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Thank you to Jim Shannon MP for highlighting the challenges faced by the millions of people in the UK living with rare condition - many of which are preventable or able to be alleviated with HCP awareness #ThinkRare #RareDisease

Sorry to see the Parliamentary debate become focused on genetic research, AI and university networks. Rather than carrying on the original focus of acknowledging patient experience, the need for good standards of basic level of care and HCP training UK House of Commons #RareDisease

Medics4RareDiseases is evolving. We are excited to announce a refresh of our strategy, a relaunch of our branding and a new name! We spent much of the last year working alongside our partners, emotive. to ensure we are harnessing that growth! Take a look!

Medics for Rare Disease may be a small charity, but it is making a huge impact! Medics4RareDiseases is evolving. They are excited to announce a refresh of their strategy, a relaunch of their branding and even a new name! Read here: rarerevolutionmagazine.com/medics-for-rar… MedicsforRareDisease

#FindYourPower at Swansea #RareDisease Study Day - Saturday 8th March Ready to unlock the mysteries of rare diseases? Eventbrite / booking link: eventbrite.co.uk/e/swansea-rare… Swansea University / MedicsforRareDisease

#Whitechapel is where it all began for this charity. The founder Trustees studied medicine at The Royal London Hospital - now the Tower Hamlets Town Hall. "It is a beautiful place to study & work, with such a unique & rich history of cultural diversity" - Dr Lucy McKay, CEO

At #Ataxia #RareDisease patient #charity we support #ShowYourStripes for MedicsforRareDisease #RareDiseaseDay (28th February) Find out more at m4rd.org/rarediseaseday…

Final countdown 🦓🧦...

Thank you to M&M Marketing & Merchandise for being so helpful and supportive in the creating of our beautiful campaign socks. This was a big 'step' for us and we're so glad we took it with you #ShowYourStripes

We couldn't be happier...that Ashley Dalton received her socks & chose to wear them to the Genetic Alliance UK Parliamentary Reception yesterday to mark #RareDiseaseDay. Her passionate speech was energising & we look forward to working together #ShowYourStripes Thank you Ashley!

Our CEO, Dr Lucy McKay, had the pleasure of meeting Mr Peter Dowd MP yesterday and handed him some of our socks. Peter is the new Chair of the Rare, Genetic and Undiagnosed conditions APPG. We look forward to working with you! #ShowYourStripes #RareDiseaseDay

We have a vision of equitable healthcare for all. Our mission is to shape a medical profession that can provide timely diagnosis and excellent care to people living with rare conditions. Today is the day to raise awareness #RareDiseaseDay #ShowYourStripes

Read the England Rare Diseases Action Plan 2025 gov.uk/government/pub…

Dr Daybell is also an ambassador for MedicsforRareDisease, a charity helping to drive rare disease awareness. Its campaign #ShowYourStripes on Rare Disease Day today encourages medics to wear stripey socks in support. Read the full interview here: [5/5] thedoctor.bma.org.uk/articles/life-…

Check out our Ambassador and Paralympian legend in this piece by Seren Boyd ParalympicsGB #ShowYourStripes #RareDiseaseDay

Be #Ataxia aware at #Swansea #RareDisease Study Day - Saturday 8th March Unlock the mysteries of rare diseases booking link: eventbrite.co.uk/e/swansea-rare… Swansea University / MedicsforRareDisease #SwanseaRDStudyDay

Today Helen is over at the RCPCH conference! If you see her make sure you say hello! #RCPCH2025