Joanne(@didyegethealed) 's Twitter Profile Photo

This is SO frustrating. People with need new fierce advocates who have pull in government. Dying, paralyzed patients and their families with PTSD can't do it. We don't have the medical knowledge or political understanding to make a change. A is not working for us!

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Tavares Speer(@TavaresSpeer) 's Twitter Profile Photo

I can’t understand this. Why does cancer get to always be first in line? Cancer is not always 100% fatal, however, ALS is. But the U.S. FDA seems to have no interest in helping us. It makes no sense.

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Kathy Collier(@KathyCo74123384) 's Twitter Profile Photo

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
ALS ACCESS Eric Braeden @MinoSean
Imagine having ALS no cure no viable Treatment
This Buzzard is ALS waiting and Watching the Slow Death
Unless you have ALS or your family member has it
YOU DON'T UNDERSTAND
ALS Is Watching
Stop ALS!!!

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
@brainmatters10 @EBraeden @MinoSean
Imagine having ALS no cure no viable Treatment
This Buzzard is ALS waiting and Watching the Slow Death
Unless you have ALS or your family member has it
YOU DON'T UNDERSTAND
ALS Is Watching
Stop ALS!!!
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Kathy Collier(@KathyCo74123384) 's Twitter Profile Photo

ALS-THE FORGOTTEN DISEASE
AUTISM-NOT BROKEN
ALS ACCESS Eric Braeden @MinoSean
I call ALS-THE FORGOTTEN DISEASE because after the Victim DIES they are FORGOTTEN
Not Richard my Soulmate Husband
The World of ALS VICTIMS is about Death
DIAGNOSED to Die
Stop this Cycle
160 years WHY

ALS-THE FORGOTTEN DISEASE
AUTISM-NOT BROKEN
@brainmatters10 @EBraeden @MinoSean
I call ALS-THE FORGOTTEN DISEASE because after the Victim DIES they are FORGOTTEN
Not Richard my Soulmate Husband
The World of ALS VICTIMS is about Death
DIAGNOSED to Die
Stop this Cycle
160 years WHY
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Kathy Collier(@KathyCo74123384) 's Twitter Profile Photo

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
ALS ACCESS Eric Braeden @MinoSean
Richard the Love of my Life
DIED Waiting for NUROWN
ALS 100% FATAL
Now NUROWN is in another Trial
How many more Victims will DIE waiting
Tell me WHY do they use Placebo
Give the Victims the Medicine

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
@brainmatters10 @EBraeden @MinoSean
Richard the Love of my Life
DIED Waiting for NUROWN
ALS 100% FATAL
Now NUROWN is in another Trial
How many more Victims will DIE waiting
Tell me WHY do they use Placebo
Give the Victims the Medicine
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Kathy Collier(@KathyCo74123384) 's Twitter Profile Photo

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
ALS ACCESS Eric Braeden @MinoSean
I am getting ready to go to work
I had a young co-worker ask
When are you going to Retire
I said probably Never
She ask Why
I replied I like to eat
I will be 65 in August
ALS Killed Richard 2018
πŸ˜”

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
@brainmatters10 @EBraeden @MinoSean
I am getting ready to go to work
I had a young co-worker ask 
When are you going to Retire
I said probably Never
She ask Why
I replied I like to eat
I will be 65 in August
ALS Killed Richard 2018
πŸ˜”
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Shah Minokadeh, M.D.(@MinoShah) 's Twitter Profile Photo

.FDA Biologics Director Peter Marks & Big Pharma shill Dr. Robert M. Califf have been consistent in showing their lack of urgency/flexibility for HORRIFIC 100% FATAL .

The 45 days is up on Monday. If there was no deadline, I'm sure this process would more closely resemble the U.S. FDA

.@FDACBER Director Peter Marks & Big Pharma shill @DrCaliff_FDA have been consistent in showing their lack of urgency/flexibility for HORRIFIC 100% FATAL #ALS.

