12 days ago, I almost lost my husband. 5 seizures, 1 CPR, and 5 hours later, an ambulance finally arrived. As they wheeled him out, I honestly thought he wouldn't survive. He has atrial fibrillation and heart failure. His heart had stopped. Surgery and a pacemaker saved him 🙏

I work & be 'on call' 24/7/365 for two disabled adults. I receive a "Carers Allowance" of £83.30 pw, which equates to £0.4958333333 per hour for 'My Essential Work' #Criminality❗️ #Abused ❗️ @CarersWeek2025 👉 Our government truly are something else right ⁉️ 🤡

👉 Carers Allowance weekly rate £83.30 #Disgusting 👉 Me : Continuous Caring at 168 hrs per week. #Reality 👉 Carers Allowance ÷ My Working Week = £0.4958333333 pence per hour❗️#Criminal 🚫 STOP EXPLOITATION❗️ #WeAreNotVolunteers❗️ #WhoCarersForUsCarers❓️ @CarersWeek2025

📢 Carers are abandoned! 👉 There is no actual useful support! Carers are - 👉 Forced to neglect themselves! 👉 Deprived of time to ensure their own basic needs are met! 👉 Isolated within their own home is reality for many, and I am only one of those "many" .. We deserve better!

👉#NewProfilePic Carers Week 2025 and nothing has improved for us #UnpaidCarers! A pittance of £83.30 per week from our government for all our essential work! 📢 We save these criminals billions per year! 📢" BILLIONS❗️" Why has organisations never challenged this as illegal❓️

#UnpaidCarers do not have the option to strike. #UnpaidCarers are not legally safeguarded. #UnpaidCarers are some people's everything and everyone. #UnpaidCarers are exactly that, unpaid! Some 'fit' criteria for Carers Allowance, some don't. #WhoCaresForUs? #NoStrikingForUs!

📢 Utter tripe! This is the very man who deemed it "inappropriate" to meet with me for a discussion around the barriers we face with our Autistic, Non-Speaking, Severely Mentally Impaired son! Mike Nesbitt reading a prepared script, smiling for the camera, then scuttling along!

So, Carers NI during @CarersWeek2025 have blocked me! 👉Support 👉Commitment 👉Equality for #UnpaidCarers 📢I am punished for Freedom of speech! 👉Says it all really! #OneAlwaysSpeaksHerTruth

"Distressed behaviour is a language of trauma"

#NewProfilePic

Add in Fibromyalgia and diabetes and it makes for one heck of a journey! Then add on being an #UnpaidCarer whilst living through all the chaos 🙇🏼‍♀️ Days I just about manage to function!

Allodynia is believed to be a hypersensitivity to stimuli that would normally not cause pain. The pain can be provoked by a light touch to the skin, pressure from clothing, showering, combing or brushing your hair. Even a light breeze blowing across your skin can feel like agony.

Do you experience pain from a simple touch? Do you cringe when someone goes to give you a hug? Do these simple gestures result in excruciating pain? Skin pain is another one of those fibromyalgia symptoms that just doesn’t seem to make sense. This type of pain is called Allodynia

We watched an amazing YouTube podcast on awareness days 👏 We've done what we think is right at no cost just our time, no fundraising, just those who care, share & make real small hopeful change through kindness. Kindness before profit. Nonspeaking Awareness Day we really care 🌍

Disabled people are forced to put up with this crap everyday: 🚨Vilified as scroungers and cheats 🚨Ableist slurs such as spasticity and retard 🚨Nazi-esque slurs such as parasite and useless feeder 🚨Told we should've been aborted 🚨Told we should be institutionalised 🚨Told

“A lot of the #anxiety I experience is a result of not being able to trust my body. Every day it's hit or miss whether my body will hold out. I don't trust that my legs will allow me to walk.” Anxiety Through the Prism of #ChronicIllness buff.ly/7tDtXVZ Rhiann Johns

In a world quick to judge, remember: prejudice is the blindfold we choose to wear. What if we took it off and truly saw one another? Shatter the blindfold of prejudice today-see the light in every soul, the story in every heart. #BlindedByPrejudice #UnleashEmpathy #RiseTogether

This is what education is all about! It's not solely curriculum based! Lived experiences and being different, navigating differently, unique understanding and respecting difference, is just as important. Great to see this! Kay 🫂