝘆 𝟭𝟭:𝟱𝟵 𝗣𝗠 𝗘𝗧! Submit your photo at ndss.org/nyc-buddy-walk…

Have questions about what's going on with #Medicaid? We joined The Audrey and Jeremy Show to talk about it! youtube.com/watch?v=wittTY…

Calling all advocates! 📣 The SSI Savings Penalty Elimination Act has been reintroduced in the United States House and Senate! Click the link below for more information on the bill and how you can support it! ndss.org/ssi-savings-pe…

This weekend, #TeamNDSS will be taking on the Independence Dragon Boat Regatta on the Schuylkill River in Philadelphia and we're thankful to have the support of these amazing sponsors! 🛶 Follow along on our social media this weekend to get a glimpse into this unique event!

Shifting public perceptions one paddle at a time! We’re so proud of #TeamNDSS who took home the bronze medal at the biggest and oldest Dragon Boat Festival in the nation! 🚣 Thank you to our paddlers, cheer squad, and sponsors for such an incredible experience.