Calling All Young MPN Patients! Diagnosed with an MPN before 40? We want to hear from YOU! 🗣️ Take 2 mins to complete our survey and share your thoughts on our latest leaflet. 👉 Read the leaflet & take the survey: linktr.ee/Mpnvoice

Some countries may be experiencing a shortage in the supply of Pegasys Interferon. We want to reassure you that various UK Health Bodies and MPN experts have this under review and that it is not an immediate problem in the UK. We will update further once we have more information

Join us for the MPN Voice "Walk to Support Challenge". Every step counts. Gather your friends, family, or coworkers and create a team. Let's walk together, raise awareness, and support those affected by this disease. Are you in? - email - [email protected]

Very pleased to share our work on development of natural language processing pipeline to assess cardiovascular risk and thrombotic complications in MPN. Machine learning approach allowing assessment of health records of >900 patients and >23000 documents onlinelibrary.wiley.com/doi/full/10.10…

In Conversation with Tobe about her PV diagnosis, treatment, and participation in the Mithridate Study. The Mithridate Study tests Ruxolitinib vs. current BAT for high-risk PV. Watch now via the link in our bio: linktr.ee/Mpnvoice #mpnsm

Join us for the MPN Voice Walk to Support Challenge during Blood Cancer Awareness Month! This isn’t just a walk; it’s a powerful statement.! 5K, 10K, or 20K. No fixed venue or country. Walk with your family, friends, or pet. Email Debbie to get going - [email protected]

Interferon supplies – Update 19 August 2024 MPN Voice has published an update to our original post about international shortages of interferon alpha, in particular pegasys (pegylated interferon alpha 2a) Read more via - linktr.ee/Mpnvoice

NCPE Update: Besremi for PV in Ireland The NCPE's initial assessment recommends not reimbursing Besremi unless its cost-effectiveness improves compared to existing treatments. Further details via: linktr.ee/Mpnvoice

PEN is hosting an ELEVATE Myelofibrosis webinar entitled “Elevate | What You Should Know About Your Role in Myelofibrosis Treatment and Care Decisions” on September 11th at 1pm ET (10 AM PT, 12 PM CT). More info via bit.ly/3yM9JEs

PEN is hosting an EPEP MPN webinar entitled “HCP Roundtable: Advancing Practice and Enhancing Myeloproliferative Neoplasm Care” on September 17th at 1pm ET (10 AM PT, 12 PM CT). For info- linktr.ee/Mpnvoice

Join our FREE virtual forum on skin cancer & MPN on Sept 11th! Hear from experts, ask questions, and learn more. Register now: linktr.ee/Mpnvoice

#BloodCancerAwarenessMonth Let's fight blood cancer together. Early detection and treatment can make a big difference. This month, let’s honour and celebrate the survivors of blood cancer. Their strength and resilience inspire us all. Use the hashtag #BloodCancerAwareness...

Free MPN Info Session with Friends of Anchor & Aberdeen Royal Infirmary in Aberdeen! Living with MPN in NHS Grampian? Learn about: MPN signs & symptoms, treatments, support and research Sep 4th, Time: 5:30pm- 6:30pm at the Aberdeenshire Cricket Club linktr.ee/Mpnvoice

Grab your friends and lace Up for #BloodCancerAwareness Month! Join MPN Voice's #WalkToSupport Challenge: Raise awareness for MPNs Support MPN Voice Get active & healthy! Sign up now! Email "Walk to Support Challenge" & your name to [email protected] #mpnsm

Visit the new AR-enhanced art exhibition dedicated to #MPN10 and #BloodCancerAwareness, created by MPN Voice & Novartis UK. See it outside the ARC until September 22nd. #BloodCancerAwarenessMonth. Find out more: novartis.com/uk-en/mpn10

Pegasys (interferon) shortage - temporary due to manufacturing switch. Speak to your doctor if concerned. We'll keep you updated. More here - mpnvoice.org.uk/news/interfero… #mpnsm

⁦MPN Voice⁩ ⁦MPNAdvocatesNetwork⁩ so happy to be at MPN Horizons incredible representation in this room

MPN Awareness Day 12 Sept 2024 September is Blood Cancer Awareness Month. The 12th annual MPN Awareness Day brings the global MPN community together to reflect, promote well-being for patients and caregivers, and raise awareness. #mpnsm

MPN-SVT is a rare condition where blood clots form in abdominal veins due to chronic bone marrow cancer. Research study by Nursing, Midwifery & Palliative Care at King's 💙, Cancer Care Surrey, Health Sciences Surrey funded by MPN Voice and Royal Free Charity. Link to Phase 1 film and report here - linktr.ee/Mpnvoice

@MPN SM ⁦MPN Voice⁩ ⁦GUY'S MYELOID CENTRE⁩ ⁦MPNAdvocatesNetwork⁩ Thinking of all colleagues, researchers, patients, their families carers and all in the MPN family on MPN Awareness Day 2024. Let’s keep working together and striving for the best!