The 45 days is up on Monday.  If there was no deadline, I'm sure this process would more closely resemble the @US_FDA
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Kathy Collier(@KathyCo74123384) 's Twitter Profile Photo

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
ALS ACCESS Eric Braeden @MinoSean
Another day more Deaths from ALS
More Diagnosed
A revolving DOOR
Those Diagnosed today will live approximately 5 - 8 years
Slowly becoming a Human RAG DOLL
Muscles Atrophy still Feel everything
HELP

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
@brainmatters10 @EBraeden @MinoSean
Another day more Deaths from ALS
More Diagnosed
A revolving DOOR
Those Diagnosed today will live approximately 5 - 8 years
Slowly becoming a Human RAG DOLL
Muscles Atrophy still Feel everything
HELP
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Kathy Collier(@KathyCo74123384) 's Twitter Profile Photo

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
ALS ACCESS
Eric Braeden @MinoSean
Richard's first sign of ALS was in his thumb in 2010
Numerous Doctors and test Diagnosed 2012
Rapid decline
Went into ICU Thanksgiving 2017
Died in ICU 87 days later
ALS MURDERS ALL VICTIMS
No Cure!!!

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
@brainmatters10
@EBraeden @MinoSean
Richard's first sign of ALS was in his thumb in 2010
Numerous Doctors and test Diagnosed 2012
Rapid decline
Went into ICU Thanksgiving 2017
Died in ICU 87 days later
ALS MURDERS ALL VICTIMS
No Cure!!!
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Kathy Collier(@KathyCo74123384) 's Twitter Profile Photo

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
ALS ACCESS Eric Braeden @MinoSean
I am a voice for those that can't Speak
Like My Husband Richard who Died from ALS
Where is the CURE ALSA
What happened to the Ice Bucket Challenge Money
We need Details
Can't wait Dying to Know !!

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
@brainmatters10 @EBraeden @MinoSean
I am a voice for those that can't Speak
Like My Husband Richard who Died from ALS
Where is the CURE  ALSA 
What happened to the Ice Bucket Challenge Money
We need Details
Can't wait Dying to Know !!
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Kathy Collier(@KathyCo74123384) 's Twitter Profile Photo

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
ALS ACCESS Eric Braeden @MinoSean
ALS is not a Rare DISEASE
It is IGNORED
Victims Diagnosed told to go home to Die
Autism is Not Rare
It does have some medical help
Neither can be Cured
Richard Died from ALS
Matthew is Autistic
Truth

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
@brainmatters10 @EBraeden @MinoSean
ALS is not a Rare DISEASE
It is IGNORED
Victims Diagnosed told to go home to Die
Autism is Not Rare
It does have some medical help
Neither can be Cured
Richard Died from ALS
Matthew is Autistic
Truth
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Kathy Collier(@KathyCo74123384) 's Twitter Profile Photo

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
ALS ACCESS Eric Braeden @MinoSean
Autism is Not Wrong it is the way their Brain works
Instead of mocking try interacting with those with Autism
See the World through their eyes
Matthew has embraced his Autism so have I
Be Kind Always

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
@brainmatters10 @EBraeden @MinoSean
Autism is Not Wrong it is the way their Brain works
Instead of mocking try interacting with those with Autism
See the World through their eyes
Matthew has embraced his Autism so have I
Be Kind Always
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Kathy Collier(@KathyCo74123384) 's Twitter Profile Photo

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
ALS ACCESS Eric Braeden @MinoSean ALS Association Blocked me
In 2012 the day Richard was Diagnosed we called ALSA for help
We were asked to Donate put on hold then said that we would get a return call
Richard Died 2018
STILL NO CALL

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
@brainmatters10 @EBraeden @MinoSean ALS Association Blocked me
In 2012 the day Richard was Diagnosed we called ALSA for help
We were asked to Donate put on hold then said that we would get a return call 
Richard Died 2018
STILL NO CALL
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Kathy Collier(@KathyCo74123384) 's Twitter Profile Photo

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
ALS ACCESS Eric Braeden @MinoSean
Someday there will be a Viable Treatment or a Cure for ALS
Too late for the Victims Suffering today
Trials with Placebo WHY??
If you get into a Trial at least get the REAL MEDICATION
Richard Died 2018

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
@brainmatters10 @EBraeden @MinoSean
Someday there will be a Viable Treatment or a Cure for ALS
Too late for the Victims Suffering today
Trials with Placebo WHY??
If you get into a Trial at least get the REAL MEDICATION
Richard Died 2018
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