Hi everyone. I just had an appointment with Tobii Dynavox tech support & they showed me something that will really help reduce being stuck/frozen on the i-16 & i-13. This feature is set to off by default. Open the icon "Eye Tracking Settings " 1/

PLEASE support an org that provides hope for THIS ALS generation If an org is not putting #DrugsInBodies NOW, they will NOT reach you in time MGH Neurology Healey Center is the CLEAR choice testing MANY treatments NOW that can result in a breakthrough AT ANY TIME Encourage

100% FATAL #ALS IS NOT RARE! You or your loved one could be next Each day is a battle against the relentless progression of the disease as we are denied effective #Nurown due to #PeterMarks FDA Biologics Dr. Robert M. Califf INFLEXIBILITY. While cancer patients often have access to

When I was 18, my dad passed away in 2003 after a five-year battle with ALS, also known as Lou Gehrig’s Disease. I was left fatherless, but luckily, Dad instilled a framework of timeless values that taught me how to persevere through hard times and reject the victimhood

As I'm preparing my mass emails for this week, I can only hope that others are doing the same. This took a lot of time to set up using eye gaze & will only have an effect if many people join in. #ALS advocacy is virtually nonexistent. Let's not let the FDA & Congress forget

Some people with ALS will disagree, but I believe that to have #ALS is to be alone. Particularly in the late stages of the disease. Immediately after diagnosis people fight for you, but slowly the numbers of people start to dwindle. I hope that you never experience the

#ALS advocacy is nonexistent We're failing future generations of #ALS patients & their families. MANY are being given this DEATH SENTENCE EVERY DAY. 1st documented case of HIV 1959- treatable 1st documented case of ALS 1869-100% FATAL in 2024 HIV movement founder Larry

ALS is a thief that steals your body, your voice, and your independence. It isolates you in a prison of extreme suffering and brutal loneliness. May this cruel disease never touch your life or the lives of your loved ones. #EndALS Rep. Brett Guthrie Larry Bucshon, MD Rep. Anna G. Eshoo

ACT-UP AIDS movement founder Larry Kramer: "How long does it take before you get angry and fight back?" HOW MANY MORE HAVE TO DIE before the FDA Biologics & Dr. Robert M. Califf treat 100% FATAL #ALS with the same urgency/flexibility as cancer treatments? #FDAfailedALS #NurownWorks

It's depressing to see Mitsubishi Tanabe Pharma America can charge $14,000 for every 28 days of a drug (edaravone) that has been in use since the 1980s. I don't think many #ALS neurologists or patients are convinced that it does anything. #HighwayRobbery

The #ALS community would be grateful if you or your business could donate to Robert Ordway Ride. #EndALS Please don't wait for HORRIFIC 100% FATAL #ALS to enter your life to support efforts to #EndALS. #IamALS #PromisingPathwayAct Senator Mike Braun

#ALS steals so much, even the simple joy of reminiscing. Scrolling through old photos, I'm flooded with happiness... then crushing despair. Life before was vibrant, full of possibilities I never dreamed could vanish. EVERY DAY, many more are being given this DEATH SENTENCE, &

100% FATAL #ALS IS NOT RARE! You or your loved one could be next Each day is a battle against the relentless progression of the disease as we are denied effective #Nurown due to #PeterMarks FDA Biologics Dr. Robert M. Califf regulatory RIGIDITY for #ALS While cancer patients often have

52-year-old man says a new Parkinson's drug has changed his life as a video shows the before & after effects. Damien Gath became the first patient in East Midlands, England to try the new drug Produodopa. Gath was diagnosed with Parkinson's 12 years ago. The following videos

#ALS advocacy is nonexistent We're failing future generations of #ALS patients & their families. MANY more are being given this DEATH SENTENCE EVERY DAY 1st documented case of HIV 1959- treatable 1st documented case of ALS 1869-100% FATAL in 2024 HIV movement founder Larry

I contacted Fred Fisher several times to publicly support #Nurown approval for #ALS. His commitment to #ALS patients and his compassion were evident in his responses. He never mentioned that he was battling cancer. It's a great loss for the #ALS community and humanity in