
Michael Rynne
@michaelrynne1
CLL advocate in CLL Ireland and globally in CLL Advocates Network. Working for the unmet needs of the CLL community in Ireland. Chronic lymphocytic leukaemia
ID: 904831907829047298
https://clli.ie 04-09-2017 22:21:52
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Unfortunately, the Irish government's approach to cancer is passive. We have a massive budget surplus but can't afford life-saving cancer medicines for patients. UCAN IRELAND

Another cancer treatment denied to Irish cancer patients. This time, it's CAR T to treat Myeloma blood cancer. UCAN IRELAND

The European Commission has approved a fixed-duration Bruton’s tyrosine kinase (BTK) selective inhibitor, Calquence (acalabrutinib) plus venetoclax, with or without obinutuzumab, to treat adults with previously untreated chronic lymphocytic leukaemia pharmaceutical-technology.com/news/ec-astraz…

Although Department of Health has not yet published the recommendations of the DoH Mazars Implementation group (as promised by the previous Minister for Health), I am reliably informed that 34 new staff have been employed by the NCPE (no longer on x) based on this groups

Have you or anyone you know been affected by #ovariancancer ? Then help us to raise awareness & meet like-minded people by joining Target Ovarian Cancer Ovar-Dressed walk at Stormont Sunday 29th June. Still time to sign up 🩵 #womenshealth #Belfast 👇👇 targetovariancancer.org.uk


Our drug approval system is broken and government inaction is failing our cancer community, but we are also failing to support the clinical community left on the front line unable to treat cancer patients with the best treatments. UCAN IRELAND

We are very proud of our UCAN member Christine Campbell powerful advocacy at Northern Ireland Assembly Health Committee Inquiry: Access to Palliative Care Services 👏❤️ #PowerfulPatientVoices #PalliativeCareNeeds #UnitedCancerVoicesIE

Proud to see and hear the strong Irish participation at #EHA25. Ruth Clifford at the panel discussion on leveraging efficacy in this new fixed duration era of #CLL Also great to see our clinical nurse specialists Fidelma Hackett Ger Walpole and Mary Kelly Jan Rynne






At UCAN IRELAND it's our mission to highlight inequalities in access to cancer treatments & fight for patients. This is why. This is the reality experienced by patients & their families. It's heartbreaking 💔 #UnitedCancerVoicesIE #AccessToCancerTherapies #CancerKnowsNoBorders


Michael Rynne Are we ready to adopt MRD guided schedule ? Amazing results

Lymphoma patients need timely access to treatments. This family live one hour from a CAR T centre in Dublin but had to travel to London. Do our governments discuss cross border access? Jennifer Carroll MacNeill TD Wes Streeting Sorcha Eastwood MP Lymphoma Coalition bbc.com/news/articles/…

