Michael Rynne (@michaelrynne1) 's Twitter Profile
Michael Rynne

@michaelrynne1

CLL advocate in CLL Ireland and globally in CLL Advocates Network. Working for the unmet needs of the CLL community in Ireland. Chronic lymphocytic leukaemia

ID: 904831907829047298

linkhttps://clli.ie calendar_today04-09-2017 22:21:52

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Eric Topol (@erictopol) 's Twitter Profile Photo

Here again is the remarkable impact of immunotherapy for intractable cancer via engineered T cells gift link nytimes.com/2025/06/03/hea…

Here again is the remarkable impact of immunotherapy for intractable cancer via engineered T cells
gift link nytimes.com/2025/06/03/hea…
Michael Rynne (@michaelrynne1) 's Twitter Profile Photo

Unfortunately, the Irish government's approach to cancer is passive. We have a massive budget surplus but can't afford life-saving cancer medicines for patients. UCAN IRELAND

CLL Ireland (@cllireland) 's Twitter Profile Photo

The European Commission has approved a fixed-duration Bruton’s tyrosine kinase (BTK) selective inhibitor, Calquence (acalabrutinib) plus venetoclax, with or without obinutuzumab, to treat adults with previously untreated chronic lymphocytic leukaemia pharmaceutical-technology.com/news/ec-astraz…

michaeltmccarthy (@mccarthymt7) 's Twitter Profile Photo

Although Department of Health has not yet published the recommendations of the DoH Mazars Implementation group (as promised by the previous Minister for Health), I am reliably informed that 34 new staff have been employed by the NCPE (no longer on x) based on this groups

Christine Campbell (@ccampbell162) 's Twitter Profile Photo

Have you or anyone you know been affected by #ovariancancer ? Then help us to raise awareness & meet like-minded people by joining Target Ovarian Cancer Ovar-Dressed walk at Stormont Sunday 29th June. Still time to sign up 🩵 #womenshealth #Belfast 👇👇 targetovariancancer.org.uk

michaeltmccarthy (@mccarthymt7) 's Twitter Profile Photo

The NTPF is a good idea, in principle, to allow public patients to access the readily available capacity in private hospitals. The politicians who established the NTPF must have recognised that there was a capacity problem in the HSE Yet, still today, somehow, there seems to

Michael Rynne (@michaelrynne1) 's Twitter Profile Photo

Our drug approval system is broken and government inaction is failing our cancer community, but we are also failing to support the clinical community left on the front line unable to treat cancer patients with the best treatments. UCAN IRELAND

UCAN IRELAND (@ucanireland) 's Twitter Profile Photo

We are very proud of our UCAN member Christine Campbell powerful advocacy at Northern Ireland Assembly Health Committee Inquiry: Access to Palliative Care Services 👏❤️ #PowerfulPatientVoices #PalliativeCareNeeds #UnitedCancerVoicesIE

CLL Ireland (@cllireland) 's Twitter Profile Photo

Proud to see and hear the strong Irish participation at #EHA25. Ruth Clifford at the panel discussion on leveraging efficacy in this new fixed duration era of #CLL Also great to see our clinical nurse specialists Fidelma Hackett Ger Walpole and Mary Kelly Jan Rynne

Proud to see and hear the strong Irish participation at #EHA25.
<a href="/RuthClifford5/">Ruth Clifford</a> at the panel discussion on leveraging efficacy in this new fixed duration era of #CLL
Also great to see our clinical nurse specialists <a href="/fidelmahackett/">Fidelma Hackett</a>
<a href="/GerWalpole/">Ger Walpole</a> and Mary Kelly
<a href="/JanRynne/">Jan Rynne</a>
Toby Eyre (@tobyeyre82) 's Twitter Profile Photo

➡️➡️Big CLL news! Munir et al OS and PFS adv for MRD driven I&V over ibrutinib in 1L #CLL #EHA2025 Congrats to all FLAIR trial 🇬🇧group Measurable Residual Disease–Guided Therapy for Chronic Lymphocytic Leukemia | New England Journal of Medicine nejm.org/doi/full/10.10…

michaeltmccarthy (@mccarthymt7) 's Twitter Profile Photo

Health-economists are clear that new cancer treatments do not represent value for money. I agree the treatments cost too much. Cancer treating clinicians are clear that these treatments work well enough that they would like to be able to prescribe them. The HSE response to

Michael Rynne (@michaelrynne1) 's Twitter Profile Photo

More from the Flair trial results at #EHA2025 Ibrutinib plus venetoclax significantly improved responses, progression free survival and overall survival in CLL.

More from the Flair trial results  at #EHA2025 
Ibrutinib plus venetoclax significantly improved responses, progression free survival and overall survival in CLL.
CLL Advocates Network (@clladvocates) 's Twitter Profile Photo

Presented at #EHA2025: Among patients with CLL undetectable MRD and progression-free survival were more common with ibrutinib–venetoclax than with ibrutinib alone or chemoimmunotherapy, with benefits sustained at 5 years. Full FLAIR phase 3 trial nej.md/3SMNdC4

Presented at #EHA2025:
Among patients with CLL undetectable MRD and progression-free survival were more common with ibrutinib–venetoclax than with ibrutinib alone or chemoimmunotherapy, with benefits sustained at 5 years. 
Full FLAIR phase 3 trial  nej.md/3SMNdC4
Roberta Horgan 🇮🇪 (@horganroberta) 's Twitter Profile Photo

At UCAN IRELAND it's our mission to highlight inequalities in access to cancer treatments & fight for patients. This is why. This is the reality experienced by patients & their families. It's heartbreaking 💔 #UnitedCancerVoicesIE #AccessToCancerTherapies #CancerKnowsNoBorders

Miguel A Pavlovsky MD (@pavlovsky_mig) 's Twitter Profile Photo

FLAIR phase 3 trial results: nej.md/3SMNdC4  !! Amazing results with an unprecedented 5 year PFS > 90% for I + V in a RCT for CLL 1L

FLAIR phase 3 trial results: nej.md/3SMNdC4  !! 
Amazing results with an unprecedented 5 year PFS &gt; 90% for I + V in a RCT for CLL 1L
Michael Rynne (@michaelrynne1) 's Twitter Profile Photo

Lymphoma patients need timely access to treatments. This family live one hour from a CAR T centre in Dublin but had to travel to London. Do our governments discuss cross border access? Jennifer Carroll MacNeill TD Wes Streeting Sorcha Eastwood MP Lymphoma Coalition bbc.com/news/articles/…

lynch syndrome irl @lsireland.bsky.social (@lynchsyndromirl) 's Twitter Profile Photo

Improving Cancer Outcomes with Better Lynch Syndrome Testing: A Cost-Benefit Study lynchsyndromeireland.com/2025/06/18/imp… via @lynchsyndromirl

UCAN IRELAND (@ucanireland) 's Twitter Profile Photo

Few understand the challenges faced more than those experiencing them. Great patient-led #research survey on impact of #ProstateCancer treatment on sexual & mental health still open & looking for contributions from patient & partners. Please share 🙏 cancertrials.ie/proact-survey/