Myasthenia Gravis Foundation of America (@myastheniaorg) 's Twitter Profile
Myasthenia Gravis Foundation of America

@myastheniaorg

#MyastheniaGravis Foundation of America (MGFA) is the largest nonprofit patient advocacy organization dedicated solely to improving the lives of people with MG.

ID: 3064151668

linkhttp://myasthenia.org calendar_today26-02-2015 22:39:41

2,2K Tweet

2,2K Followers

318 Following

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Join us on June 30 for "The Changing MG Conversation," a special MG Awareness Month webinar with Dr. Jeffrey Rosenfeld of Loma Linda University. Dr. Rosenfeld will argue why this is an unprecedented time to be part of the MG Community. Register: ow.ly/ZCUI50We96z

Join us on June 30 for "The Changing MG Conversation," a special MG Awareness Month webinar with Dr. Jeffrey Rosenfeld of Loma Linda University. Dr. Rosenfeld will argue why this is an unprecedented time to be part of the MG Community.

Register: ow.ly/ZCUI50We96z
Myasthenia Gravis Foundation of America (@myastheniaorg) 's Twitter Profile Photo

“MG is a huge barrier – it takes so much from us – but you’ve got to take it back. Don’t let it take away your joy. I started getting back to music one little bit at a time. Slowly but surely, you build up those muscles and you build up the courage.” - Dania

“MG is a huge barrier – it takes so much from us – but you’ve got to take it back. Don’t let it take away your joy. I started getting back to music one little bit at a time. Slowly but surely, you build up those muscles and you build up the courage.” - Dania
Myasthenia Gravis Foundation of America (@myastheniaorg) 's Twitter Profile Photo

What is myasthenia gravis? Learn more in this informative YouTube video. Share with friends and family who need to know. youtu.be/1nsRqTqn2r8?si…

Myasthenia Gravis Foundation of America (@myastheniaorg) 's Twitter Profile Photo

Seronegative #myastheniagravis, meaning your blood does not contain antibodies known to cause MG, is an especially difficult form on the disease.

Seronegative #myastheniagravis, meaning your blood does not contain antibodies known to cause MG, is an especially difficult form on the disease.
NMD Pharma (@nmdpharma) 's Twitter Profile Photo

As #MGAwarenessMonth draws to a close, we're excited to share details on our new Virtual Adaptive Yoga program designed specifically for those with neuromuscular disorders, including #myastheniagravis. Created in partnership with patient advocate Deborah Vick and NMD Pharma's

Myasthenia Gravis Foundation of America (@myastheniaorg) 's Twitter Profile Photo

, Every year, we join forces to help the world know about myasthenia gravis. Thank you for an incredibly productive month, turning awareness into action!

,
Every year, we join forces to help the world know about myasthenia gravis. Thank you for an incredibly productive month, turning awareness into action!
Myasthenia Gravis Foundation of America (@myastheniaorg) 's Twitter Profile Photo

Tips for managing MG and summer heat on #IndependenceDay: * Know your limits. Don't be afraid to turn down invitations or leave early. * Cold + Refreshing + Hydrating = Your snack mantra! * Use MGFA's Partners in MG Care list for care while traveling. ow.ly/K2PM50WiHUU

Tips for managing MG and summer heat on #IndependenceDay:

* Know your limits. Don't be afraid to turn down invitations or leave early. 
* Cold + Refreshing + Hydrating = Your snack mantra!
* Use MGFA's Partners in MG Care list for care while traveling.

ow.ly/K2PM50WiHUU
Myasthenia Gravis Foundation of America (@myastheniaorg) 's Twitter Profile Photo

"Living with chronic illness and navigating work is basically a job in itself." Find strategies in this MGFA webinar, sponsored by Immunovant. ow.ly/gVWl50WleKJ

"Living with chronic illness and navigating work is basically a job in itself."

Find strategies in this MGFA webinar, sponsored by Immunovant.
ow.ly/gVWl50WleKJ
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Join us to learn more and ask your questions about participating in a clinical trial. This webinar is sponsored by argenx. Register: myasthenia.org/mgfa-events-we…

Join us to learn more and ask your questions about participating in a clinical trial.

This webinar is sponsored by argenx. 

Register: myasthenia.org/mgfa-events-we…
Myasthenia Gravis Foundation of America (@myastheniaorg) 's Twitter Profile Photo

Programs are available to help you cover the cost of medical care when you live with myasthenia gravis. Learn more about grants from partner organizations: myasthenia.org/living-with-mg… *Note - these funds are available to United States residents.

Programs are available to help you cover the cost of medical care when you live with myasthenia gravis. Learn more about grants from partner organizations: myasthenia.org/living-with-mg…

*Note - these funds are available to United States residents.
Myasthenia Gravis Foundation of America (@myastheniaorg) 's Twitter Profile Photo

What you do after getting the diagnosis can help shape the path that your #myastheniagravis will take. Here is what volunteer Rebecca wishes she knew when she was diagnosed. myasthenia.org/blog/2021/10/1…

What you do after getting the diagnosis can help shape the path that your #myastheniagravis will take. Here is what volunteer Rebecca wishes she knew when she was diagnosed. 

myasthenia.org/blog/2021/10/1…
Myasthenia Gravis Foundation of America (@myastheniaorg) 's Twitter Profile Photo

"Say ahhh!" is not straightforward when you live with muscle weakness and fatigue. Check out these tips for a successful dentist visit from dentist and MG patient Dr. Gene Casagrande. ow.ly/nNaM50WrcWu

"Say ahhh!" is not straightforward when you live with muscle weakness and fatigue. Check out these tips for a successful dentist visit from dentist and MG patient Dr. Gene Casagrande.

ow.ly/nNaM50WrcWu
Myasthenia Gravis Foundation of America (@myastheniaorg) 's Twitter Profile Photo

If you are sweating under a heat dome right now, read these tips for staying cool. Hot weather can exacerbate myasthenia gravis symptoms. Take care! myasthenia.org/blog/2024/06/2…