Share your research with an international audience of healthcare professionals, researchers and leading experts working in the field paediatric palliative care. Abstracts must be submitted by the 2nd of June 2024 childrenpalliativecarecongress.org/congress-2024/…

@PalliativeMed_J Scoping Review: How Do Children With Medical Complexity Die? liebertpub.com/doi/full/10.10… Grace Mei Chan Ng et al #PalliativeCare #pediatrics

From the Chief Koala in person

Children with cancer at the end of life in a middle-income country: integrated pediatric palliative care improves outcomes. #Research #StanfordQoLA🐨 pubmed.ncbi.nlm.nih.gov/38302931/

Development of the Parental Experience with Care for Children with Serious Illnesses (PRECIOUS) quality of care measure dlvr.it/T3r0Pg

buff.ly/3x80oG7 is home to Me and My Illness, an activity book developed for #kids aged 6-12 years living with life-limiting illness, to help them with their thoughts, feelings and questions. This resource is available for free download. Andrea buff.ly/3xbFjKT

Wishing all our friends, colleagues and supporters a very happy and peaceful Easter

The outcome of the PalliPed Project mapping the situation of dedicated paediatric palliative care (PPC) services in Italy has been published in the Italian Journal of Pediatrics (IJP). fondazionemaruzza.org/en/palliped-th…

To celebrate 25 years of activity, we are publishing a series of interviews. The first, with the former Italian Health Minster, Hon. Livia Turco, retraces the origins of law 38/2010 that guarantees access to PPC for thousands of children. fondazionemaruzza.org/en/encounters-…

Our Neonatal Nursing Workforce MUST be supported & funded in dedicated roles, ensuring families have equitable access to choices & high quality Palliative & Bereavement Care #COINN24 Neonatal Nurses Association (NNA) @CNOEngland louiseweaverlowe CW+ charity National Neonatal Palliative Care Project BAPM Bliss Baby Charity

In this letter RichardHarding, @WolfePPC & Justin Baker discuss the methodological challenges to developing valid & useful #PCOMs for #children with #LifeLimting conditions. They highlight the importance of South-North partnerships to share lessons learnt: doi.org/10.1089/jpm.20…

"Roots and Horizons - Learning From Yesterday, Living Today, Shaping The Future" The 6th Maruzza International Congress on Paediatric Palliative Care aims to address this theme. See the scientific programme childrenpalliativecarecongress.org/congress-2024/… Register now! childrenpalliativecarecongress.org/congress-2024/… #PPC

The Maruzza Congress offers the perfect opportunity to share your research with an international audience of healthcare professionals, researchers and leading experts working in the field paediatric palliative care. Submit your abstract; childrenpalliativecarecongress.org/congress-2024/… #PPC

Don't miss out! Presenting authors under the age of 35 years can participate in the Vlček Family Foundation Young Researchers’ Award for Excellence in Paediatric Palliative Care Visit the Congress website: childrenpalliativecarecongress.org/congress-2024/

Listen to the leading PPC experts who will be at the 6th Maruzza Congress on the theme “Roots and Horizons" this Oct. Ulrika Kreicbergs, RN, PhD, holds the Louis Dundas Chair in Palliative Care for Children and Young People, at GOSH Ist, UCL, in the UK youtu.be/R-pjwX-aORk

What should be included in a #PCOM for #children with #LifeLimiting/#LifeThreatening conditions #pedpc? Lucy Coombes led a #Delphi survey, #YPAG engagement & item generation meeting to gain consensus & develop initial versions of C-POS:UK. Full article: doi.org/10.1177/026921…

Ann Goldman is the Honorary President of the Maruzza Congress. Working as the 1st PPC Consultant at GOSH, she is considered THE pioneer of Children’s Palliative Care. She is an editor of the Oxford Textbook of Palliative Care for Children. youtu.be/CBdTQr2EXMc

Perinatal Pallaitive care is starting in India! Great to see this amazing initiative ehospice.com/inter_children… Spandana Rayala Two Worlds Cancer Canuck Place Children's Hospice Supported by the Children's Palliative Care Leadership Program!

Debbie Braybrook (she/her) Thanks so much to all of our partner sites, children, families, Together for Short Lives , our great research team and to European Research Council (ERC) for funding